Volume 18. Teetering on
Death: Survivor, Hospice, Grief, etc.
Chapter 1. Some People Beat Cancer, Some Don't
The
Cancer Survivorship Care Plan
After your treatment or surgery at a mainstream hospital,
they should pass you off to some kind of rehabilitation therapist. The holistic cancer centers do this routinely
because they’re about treating the whole you but at a mainstream conventional
hospital, the doctor will do the treatment then they’ll probably send you to
the cancer ward where they ether give you drugs to lessen the pain because the
conventional treatments all cause great pain or try to help you survive.
Get a written copy of your treatment summary and
survivorship care plan.
Ask for recommendations to a formal survivorship care
program where survivors meet and talk, usually weekly.
The treatment summary includes diagnostic and treatment
information such as:
Type of cancer, severity
Type(s) of treatment received
doses of all medications
amounts and sites of any radiation therapy
reports and scans, such as CT scans and MRIs
Side effects
complications
Names and contact information of key people
A survivorship care plan also called a follow-up care plan
includes follow-up care plans.
There are follow-up care clinics/ survivorship clinics where
they check to see if the cancer or returns or if you stay in remission.
There are emotional and physical late effects of
cancer. You will feel weak, tired and
maybe angry that you got cancer even after you have healed but you lived.
I think PTSD is the new part of mental health fraud, this
idea that you will be incapacitated because you will have cancer flashbacks.
I say get a life, life is now.
My life philosophy is be active, release my natural
energy. If I sit around, I start to
think of myself as a wimp for not getting up and moving.
cancer.gov
nationalacademies.org/hmd/Reports/2005/From-Cancer-Patient-to-Ca
ncer-Survivor-Lost-in-Transition.aspx, Cancer Survivorship
Care
Planning fact sheet
childrensoncologygroup.org
survivorshipguidelines.org
childrensoncologygroup.org/index.php/lateeffectsoftreatment
cancer.gov/publications/patient-education/guide-for-parents,
Children with Cancer: A Guide for Parents
hhs.gov, U.S. Department of Health and Human Services
nih.gov, National Institutes of Health
cancer.gov/about-cancer/coping/survivorship/child-care
cancer.gov/publications/patient-education/guide-for-parents
supportorgs.cancer.gov/
cancer.gov/about-cancer/coping/survivorship/child-care
Cancer and Mental Health
They say that cancer or any other
serious illness is the same mentally as having post-traumatic-stress-syndrome.
nccn.org/physician_gls/index.html
cancer.gov/ cancer_information
ipos-aspboa.org/iposnews.htm,
International Psycho-Oncology Society
chemoready.ca, the emotional side
effects of cancer and chemotherapy.
colonverywell.com/overview-of-cancer-4014677/b/2009/09/21/mental-health-important-for-cancer-survivors.htm
webmd.com/cancer/news/20051114/cancer-patients-mental-health-untreated
webmd.com/mental-health/news/20041006/mental-health-linked-to-cancer-risk
voices.yahoo.com/mental-illness-affecting-half-cancer-patients-542206.html
breastverywell.com/overview-of-cancer-4014677/lw/health-medicine/conditions-and-diseases/the-psychological-impact-of-a-breast-cancer-diagnosis.htm
goodtherapy.org/blog/mental-health-cancer-anxiety-depression-ptsd-psychotherapy/
mentalhealth. dead
website/library/sci/0302/blcancer302.htm, social interactions lessen cancer
depression
health.harvard.edu, the mental and
emotional challenges of surviving cancer
apos-society.org/professionals/meetings-ed/webcasts/webcasts-ican3.aspx,
cancer 101 for mental health professionals
abcnews.go.com, breast cancer takes
toll on partner's mental health
cancervic.org.au/for-health-professionals/training_courses_and_education/prevention-mental-health
Cancer Survivor Websites/ Coping
Websites 1
Books about cancer survivorship are
at #362.1 at the library.
There are some blogs and free
videos on the internet about people talking about their cancer stories.
sharitucker.com
shesacancersurvivor.com
resource4mesothelioma.com/topics/mesotheliomasurvivorstories.html,
800-518-5103.
mesolink.org/mesothelioma-hope/survivor-1.html
acscsn.org, the cancer survivors
network
allheadlinenews.com/articles/7003582254,
sister says laughter helped kylie minogue recover from cancer.
asco.org/treatmentsummary
aspencancer.org, cancer survivor
center for health and wellbeing.
battling-cancer.com
beyondthecure.org/cancers-impact/medical/survivor/
blochcancer.org, 800-433-0464, talk
with a survivor of your type of cancer.
breastcancercd.co.uk, breast cancer
inspiration cd.
breast-cancer-infosite.com
breast-cancer-survivor.com
breastcancersurvivors.com
cafepress.com/buy/cancer-survivor,
cancer survivor t-shirts.
cancer.org
cancer.org/docroot/nws/content/nws_1_1x_cancer_survivors_other_medical_problems_often_neglected.asp
canceradvocacy.org, national
coalition for cancer survivorship.
cancer-care-notebook.com
cancercenter.com/hodgkins-disease.cfm
cancer-central.com, personal life
experience of cancer patients, family and friends.
cancersource.com/newsfeatures/inspirationalstories/index.cfm
cancer-support.org
cancersurvivaltoolbox.org
cancersurvivor.com
cancer-survivor.org/stories/index.shtml
cancersurvivor2006.blogspot.com
cancersurvivorbook.com
cancersurvivors.org
cancersurvivorsnetwork.org
cancersurvivorsproject.org
cancervive.org, 800-4tocure
candlelighters.ca, 800-363-1062,
parents and cancer survivors.
cansearch.org, 888-650-9127,
877-622-7937, cancer survivor network.
cansurvive.org, 888-yes-nccs,
cancer survivorship.
cfrprogram@aol.com, 888-553-3500,
casting for recovery program, teaches cancer survivors how to fish.
chemocare.com/testimonials/
clearwisdom.net/emh/articles/2005/11/2/66447.html
climbback.com, cancer survivor
story.
cnn.com/health/9803/13/cancer.survivor/
crozer.org/ckhs/coe/cancer/ccmc/recovery,
cancer care at crozer-keystone health system.
curetocancer.com
davesite.com/hodgkins/
dmccully.com, breast cancer
survivor story.
en.wikipedia.org/wiki/cancer_survivors
en.wikipedia.org/wiki/national_coalition_for_cancer_survivorship
english.people.com.cn/200509/17/eng20050917_209080.html,
tai chi helps women recover from breast cancer.
free-4u.com/young_cancer_survivor_scholarships1.htm,
young cancer survivor scholarships.
health.msn.com/centers/cancer/
healthdiaries.com/cancer/prostate-cancer-survivor
healthyfoundations.com/cancer.html
iom.edu/cms/28312/4931/30869.aspx,
from cancer patient to cancer survivor: lost in transition.
lgfb.ca, 800-914-5665, look good,
feel better, cancer survivors.
cancer-central.com, 100 cancer
survivors
personal life experience of cancer
cancernet.co.uk/poems.htm
cancerremedies.org/beat-the-medical-odds-review.html
advancedcancerhelp.com/mesothelioma_survivor.htm,
mesothelioma survivors
livestrong.org, lance armstrong
foundation, supports people in managing and surviving cancer, stories of
survivors.
mayoclinic.com/health/cancer/ca00049,
cancer survival rate: a tool to understand your prognosis.
medicinenet.com/script/main/art.asp?articlekey=33027,
cancer survivor.
medterms.com/script/main/art.asp?articlekey=33021,
cancer survivors.
mhs.net/cancerinstitute/socialservices.aspx,
memorial regional hospital cancer institute.
ncsdf.org, 615-794-300006, national
cancer survivors day foundation.
ncsdf.org, national cancer
survivors, first Sunday in June.
news.bbc.co.uk/1/hi/sci/tech/1388622.stm,
we can't detect any abnormalities in these fish after they recover.
newswithviews.com/howenstine/james8.htm,
how to recover from cancer.
nmmlaw.com/publications/cancer.html,
recovery for "fear of cancer"
npr.org/blogs/mycancer/
oatridge.co.uk/cancer.shtml,
esophageal cancer diary
pancreatica.org/survivor_stories.html
recoversupport.org.uk, support for
women with gynaecological cancer.
rollingtorecovery.com,
rollerblading 2000 miles from glen falls, new york to greeley, colorado to
raise awareness and funds for cancer.
sciencedaily.com/news/health_medicine/cancer/
shesacancersurvivor.com
springerlink.com, jrnl cancer
survivorship
survivorshipmeeting.com
thehardincountynews.com/news/2006/0517/news/025.html,
tips help recover from cancer treatment.
uwplatt.edu/~wiegmake/luke, this is
a story of a five year old boy who fought his cancer and survived.
webmd.com/cancer
why-cancer.com/archive/2006_07_11_why_cancer_archive.html
worldwalkfoundation.com/survivor.html,
breast cancer survivor stories.
Cancer Survivor Websites/ Coping Websites 2
cancer.gov/about-cancer/coping/survivorship/child-care
TriageCancer.org, Triage Cancer.
triagecancer.org/resources
cancerhopenetwork.org, Cancer Hope Network
one-on-one support
cancer.gov/cancertopics/coping, Coping with Cancer
lgfb.org.au, Look Good.Feel Better, A free community service
program in Australia
prayer-for-cancer.com, Prayer For Cancer Patients, Christian
religious orientation offering prayer and support.
cancer.gov/about-cancer/coping/feelings/relaxation
cancer.gov/about-cancer/coping/adjusting-to-cancer/talk-with-doctor
s
cancer.gov/about-cancer/coping/adjusting-to-cancer/changes-for-fam
ily
cancer.gov/about-cancer/coping/adjusting-to-cancer/spouse-or-partne
r
cancer.gov/about-cancer/coping/adjusting-to-cancer/talk-to-children
cancer.gov/about-cancer/coping/adjusting-to-cancer/support-groups
cancer.gov/about-cancer/coping/day-to-day/daily-routine
cancer.gov/about-cancer/coping/day-to-day/faith-and-spirituality
cancer.gov/about-cancer/coping/day-to-day/back-to-work
cancer.gov/about-cancer/coping/caregiver-support/caregiving-after-tr
eatment
cancer.gov/about-cancer/coping/caregiver-support/teens
cancer.gov/about-cancer/coping/caregiver-support/parents
cancer.gov/about-cancer/coping/survivorship/new-normal
cancer.gov/about-cancer/coping/survivorship/follow-up-care
cancer.gov/about-cancer/coping/survivorship/late-effects
cancer.gov/about-cancer/coping/survivorship/family-issues
cancer.gov/about-cancer/coping/survivorship/child-care
cancer.gov/about-cancer/coping/survivorship/questions
cancer.gov/about-cancer/coping/survivorship/child-care
nationalacademies.org/hmd/Reports/2005/From-Cancer-Patient-to-Ca
ncer-Survivor-Lost-in-Transition.aspx
survivorshipguidelines.org
cancer.gov/publications/patient-education/guide-for-parents
Cancer
Survivor Organizations
Asian and Pacific Islander National
Cancer Survivors Network
942 Market St.
#200
Sf, Ca 94102
415-954-9988
smashingawa@juno.com
apiahf.org/cancer
Breast Cancer Survivor Network
888-422-4630
bcsn.org
Cancer Cured Kids
Pob 189
Old Westbury, Ny 11568
800-Cck-7525
516-484-8160
Fax: 516-484-8160
Support group for children cancer
survivors.
Chemocare
800-55-Chemo
They match a patient with a cancer
survivor for support.
Colorado Outward
Bound School
888-837-5204
Course for cancer survivors.
expeditioninspiration.org
208-726-6456
Retreat for cancer survivors.
Life Choices Wellness Center
800-439-0083
Retreat for cancer survivors.
National Cancer Survivors
Day Foundation
Coping Magazine
2019 N. Carothers
Franklin, Tn 37064
615-794-3006, foundation.
615-790-2400, magazine.
copingmag@aol.com
National Assn. of Radiation
Survivors
Pob 20749
Oakland, Ca 94620
800-798-5102
510-655-4886
National Coalition for Cancer
Survivorship
1010 Wayne Ave.
#300
Silver Spring, Md 20910
888-Yes-Nccs
877-622-7937
301-650-8868
Fax: 301-565-9670
info@cansearch.org
cansearch.org
Information and emotional support.
Nevada Test Site Radiation Victim
Assn.
953 E. Sahara
Las Vegas, Nv 89104
702-737-6009
Legal advocacy organization for
survivors and relatives of nuclear bomb tests.
Summits
Inner Mountain Wilderness
Education Center
907-766-2074
lifechoices@lewcenter.com
Retreat for cancer survivors.
Thyroid Cancer Survivors'
Association/ ThyCa
Pob 1545
NYC 10159-1545
877 588 7904
Fax: 630 604 6078
thyca@thyca.org
thyca.org
dragonflyangelsociety.com/survivor-resources.html
has Cancer Survivor Links
dragonflyangelsociety.com
facebook.com/dragonflyangelsociety
dragonflyangelsociety.blogspot.co,
cancer.org/treatment/survivorshipduringandaftertreatment/index,
american cancer society.
csn.cancer.org, cancer survivors network.
cancermatters.com, cancer matters.
foundationforwomenscancer.org, foundation for
women's cancer.
livestrong.org/we-can-help/healthy-living-after-treatment/emotional-support-teams-for-survivors,
live strong foundation.
lbbc.org, living beyond breast cancer.
lynnsage.org, lynn sage foundation.
mybcteam.com, my bc team.
breast cancer survivors
cancer.gov/cancertopics/coping/survivorship,
national cancer institute.
cancercontrol.cancer.gov/ocs, office of cancer
survivorship.
pabreastcancer.org, pa breast cancer
coalition.
pinkribbonprogram.com, pink ribbon program.
physical recovery of breast cancer survivors
womensurvivorsalliance.org, women survivors
alliance.
wellnesshouse.org, wellness house - hinsdale,
il.
classes, support groups, resources
patientadvocate.org, the patient advocate foundation.
assists cancer patients with the financial burdens
endwomenscancer.org
seattlecca.org/fred-hutchinson-cancer-survivorship-program.cfm,
seattle cancer care alliance survivorship clinic.
serves seattle cancer survivors
dana-farber.org/adult-care/treatment-and-support/treatment-centers-and-clinical-services/adult-survivorship-program.aspx,
dana-farber cancer institute.
cancer center in boston, ma.
cancersurvivorshipcopingtools.com, cancer
survivorship coping tools.
ihadcancer.com, i had cancer.
kucancercenter.org/cancer-information/specialties-and-treatment/breast-cancer/survivor-center,
university of kansas cancer center.
thepinkfund.org, the pink fund.
plasticsurgeryinfo.ca/guide-to-breast-cancer-surgery,
guide for breast cancer surgery.
whatsnextformylife.com, what's next for my
life.
wherewegonow.com, where we go now as breast
cancer survivors.
breastinvestigators.com
breast cancer resources, blogs, interest
groups and more.
fightsurvivecure.com, fight survive cure.
annieappleseedproject.org, annie appleseed
project.
alternative and complimentary therapies for cancer survivors.
patientpower.info, patient power.
uniteforher.org, unite for her.
tnbcfoundation.org/survivorship.htm, triple
negative breast cancer foundation.
Terminal Illness Survivor Info
People who survive serious diseases
usually have a new lease on life. They
are prone to take care of themselves better than before. Get some inspiration and tips from them.
answers.yahoo.com, cancer survivor
answers.yahoo.com, terminal illness
bc.com/id/13072762/ns/health-aids,
aids survivors recall epidemic's early years - health - aids.
beatthemedicalodds.com, beat the
medical odds - beat the medical odds
blogtalkradio.com/rss/tag/waves-of-healing.rss
bobellal.com, bob ellal - the
chronicles of a four-time cancer survivor
btsurvivor.com, brain tumor
buccowich.blogspot.com/2010/06/three-year-brain-tumor-survivor.html,
susan's brain tumor journey: a three-year brain tumor survivor
burnsurvivor.com
cancerguide.org/attitude.html
catholic.org/diocese/diocese_story.php?id=22288,
hate disease that eats you inside.
clearwisdom.net
csn.cancer.org/node/165783
curehodgkins.com/hodgkins_experiences/stories.html
dailymail.co.uk/health/article-1172211/the-miracle-survivor-i-given-months-live--terminal-cancer-vanished.html,
the miracle survivor: i was given months to live.
discovermagazine.com/2007/sep/the-body-can-stave-off-terminal-cancer-sometimes
disease.1sicherheit.org/hodgkins-disease-survivor.html
diseases.1tanzen.org/hodgkins-disease-survivor.html
ebaumsworld.com/pictures/view/7287/
emediawire.com/releases/2006/11/prweb474998.php,
healthy survivor of lyme disease.
en.wikipedia.org/wiki/cancer_survivor
evenbetterhealth.com/als.asp
ezinearticles.com,
spontaneous-healing---confronting-and-beating-terminal-illness
facebook.com, terminal illness
feedagg.com/feed/11110457/beat-the-medical-odds
fightandbeatbreastcancer.info
harborside.com/home/e/equinox/welcome.htm,
survivor of psychiatry.
healingcancernaturally.com
heartdiseasesurvivors.com
ic-network.com/forum/archive/index.php/t-1201.html,
the difference between living with a chronic illness vs. terminal.
inspire.com/groups/lung-cancer-survivors/discussion/severe-throat-pain-from-radiation-survival-outlook-discouragement
jollyblogger.typepad.com/jollyblogger/2010/11/the-trouble-with-miracle-cures.html,
the trouble with miracle cures
karingerme.com/beat-the-medical-odds.html
landminesurvivors.org, landmine
survivors network (lsn).
love-and-light.net, why me? why
not? -- living with terminal illness, by kat hepler.
lungcancertips.com/lung-cancer/beat-the-medical-odds,
beat the medical odds; lung cancer tips
mamapedia.com/article/how-to-explain-a-terminal-illness-to-my-5-1-2-year-old-son
mcsurvivors.com, chronic fatigue.
meiresearch.org, not-for-profit
foundation dedicated to helping people with chronic diseases learn to manage
and improve.
naturalnews.com/028808_pancreatic_cancer_survivor.html
naturalnews.com/cancer_cure.html,
cancer cure news and articles
netdoor.com/~bill/prosurv/prosurv.html,
prozac survivor.
npr.org/blogs/mycancer/2006/10/what_do_you_say_to_someone_with_cancer.html,
what do you say to someone with cancer?
oralcancersupport.org
ppsr.com/sex_silicon_and_polio_survivors.html
survivinghuntingtons.blogspot.com
talkingaboutcancer.com/archives/category/coping
teamsurvivornw.org, northwest team
survivor northwest provides a broad range of fitness and health education
programs.
terminalillness.co.uk/understanding-grieving-process.html,
understanding the grieving process - terminal illness
todayabundance.com/christian-inspirational-what-you-survive-only-makes-you-stronger
uams.edu/today/2002/022102/survivor.htm,
heart disease survivor.
utsouthwestern.edu/utsw/cda/dept37389/files/248571.html,
hodgkin disease survivors face higher risk for stroke later in life.
warwickonline.com/view/full_story_news/11202317/article-cancer-survivor-says-internet-helped-save-life?instance=secondary_stories_left_column
wiit.com, treatment program for
female trauma survivors.
wiki.answers.com/q/how_many_people_are_diagnosed_with_a_terminal_illness_each_year_in_the_uk
wikicancer.org
wounded-healer.com, tales of a
wounded healer
wwns.com/~lara/survs.html,
survivors of abuse.
As-Is/ American Silicone Implant
Survivors, Inc.
1288 Cork Elm Dr.
Kirkwood, Mo 63122
314-821-0115
Burn Survivors Assn.
Ross Tilley Burn Center
Wellesley Hospital
160 Wellesley St. E.
Toronto, On M4y 1j3
416-791-0545
416-926-7021, info line.
Coalition of Silicone Survivors
Pob 129
Broomfield, Co 80038
303-469-8242
Heart Clubs
7320 Greenville Ave.
Dallas, Tx 75231
Support groups for heart attack
survivors.
National Assn. of Psychiatric
Survivors
Pob 618
Sioux Falls, Sd 57101
605-334-4067
Group that supports individual
self-help over the mental health system.
Phoenix Society for Burn Survivors
11 Rust Hill Rd.
Levittown, Pa 19056
215-946-2876
800-888-2876
info@phoenix-society.org
phoenix-society.org
Phoenix Project
Pob 84151
Seattle, Wa 98124
206-329-1371
Support organization for head
injury survivors.
Prozac Survivors Support Group
2212 Woodbourne Ave.
Louisville, Ky 40205
800-392-0640
502-459-2086
Trauma Survivors Anonymous
2022 15th Ave.
Columbus, Ga 31901
706-649-6500
Terminal Cancer Websites
aafp.org/afp/20000115/tips/1.html,
predicting life expectancy of terminal cancer patients.
aboutbetaglucan.com/terminal-cancer-survivor.asp
amazon.com/surviving-terminal-cancer-treatments-oncologist/dp/1577491165
asco.org, society of clinical
oncology.
betterwayhealth.com/cancer-survivor.asp,
from terminal cancer patient to terminal cancer survivor.
cancerbackup.org.uk/qas/livingwithcancerqas/advancedcancerqas/deathdying/related_faqs/qas/596,
my husband has terminal cancer and is coming home.
cancerbacup.org.uk/resourcessupport/advancedcancer/dyingwithcancer
cancergiggles.blog-city.com, a
practical guide to terminal cancer.
cancerthroughacarerseyes.jkwh.com
childrenswish.ca, 800 267 9474, for
children with terminal cancer.
darrendixon.supanet.com/terminalcancer.htm
discovermagazine.com/2007/sep/the-body-can-stave-off-terminal-cancer-sometimes,
the body can beat terminal cancer.
drday.com/believe.htm, recovering
from terminal cancer without drugs nor chemotherapy
findarticles.com, determining
prognosis for patients with terminal cancer.
freedomministries.com/eternity.html,
healed from terminal cancer.
geneticcancer.com
healthsystem.virginia.edu/uvahealth/hub_cancer/copeterm.cfm,
coping with terminal cancer.
momscancer.com, battle with metastatic
lung cancer.
msnbc.msn.com/id/6761326, ecstasy
to be tested on terminal cancer patients, fda approves study to see if drug
helps people face final days.
ncbi.nlm.nih.gov, terminal cancer.
duration and prediction of survival time.
news.bbc.co.uk/1/hi/health/6480985.stm,
'i got fit to fight terminal cancer'.
reiki.org/reikinews/karunacancer.htm,
karuna reiki helps terminal cancer patient.
rxmarihuana.com/terminal_cancer.htm
terminal-cancer.com
terminal-cancer.de
thehealthbook.info
Chapter 2. Final Care Guide
Dying
at Home by Choice
There is an ideology which
states that you know you’re gonna die soon.
Why bother staying in a hospital or a hospice. Go home where you can be around loved ones
and do what you want.
Many people with terminal
illnesses choose to live out their remaining days at home rather than at the
hospital connected to a bunch of tubes.
Many people with debilitating conditions also choose to remain at home
rather than go to a nursing home or a hospital.
It's more emotionally gratifying and much less expensive than health
care outside the home.
Even if you want to die at home,
sometimes it’s not possible to go home to die because the cost of professional
homecare is either too high and/ or relatives either physically can’t give you the
care you want or don’t want to. If it’s
a young family with kids running around who need care too, it would be a tough
situation.
When someone is dying at home,
the first impulse is to call emergency medical services. If it’s a sudden thing and there may be hope
for the elderly person, sure, go ahead, call the ambulance but if it’s a person
with a degenerative/ terminal disease who has come home to be cared for, stand
back for a few seconds and think what would he or she want done.
Get some homecare like an aide
or nurse to come in for a few hours a day.
Dying
at Home Websites
aarp.org
abcd-caring.org, americans for
better care of the dying.
agedcareaustralia.gov.au/internet/agedcare/publishing.nsf,
articles.
amazon.com, book called dying at
home: a family guide for caregiving.
amazon.com, book called homecare
for the dying by deborah whiting little.
amazon.com, book called
homecare: living with dying by elizabeth r. prichard.
amazon.com/tag/carefordying
atthecloseofday.com, end-of-life
guidebook.
barchester.com/palliative-care
cancerthroughacarerseyes.jkwh.com
carefordying.com
carefordying.org
caregivingathome.com
cfpc.ca, palliative care at
home.
channel4.com/health/microsites/0-9/4health/body/dad_terminalcare.html
dignityindying.org.uk
dying. dead website
dyingwell.com
dyingwell.org
ec-online.net/library/grief-loss/athome.html,
dying at home - a precious gift. by lorraine kember.
northcumbria.nhs.uk/palliativecare/clinical/lastdaysoflife/01.php
enotes.com/terminal-illness-article/dying-home-benefits-terminally-ill
fampra.oxfordjournals.org/cgi/content/full/16/6/573,
is care of the dying improving?
globalideasbank.org/natdeath,
the natural death handbook.
growthhouse.org, guide to death,
dying, grief, bereavement.
growthhouse.org/books/apple.htm,
at home with terminal illness: a family guide to hospice in the home.
healthboards.com, home hospice
care, death and dying.
howtocare.com/home_care.htm
journeyhome.com/passages,
provides emotional and spiritual support for people who are dying, grieving, or
providing care for a loved one who is dying.
kenniscentrum-ouderen.nl/smartsite.dws?id=104083,
palliative care and dying at home.
lindabergh.org, stories of
dying, homecare.
mariecurie.org.uk/forhealthcareprofessionals/supportingadyingpatientathome.htm
mayoclinic.com/health/cancer/ca00048,
end of life: caring for your dying loved one.
medicaring.org, palliative care
policy center.
naturaldeath.org.uk, non-profit
publisher on dying at home, death care and preparing funerals.
nlm.nih.gov/medlineplus/endoflifeissues.html
osfhomecare.org/hospindex.html
palliative.org
palliative.org/pc/clinicalinfo/nursesnotes/homedeath.html
patient.co.uk/showdoc/40000764,
care of the dying patient at home requires a team approach.
pbs.org/onourownterms
pbs.org/wnet/onourownterms, on
our own terms: moyers on dying.
promotingexcellence.org,
organization dedicated to improving healthcare for dying persons.
pubmedcentral.nih.gov, look up
“at home for palliative care.”
qualityoflifecare.com
rch.org.au/rch_palliative/prof/index.cfm?doc_id=1679,
child dying at home.
respitematch.com, find a home
health aide or agency or caregiver.
scie.org.uk/publications/briefings/briefing10/index.asp,
terminal care in care homes.
sharethecare.org, how to
organize a group to care for someone who is seriously ill.
suite101.com/welcome.cfm/hospice
terminalcare.com
whosedeathisitanyway.com, end of
life decision making and living wills.
yayoi-group.com/kaigo3e.html,
terminal care at home.
End
of Life Websites
ewtn.com/morals/end-of-life.htm
aafp.org/afp/20050201/515.html,
cultural diversity at the end of life.
aarp.org/families/end_life, end
of life, wills and estate planning.
abcdcaring.org, americans for
better care of the dying.
apa.org/pi/eol/homepage.html,
end-of-life care issues.
atthecloseofday.com, a pbs
documentary about end of life decision making and living wills.
baptiststandard.com/2000/8_14/pages/matters.html,
end-of-life issues should be discussed.
betterwayhealth.com
bioethics.od.nih.gov/endoflife.html
cdc.gov/aging/eol.htm
compassionandchoices.org, an
organization dedicated to care of terminally ill patients, including those
seeking a hastened death.
death-dying.com
depts.washington.edu/bioethx/topics/eol.html,
discusses the experience of caring for dying patients, including how to promote
a good death for the patient.
dyingwell.org
ec-online.net/knowledge/articles/endoflifeedinberg.html
elca.org/what-we-believe/social-issues/messages/end-of-life-decisions.aspx,
end of life decisions -
evangelical lutheran church in america.
fairbanksendoflife.org,
fairbanks, alaska, helping our community learn about death, prepare for death
and cope with end of life issues.
familydoctor.org/online/famdocen/home/seniors/endoflife/endoflife.html
globalideasbank.org/befaft/b&a13.html,
a guide for patients and carers facing terminal illness at home.
griefnet.org
growthhouse.org, information
about end-of-life care, resources for death and dying.
hope4health.org
hospicenet.org
lastacts.org
lastacts.org
medicinenet.com, look up
end-of-life issues.
medscape.com/viewarticle/496908,
discussing end-of-life issues with icd patients.
nlm.nih.gov/medlineplus/endoflifeissues.html
npr.org/programs/death/
palliative.info
patient.co.uk
research.ua.edu/archive2004/legacies.html,
create family legacies to help deal with illness, make things for people you to
remember you by.
thehealthcareblog.com
thelightbeyond.com
txcatholic.org/teaching-on-end-of-life.asp
txpec.org, texas partnership for
end-of-life care.
usa.gov/topics/seniors/endoflife.shtml
web.utk.edu/~jhardwig/spiritua.htm,
spiritual issues at the end of life.
whosedeathisitanyway.com
winthink.net, adult education,
end of life planning.
y-me.org/information/metastatic_breast_cancer/end_of_life_issues.php
dickinson.edu/endoflife/glossary.html,
end-of-life options.
practicalbioethics.org, center
for practical bioethics; offers a practical guide for making one's medical
wishes known when one is seriously ill or at the end of life.
End
of Life Organizations
growthhouse.org,
Growth House, Inc, international directory of the best of the net sites related
to terminal illness, hospice and home care, suicide, death with dignity and
related topics
growthhouse.org,
Growth House, Inc.
medicaring.org,
Palliative Care Policy Center.
abcd-caring.org,
Americans For Better Care Of The Dying.
ethosconsult.com,
Ethos Consulting Group, L.L.C.
aahpm.org, American
Academy Of Hospice And Palliative Medicine.
americanhospice.org,
American Hospice Foundation.
anzspm.org.au,
Australian and New Zealand Society of Palliative Medicine.
chpca.net, Canadian
Palliative Care Association.
capcmssm.org, Center
to Advance Palliative Care.
growthhouse.org/dartmouth,
Dartmouth-Hitchcock Palliative Care.
dyingwell.org,
DyingWell.org.
epec.net, EPEC
Project (Education for Physicians on End-of-life Care).
eperc.mcw.edu, EPERC
(End of Life Physician Education Resource Center).
growthhouse.org/pcnet,
Greater San Mateo Palliative Care Network
gundluth.org/eolprograms,
Gundersen Lutheran Medical Foundation.
hospicefoundation.org,
Hospice Foundation Of America.
hospicecare.com,
International Association for Hospice and Palliative Care.
growthhouse.org/palliative,
Kaiser Permanente Palliative Care Program Toolkit.
lastacts.org, Last
Acts.
endoflifecommission.org,
Massachusetts Commission on End of Life Care.
mettainstitute.org,
Metta Institute.
nhpco.org, National
Hospice And Palliative Care Organization
nhwg.org, National
Hospice Work Group: Access and Values Project.
pallcare.asn.au,
Palliative Care Council Of South Australia.
painlaw.org, Project
on Palliative Care Law of the Bazelon Center for Mental Health Law.
promotingexcellence.org,
Promoting Excellence in End-of-Life Care.
footprintsatglennon.org,
SSM Cardinal Glennon Childrens Hospital Footprints.
secpal.com, Sociedad
Española de Cuidados Paliativos SECPAL (Spain).
pallcare.org,
University Of Ottawa Institute Of Palliative Care.
mdanderson.org/departments/CCSCC,
University of Texas, M. D. Anderson Cancer Center.
va.gov/OAA/flp/default.asp,
U. S. Department of Veterans Affairs, Office of Academic Affiliations.
growthhouse.org/witfilmproject/index.html,
Wit Film Project.
zenhospice.org, Zen
Hospice Project.
Adult
Children, Death of Parents Websites
findingdulcinea.com/news/health/2009/march/parents--death-may-help-some-make-life-changes-.html
amazon.com, when parents die: a
guide for adults by edward myers.
articles.moneycentral.msn.com/collegeandfamily/caringforparents/whenyourparentsdiebroke.aspx,
when your parents die broke.
ehow.com, how to deal with a
parent's death.
kaiserpapers.org/grieve.html,
tragedy strikes a blended family after the parents die suddenly.
loveyourparentstodeath.com, a
site for elder care givers.
Chapter 3. Terminal Care Guide
Terminal
Illness Websites/ Terminal Care Websites
Most people with a serious
illness say they want to die at home with family, friends and pets, however,
caring for someone at home during the final months can be hard. Other choices are the hospital, a nursing
home or hospice. You can hire homecare
help too.
Try BF789 or #362.17 at the
library.
abcdcaring.org, americans for
better care of the dying.
allsands.com/health/advice/copingwith
term_yko_gn.htm
armchairadvice.co.uk/bereavement/howto
baylor.edu/~charles_kemp/terminal_illness/family.htm,
terminal illness may also have a tremendous impact on the roles people play in
their family.
bbc.co.uk/relationships/coping_with_grief/terminalillness_index.shtml
mayoclinic.com/health/grief/ca00041, terminal illness: interacting with a
terminally ill loved one
bearspace.baylor.edu/charles_kemp/www/terminal
_illness/children.htm
asbestosresource.com/grief/phases.html
essortment.com/all/terminalillness_retf.htm
thelightbeyond.com/death_and_dying_coping_with_terminal_illness.html
shopping.yahoo.com/p:fearnoevil:onemandealswithterminalillness/:3003778072, book.
betterwayhealth.com
blogmarks.net/marks/tag/incurable,
diagnosis
blogs.glam.com/glamspirit/2007/07/31/terminal-illness-cancer-and-devastating-diagnosis/
canadianchristianity.com/cgi-bin/na.cgi?film/terminal,
canadian terminal-illness films
cancer.org/docroot/cri/content/cri_2_6x_children_with_cancer_in_the_family_dealing_with_a_parents_terminal_illness,
helping children when a family member has cancer
canceradventures.org
castlebar.ie/board/2006/may06/128153.htm,
longest survivor of a terminal illness?
channel4.com/health/microsites/09/4health/body/dad_terminalcare.html
clearharmony.net/articles/200504/26148.html, my
recovery from a terminal illness: a cancer
survivor's story.
conmon.com/slideshow/rememberme,
davidcole.net/asbestos/grief/phases.html
ifishoulddie.co.uk/terminal-life-threatening-illness-c40.html
en.wikipedia.org/wiki/uniform_rights_of_the_ter minally_ill_act
death-dying.com
ditrsolutions.com, terminal illness success
stories; cancer survivors stories. reflections on living with terminal illness.
aids survivor stories.
dying.
dyingtogetwell.com
dyingwell.org
ehow.com, how to cope with a
parent's terminal illness.
emaxhealth.com/1/27/31729/christian-childrens-book-helps-dealing-terminal-illness.html
healthsystem.virginia.edu/uvahealth/hub_cancer/copeterm.cfm
en.wikipedia.org/wiki/rights_of_the_terminally_ill
_act_1995
en.wikipedia.org/wiki/rights_of_the_terminally_ill_act,
addressing issues such as living wills and euthanasia.
en.wikipedia.org/wiki/rights_of_the_terminally_ill_act_australia
en.wikipedia.org/wiki/terminal_illness
en.wikipedia.org/wiki/uniform_rights_of_the_terminally_ill_act
friscoisd.org/students/hoperising/terminalillness.pdf,
terminal illness and the dying process. aids care at home: a guide for
caregivers.
globalideasbank.org/befaft/b&a13.html,
a guide for patients and carers facing terminal illness at home.
griefhaven.org
griefnet.org
growthhouse.org, book called at
home with terminal illness: a family guide to hospice in the home.
healthclubsfitness.com/diagnosis-incurable
healthinforum.org/dealing-with-terminal-illness-list-60944-1.html
homepage.villanova.edu/donald.burt/hospice/38.htm
hope4health.org
inheritanceofhope.org,
scholarships available for children of the terminally ill
inheritanceofhope.org,
scholarships available for children of the terminally ill.
clearwisdom.net
irhh.org, the iain rennie
hospice at home, the chilterns region of hertfordshire.
islamset.org/bioethics/aids1/termin.html,
islamset aids as terminal illness: medical and islamic opinion and the hanafi
school of islamic law holds the view that terminal illness affects competence
and restricts the behaviour of the victim without affecting the rights of
others around him.
jacksonville.com/tu-online/stories/020
308/met_243172546.shtml
canceradventures.org
janisvallely.com/new.htm,
book.vivekan.org, the personal account of how a gay couple faced the challenges
of two life-threatening illnesses: first a brain hemorrhage and then the
diagnosis of glioblastoma multiforme.
jewishcare.org/what-we-do/family-carers-service/family-carers-terminal-illness/
jvleahyfh.com/gi.htm, leahy
funeral home, death in the home: today more people with a terminal illness
remain at home.
lastacts.org
love-and-light.net, living with terminal
illness, by kat hepler.
love-and-light.net/chapter10.asp
lsds.com/death/docwalker-sunset_and_moonrise.html,
reflections on living with terminal illness.
massgeneral.org/children/adolescenthealth/articles/aa_terminal_illness.aspx
medicaring.org, palliative care
policy center.
medscape.com/viewarticle/535448?rss, management
of psychosocial issues in terminal illness.
mesolink.org/mesothelioma-hope/survivor-1.html
nlm.nih.gov/medlineplus/endoflifeissues.html
palliative.info/resource_material/home_death.doc
patient.co.uk/showdoc/40000764,
terminal care
pbs.org/wgbh/nova/transcripts/2807second.html,
how's it been to be in a relationship when half of the relationship has a
terminal illness.
remember me: a multimedia
documentary about one family's struggle
research.ua.edu/archive2004/legacies.html,
create family legacies to help deal with illness, make things for people you to
remember you by.
resource4mesothelioma.com/topics/mesotheliomasurvivorstories.html,
800-518-5103.
risingsuncenter.com
rosecherryshome.ca, mother of
child who passed away from a terminal illness.
somethingtoshare.com/gateways/illness.shtm,
dealing with terminal illness.
spiritualcompetency.com/dsm4/lesson2_5.asp
teachervision.fen.com/death-and-dying/loss/6892.html
caonline.amcancersoc.org/cgi/content/full/56/4/197
terminal-cancer.net
terminalillness.co.uk
thecalmzone.net/whats_doing_your_head_in/terminalillness.aspx
thelightbeyond.com/death_and_dying_coping_with_terminal_illness.html
thestarsstillshine.com, the
stars still shine: an afterlife journey, grief support, terminal
unumprovident.com/financialcounseling/accesstohelp.htm,
survivor counseling, benefits center at 800-858-6843.
webraydian.com/articles/article474-diagnosis_incurable.html
wrongdiagnosis.com/medical/incurable.htm
cartoonstock.com/directory/i/incurable.asp
wendyharpham.com/survivor.htm
willysteiger.com/healthcare-cost-of-terminal-illness.htm
als-options.com/eric-is-winning.html, beating a terminal illness with
nutrition, avoiding toxins and common sense.
wma.net/e/policy/i2.htm, world
medical association declaration on terminal illness help them deal with the
anxiety, fear and grief associated with terminal illness.
zarcrom.com/users/alzheimers/e01.html,
at home with terminal illness.
Terminal
Cancer Websites
aafp.org/afp/20000115/tips/1.html,
predicting life expectancy of terminal cancer patients.
aboutbetaglucan.com/terminal-cancer-survivor.asp
amazon.com/surviving-terminal-cancer-treatments-oncologist/dp/1577491165
asco.org, society of clinical
oncology.
betterwayhealth.com/cancer-survivor.asp,
from terminal cancer patient to terminal cancer survivor.
cancerbackup.org.uk/qas/livingwithcancerqas/advancedcancerqas/deathdying/related_faqs/qas/596,
my husband has terminal cancer and is coming home.
cancerbacup.org.uk/resourcessupport/advancedcancer/dyingwithcancer
cancergiggles.blog-city.com, a
practical guide to terminal cancer.
cancerthroughacarerseyes.jkwh.com
childrenswish.ca, 800 267 9474,
for children with terminal cancer.
darrendixon.supanet.com/terminalcancer.htm
discovermagazine.com/2007/sep/the-body-can-stave-off-terminal-cancer-sometimes,
the body can beat terminal cancer.
drday.com/believe.htm,
recovering from terminal cancer without drugs nor chemotherapy
findarticles.com, determining
prognosis for patients with terminal cancer.
freedomministries.com/eternity.html,
healed from terminal cancer.
geneticcancer.com
healthsystem.virginia.edu/uvahealth/hub_cancer/copeterm.cfm,
coping with terminal cancer.
momscancer.com, battle with
metastatic lung cancer.
msnbc.msn.com/id/6761326,
ecstasy to be tested on terminal cancer patients, fda approves study to see if
drug helps people face final days.
ncbi.nlm.nih.gov, terminal
cancer. duration and prediction of survival time.
news.bbc.co.uk/1/hi/health/6480985.stm,
'i got fit to fight terminal cancer'.
reiki.org/reikinews/karunacancer.htm,
karuna reiki helps terminal cancer patient.
rxmarihuana.com/terminal_cancer.htm
terminal-cancer.com
terminal-cancer.de
thehealthbook.info
Compassionate
Use of Drugs for Terminal Patients
Through a program called
Compassionate Use, the FDA routinely allows terminal patients access to new,
unapproved drugs and off-label drugs that have been approved for other
purposes.
A patient must be advised of
possible known risks and must give informed consent in writing to receive such
treatment. For the drug companies, these
situations often provide more knowledge about the new drugs being tested for
the many diseases out there without a cure.
fda.gov
Chapter 4. Hospice Care/ Palliative Care
Hospice
Care/ Palliative Care
Hospices are places where dying
people go to live together for the remaining few months (or days) of their
lives with dignity in an atmosphere of supportive patients like themselves and
caregivers.
The philosophy is that dying is
a part of life and shouldn't be shunted into the background like most hospitals
and nursing homes treat it.
A hospice offers care in a home
or home-like setting for people who are dying.
They’re not trying to cure them, just focusing on making them
comfortable for the rest of their lives, minimizing pain, offering emotional
support and quality of life for the time remaining.
Whereas conventional
hospital-based care focuses on trying to cure the disease, hospice care stops
this aggressive approach and focuses on pain relief and living peacefully with
one’s self for your remaining days.
The patient’s family is included
in the care, receiving education and support during the final days and for a
time after the death of a loved one. A
lot of hospices have bereavement support groups for anyone who wants to
attend. Most hospice patients have
cancer, AIDS or heart disease.
Hospice care is an upfront
approach to the inevitable. Hospice care
may be done at home, hospice facility, hospital or nursing home. They're not trying to cure the patient, just
make death more bearable.
The hospice concept combines
medical, psychological and spiritual factors to make life as comfortable as
possible for the patients. It was
imported from England during the early seventies and has come a long way since
then.
It has come into vogue with the
proliferation of the AIDS epidemic, however, most hospice patients are over 65
and have some form of terminal illness like cancer.
Some private, for profit
hospitals and nursing homes are against hospices because they take away from
their business so you'll get some animosity to them within the medical
profession but overall, the prognosis is good.
There are special hospices for
children, AIDS patients, older people, demographics like Jewish, particular
diseases, etc.
They also help the other members
of the family deal with it and grieve properly after the death through
bereavement programs and support groups.
Legally speaking, nobody can
force anybody else into a hospice. The
decision has to be made by the individual.
With children, parents must make the decision on their behalf.
Anybody going to a hospice
should get their final affairs in order, draw up the usual papers like a will,
advance directive, living will and a durable power of attorney (health care proxy).
Most hospice care is covered at
least partially by most health insurance programs if the physician recommends
it as well as by Medicaid and Medicare.
Overall, hospices are cheaper
than hospitals and nursing homes although an emerging trend is to care for the
terminal patient at home as already discussed.
There is a hospice organization
in almost every state. Contact the
National Hospice Organization for the current address and for more general
information.
Palliative care is the term used
to denote the medical team at the hospital who oversee dying patients made up
of doctors, nurses, aides, psychiatrists, social workers, death specialists,
etc.
They try to heal people, keep
them alive then when all else fails, go for comfort, pain control.
Hospice care is covered under
Medicare Part a (Hospital Insurance).
You're eligible for Medicare hospice benefits when:
You are eligible for Medicare
Part a and
Your doctor and the hospice
director certify that you are terminally ill and probably have less than six
moths to live: and
You sign a statement choosing
hospice care instead of routine Medicare covered benefits for your terminal
illness; and
You receive care from a
Medicare-approved hospice program. Most
people who go to a hospice have it paid for by Medicare but the Catch 22 is
that you have to be certified to have less than six months left by a doctor and
the hospice medical director.
People live many years with a
terminal, debilitating illness and it's difficult for doctors to judge when
someone has less than six months to go so because they don't want to look like
fools, they refrain from certifying too many people as having only six months
left unless they're reasonably sure.
Hospice
Organizations
Caring Connections
(800) 658-8898
Multilingual Line: (877)
658-8896
caringinfo@nhpco.org
caringinfo.org/
Information on palliative care
and end of life issues.
Center to Advance Palliative
Care
The Center to Advance Palliative
Care
1255 Fifth Avenue
#C-2
NYC 10029
(212) 201-2670
capc.org
Provides health care
professionals with the tools to start palliative care programs.
Hospice and Palliative Care
Association of New York State
21 Aviation Road
#9
Albany, NY 12205
(518) 446-1483
Fax: (518) 446-1484
hpcanys.org
National Hospice and Palliative
Care Organization
1700 Diagonal Road
#625
Alexandria, Virginia 22314
(703) 837-1500
Fax: (703) 837-1233
(800) 568-8898
nhpco.org
Hospice
Websites/ Palliative Care Websites
Stephen Levine and Elisabeth
Kubler-Ross are the traditional leaders in this field.
For books about terminal care
and hospice care, refer to #362.11 to #362.196 or R726.8 at the library. Books about dying at home are at #362.196 or
R726 at the library.
hospicenet.org
hospicepatients.org, hospice
patient alliance.
hospicefoundation.org, hospice
foundation of america.
hospicenet.org
209.141.207.182, national
hospice and palliative care organization database.
aahpm.org, american academy of
hospice and palliative medicine.
abcd-caring.com, better care of
the dying.
abcd-caring.org, americans for
better care of the dying, washington, dc.
acor.org, click on “mailing
lists” then “cancer-hospice.”
adec.org, association for death
education and counseling.
agingwithdignity.org/5wishes.html,
express how you want to be treated if you are seriously ill and unable to speak
for yourself.
americanhospice.org
angelsinwaitinghospice.com, fort
worth hospice, texas.
autumnjourneyhospice.com, autumn
journey hospice of north texas.
biomedcentral.com/bmcpalliatcare/
calhospice.org, california
hospice and palliative care association.
california.providence.org/trinitycare-hospice/
capc.org, center to advance
palliative care sccsweb.com, sccs home health and hospice, derby ks.
capc.org, palliative care
training
capitalhospice.org
carecenter.org, midwest palliative
and hospice care center
caringinfo.org, national
consumer and community engagement initiative to improve care at the end of
life.
caringinfo.org, national hospice
foundation
castlegar.com/hospice
teleport.com/~hospice/links.htm
chionline.org, 800-24child,
children’s hospice.
choices.org
columbiahealthnet.org/palliative_care.htm,
hudson, ny.
dartmouth.edu/~library/biomed/guides/research/palliative.html,
palliative and end-of-life care information resources
deathreference.com, encyclopedia
of death and dying articles.
dianaspencer.com/causes/palliative.asp
dickinson.edu/endoflife/glossary.html,
end-of-life options.
dir.yahoo.com/health/medicine/palliative_care/
drhuhc.org/services/palliative,
detroit receiving hospital palliative care service.
eldercare.gov/eldercare/public/resources/fact_sheets/hospice_care_pf.asp
en.wikipedia.org/wiki/palliative_care
endoflifecare.tripod.com
epec.net, education in
palliative and end of life care.
getpalliativecare.org,
information about palliative care, how to get palliative care
gov.ns.ca/health/reports,
expected death at home.
griefnet.org/resources/hospice_sponsored.html,
bereavement and hospice support.
griefworksbc.com, information
and grief support resources
growthhouse.org
growthhouse.org
growthhouse.org
growthhouse.org, an
international gateway to resources for life-threatening illness and end of life
care
growthhouse.org, information
about end-of-life care; resources for death and dying, hospice and palliative
care, grief and related topics.
growthhouse.org, resources for
life threatening illnesses and end of life care.
growthhouse.org/pain.html
growthhouse.org/pain.html, pain
management, pain control for terminal illness, with links to hospice,
palliative medicine and related resources.
growthhouse.org/palliat.html
growthhouse.org/radio.html
gwu.edu/~cicd, center to improve
the care of the dying.
hindshospice.org, fresno,
california.
hospice programs across the
country.
hospiceaid.com
hospiceandhomecarealexander.org,
hospice and homecare of alexander county, taylorsville, nc.
hospicebuffalo.com, buffalo, ny.
hospicecare.com, 866-374-2472,
936-321-9846.
hospicecare.com, international
assn. for hospice and palliative care
hospicecare.com, international
association for hospice and palliative care.
hospicecare.com, international
association for hospice and palliative care
hospicecareinc.com, madison and
janesville-based hospice care center, wisconsin.
hospice-cares.com
hospicecares.net
hospicechoices.com
hospicedirectory.org, provides
facility to find hospices anywhere in usa and canada using a state, city, zip
code search.
hospicedirectory.org/cm/about/state_hospice
hospicedirectory.org
hospicefoundation.org
hospicefoundation.org
hospicefoundation.org
hospicefoundation.org, hospice
foundation of america; a nonprofit organization
hospicehalifax.com, nova scotia,
canada.
hospiceinfo.org. 800-338-8619
hospiceinformation.info
hospicenet.org
hospicenet.org
hospiceofmetrodenver.org
hospiceofmontgomery.org,
alabama.
hospicepatients.org
hospicepatients.org
hospicepatients.org
hospicepatients.org, consumer
advocacy resource center for hospice patients, families, caregivers.
hospicepca.org, central ny,
liverpool.
hospice-spc-council.org.uk
hospiceworld.org, 800-331-1620.
ippcweb.org, initiative for
pediatric palliative care.
ippcweb.org, the initiative for
pediatric palliative care.
ispub.com/journals/ijeicm/vol3n2/ethics.htm,
ethical consideration in end-of-life medicine.
lastacts.org
mayoclinic.com/health/hospice-care
suite101.com/welcome.cfm/hospice hospicenet.org
medscape.com, national
guidelines for quality palliative care.
members.aol.com/hospicenet
mercycare.org/services/hospice/support.aspx,
grief support groups. hospicenet.org/html/medicare.html
meritcare.com/specialties/more/palliative/index.aspx,
fargo, nd.
micard.com, hospice care
mol.com/cancare/pallidef.htm
mol.com/cancare/pcfaq.htm
my.clevelandclinic.org/services/hospice/hic_hospice_of_cleveland_clinic.aspx
nahc.org, national assn. for
home care and hospice
nahc.org, national association
for home care and hospice.
nahc.org/haa, assn. for
homecare.
nahc.org/tango/hclocator/locator.html,
homecare, hospice locator.
ncpc.org.uk, the national
council for palliative care.
newlifestyles.com, 800-820-3013,
information on retirement communities, assisted living, nursing homes, home and
hospice care.
nho.org, 800-658-8898, hospice
organization.
nhpco.com, national hospice and
palliative care organization
nhpco.org, 800-658-8898, the
national hospice and palliative care organization.
nhpco.org, national hospice and
pallative care organization.
nhpco.org, national hospice and
palliative care organization.
npcrc.org, national palliative
care research center.
nworcc.on.ca/pcnn/chart/palliative_def.htm
ochin.on.ca/pallcare
osfhomecare.org/hospindex.html
pain.com
palliative.org
palliativecare.msu.edu
palliativecare.org
palliativecarenursing.net
pallmed.net
partnershipforcaring.org,
800-989-9455, end of life issues such as advance directives.
partnershipforcaring.org,
national hospice and palliative care organization.
pnpco.com, hospice.
psarising.com/medicalpike/hospicepienta.htm,
hospice plus treatment to improve end-of-life care.
rozeroomhospice.org
spcare.org, spiritual care
program.
stoppain.org
thehomecaredirectory.com, lists
hospices and homecare agencies.
thehospice.org, an educational
resource for
virtualhospice.ca
vistacare.com, palliative care
from vistacare.
volunteerinfo.org/hospice.htm
webstercomfortcare.org, webster
comfort care home, webster, ny.
who.int/cancer/palliative/en/
wings.buffalo.edu/faculty/research/bioethics/hospice.html
wwdc.com/death/iwg/children.html
zenhospice.org
Hospice
Resources
Choice in Dying National Office
1035 30th St. NW
Washington, DC 20007
(800) 989-WILL
(202) 338-9790
Fax: (202) 338-0242
choices.org
Foundation for Hospice and
Homecare
320 A St. Ne
Washington, Dc 20002
202-547-6586
Help people set up home and
hospice care. Educational material as
well.
Heritage Home Health/ Hospice
800-244-5421 Nh only.
Hospice Assn. of America
Hospice Link Referral Service
228 7th St. Se
Washington, Dc 20003
202-546-4759
Fax: 202-547-6638
Fax: 202-547-3540
nahc.org
nahc.org/haa/home.html
hospice-america.org
Organization for professionals
and hospice workers. General information
about hospice to consumers.
Hospice Care Newsletter
3400 70th Ave. N.
Pinellas, Fl 33702
813-521-1199
Hospice Education Institute
190 Westbrook Rd.
Essex, Ct 06426
800-331-1620
860-767-1620
Fax: 860-767-2746
hospiceall@aol.com
hospiceworld.org
General information and
materials about hospice care. Makes
referrals to local programs.
Hospice and Pallative Nurses
Assn.
Medical Center E.
#375
211 N. Whitfield St.
Pittsburgh, Pa 15206
412-361-2470
hpna.org
Hospice Education Institute
190 Westbrook Rd.
Essex, CT 06426
(800) 331-1620
Hospice Education
800-544-2213
Hospice Foundation of America/
HFA
2001 S Street, NW
#300
Washington, DC 20009
800-854-3402
202-638-5419
Fax: 202-638-5312
hospicefoundation.org
Range of programs on hospice
care, a hospice locator service and educational programs.
Hospice Institute for Education
Training and Research
765 Prospect St.
New Haven, Ct 06511
203-787-5871
Training for hospice workers and
families of terminally ill patients.
Hospice Net
401 Bowling Avenue
#51
Nashville, TN 37205-5 124
hospicenet.org
Articles regarding end-of-life
issues. Answer questions via email.
hospiceworld.org
800-331-1620
hospiceall@aol.com
Hospice education institute.
Joint Commission on
Accreditation of
Healthcare Organizations
One Renaissance Boulevard
Oakbrook Terrace, IL 60181
630-792-5000
Fax: 630-792-5005
jcaho.org
Awards accreditation to more
than 18,000
health care organizations in the
United
States, including hospice
agencies. Provides
information about accreditation
status.
Medicare Bureau of Eligibility,
Reimbursement and Coverage
Health Care Financing Administration
7500 Security Blvd.
Baltimore, Md 21244-1850
800-Medicare
877-486-2048, Tdd
medicare.gov
Free booklet Medicare Hospice
Benefits.
National Assn. for The
Terminally Ill
Pob 368
Shelbyville, Ky 40066
888-847-0390
terminallyill.org
Helps terminally ill people and
their families.
National Consumers League
815 15th St. Nw
#928
Washington, Dc 20005
800-639-8140
202-639-8140
nclnet.org
Free booklet, a Consumer Guide
to Hospice Care.
National Hospice and Palliative
Care Organization/ NHPCO
1700 Diagonal Road
#300
Arlington, VA 22314
800-658-8898
703-243-5900
703-837-1500
Fax: 703-525-5762
info@nhpco.org
nhpco.org
nho.org
Information about hospice
programs in local areas.
National Hospice Organization
1901 N. Moore St.
#901
Arlington, Va 22209
800-658-8898
703-243-5900
nho.org
Care, education and referrals.
National Institute for Jewish
Hospice
8723 Alden Dr.
#219
Los Angeles, Ca 90048
800-446-4448
310-854-3036
Support organization for
terminally ill Jewish people.
Purdue Frederick Co.
100 Connecticut Ave.
Norwalk, Ct 06856
203-853-0123
Free booklet, Homecare of The
Hospice Patient.
State
Hospice Agencies
Alabama
334-213-7944
Alaska
907-352-4800
907-463-3113
Arizona
602-704-0210
Arkansas
501-713-7385
California
916-441-3770
Colorado
303-449-1142
Connecticut
860-233-2222
Delaware
302-478-5707
Florida
800-838-9800
850-878-2632
Georgia
770-924-6073
Hawaii
808-924-9255
Idaho
208-726-8464
Illinois
713-324-8844
Indiana
317-338-4049
Iowa
515-243-1040
Kansas
316-263-6380
Kentucky
888-322-7317
Louisiana
504-945-2414
Maine
207-626-0651
Maryland
410-729-4571
Massachusetts
781-255-7077
Michigan
517-886-6667
Minnesota
651-659-0423
Mississippi
601-366-9881
Missouri
662-232-7891
Montana
406-247-3300
Nebraska
308-687-6065
Nevada
702-796-5531
New Hampshire
603-228-9870
New Jersey
908-233-0060
New Mexico
512-454-1247
800-580-9270
New York
518-446-1483
North Carolina
919-878-1717
North Dakota
701-774-7430
Ohio
614-274-9513
Oklahoma
800-356-0622
918-835-6742
Oregon
503-228-2104
Pennsylvania
717-230-9993
Puerto Rico
787-897-0503
Rhode Island
401-444-9070
South Carolina
919-878-1717
South Dakota
605-668-8327
Tennessee
615-228-1128
800-638-6411
Texas
512-454-1247
800-580-9270
Utah
801-321-5661
Vermont
802-229-0579
Virginia
540-686-6448
Washington
509-456-0438
West Virginia
304-529-4217
Wisconsin
608-233-7166
Wyoming
307-362-1990
Children’s
Hospice Websites
rosecherryshome.ca, a children’s
hospice.
chionline.org, 800-242-4453,
children's hospice.
francishouse.org.uk, francis
house children's hospice caring for children with a short life expectancy.
bearcottage.chw.edu.au,
Bear Cottage, NSW
canuckplace.org,
Canuck Place Children's Hospice.
sick
children in BC Canada.
claire-house.org.uk,
Claire House Children's Hospice.
UK
derianhouse.co.uk,
Derian House Children's
Hospice.
UK
francishouse.org.uk,
Francis House Children's Hospice.
UK
georgemark.org,
George Mark Children's House.
California
martinhouse.org.uk,
Martin House Hospice
England
naomihouse.org.uk,
Naomi House.
UK
richardhouse.org.uk,
Richard House.
UK
rogershouse.ca,
Roger's House.
Canada
vsk.org.au,
Very Special Kids.
Australian
children's hospice
Children's Hospice International
700 Princess St.
Alexandria, Va 22314
800-242-4453
703-684-0330
chionline.org
Chapter
5. Grief/ Bereavement
Deal With Grief
A part of getting over it is to
know you never will.
To every thing there is a
season,
And a time to every purpose
under heaven.
A time to be born and a time to
die;
Ecclesiastes 3:1-8
To heal is to
become whole.
To become whole is
to grieve.
To grieve is to
let go.
To let go is to be
free.
From TV show Women of Wisdom
Grief has its own schedule. Until you honor it enough to let go, you'll
be traveling at half mast with your anchor down.
Death is the most significant
taboo in our society. People don't want
to deal with it before it happens or even when it happens. No matter how much you expect it, even with
the loss of an older person, it still leaves you empty and numb for
awhile.
A good song in pop culture
relating to death and grief is The Living Years by Michael Rutherford where he
says something like he wishes he could have told his father all those things he
felt like how he loved him and wished he had been there when he had his first
baby.
The operative word in dealing
with somebody dying is victim. Don't let
them nor you become a victim. Let them
die with dignity then after it's over, don't fall to pieces and get
helpless.
Sure, sit around for awhile,
mope, have your little cry but think what would the decedent have wanted you to
do, get depressed or go on and honor his or her memory by becoming the best
person you can be.
You can't avoid suffering,
feeling down and grieving for awhile but it shouldn’t affect who you are and
what you do to stay inspired about your life day by day.
There are many different ways to
grieve. Survivors may experience intense
emotions and intrusive thoughts or they may not. Some people find their identity fundamentally
changed, no longer the parent, spouse or loved person they once were.
Some people sometimes
underestimate the gravity of their loss until months or years later. They seem
to be doing well only to find themselves feeling sad at times like
anniversaries, birthdays and holidays. Deal
with it the best way you can.
A high percentage of elderly
people die within a year of their spouse.
Bereaved people should evaluate themselves for depression for awhile
following a loved one’s death and get some help if need be.
Try to resist the temptation to
make abrupt decisions like quit your job, sell the house, move in with family,
etc. Wait. Let yourself feel the full range of emotions
that come with profound loss before you do anything rash.
While privacy is also important
to healing, don’t alienate yourself from the world. Stay active and inspired about life as the
decedent would have surely wanted you to do.
Talk to a pastor or, counselor
or a friend about how you feel. Join a
support group to learn from those who have been down the road before you.
The negative thoughts may always
be there but I've chosen not to look at death as a loss, just a part of the
life cycle, death of the body but not the soul.
I've chosen to believe that the soul is somewhere else.
Where, I don't know, Heaven or
the other side somewhere. I'll unite
with my friends and relatives when I get there.
Other than that, I don't think about death much because life is meant
for the living.
Have your little pity party but
move onto to try to be a good person.
That's how you honor someone's memory.
Depression and sitting around moping are not feasible solutions. Your
departed one doesn't want this for you.
They want you happy, healthy and
productive, feeling normal and living a normal life as opposed to sulking in
depression.
There are generally five stages
to the grieving process:
1.) The first stage is denial.
In order to get back to work and running your home, you push the event out of
your mind and go on like nothing happened.
2.) Anger soon follows as the
second stage of grief.
Then you bargain, looking for
something to help you move on.
Depression is a combination of
guilt, doubt,
anger, hopelessness and fear.
You accept it and move on.
Don't wait until death to bring
out all your unresolved feelings or to regret things you didn't get a chance to
say or do with your loved ones.
Take the time now to spend some
time alone with them to tell them in your own way that you love them and want
to thank them for what they did for you.
It'll go that much easier on you
when the inevitable happens. If you know
someone who is grieving, don't give them unsolicited advice nor bother them too
much. Just be with them if they want a
friend around. Let them talk. Don't say much.
Cherish your loved ones
now. Tell them what you have to now,
resolve your conflicts now because someday it may be too late. Death comes suddenly not only to older folks
but to anybody at any age.
Take a walk through a graveyard
like I did and you'll see that people die at all ages from all manner of
affliction particularly sudden ones like car accidents, drownings, fires,
shootings, anything can happen at anytime so be on good terms with your loved
ones now.
The way I dealt with my grief
over the loss of loved ones was to resolve within myself that I would honor
their memories by becoming the best human being I was born to be.
Death makes you realize the
transience of life. It's not
everlasting, everybody will die at some point in time.
Whether you believe in God or
not, you must accept this fact and make resolutions to do something meaningful
with your life beyond just being a passive consumer.
It's the only thing that can
really give your life meaning and give you sense out of a loved one's
death.
At least that's how I dealt with
it. I got more serious about my life,
resolved to be a better human being and do something good for the world.
The first rule of grief is that
it's not the end of the world. You must
accept the death as part of the life process.
I go back to the honor thing because that's what worked for me.
You must realize that the person
would have wanted you to honor him by doing your best to be a better person not
to mope around and get depressed.
It sounds kind of harsh but you
gotta have your cry, acknowledge the loss in your mind, have a short period of
numbness then get on with it, time to get happy again.
Your happiness is up to
you. Your dead loved ones don't want you
to be depressed.
Don't fall into the trap that
many people do which is to live in the past.
They get sentimental with the memories and regress to those times
becoming hermits in the process. You
must live in the present.
Surround yourself with positive
things like flowers, pets, good music, fresh air, bright colors, nice clothes,
healthy food, inspirational books, funny things, new interests, creative
things, sunlight, church, friends, etc.
It's alright to slow down for
awhile, take it easy, go to friends for comfort, touch and hug people and pets,
pamper yourself, do something for self improvement sake, find other grieving
hearts and seek the advice of trusted friends.
Some people choose to get busy
and get on with work which is alright but you gotta resolve the grief within
yourself too.
The stages of grief according to
Dr. Elizabeth Kubler-Ross are shock and denial, anger, bargaining, depression
and finally acceptance albeit in many cases, just a limited acceptance.
If you feel really bad, you may
want to join a support group to be with other people.
When it happens to a close
person, it's best not to deny it but give yourself allowances for grieving and
talk it out with other people that were close to the decedent.
Grief is normal. You might feel guilty about things that you
could have done with this person but didn't over his or her lifetime.
Obviously guilt is bad. Just give yourself time to grieve and get on
with life. Some people can never quite
get over the loss of a loved one but you can get rid of most of the empty
feeling except for occasional fleeting thoughts during the day.
The healing process is a natural
thing. Time and patience heals most
things. Some days may be better than
others. You'll be up and down for
awhile.
I see it all as a process of the
rebirthing cycle, kind of like the seasons, winter is death then spring brings
new life meaning you must find new people/ new things to do to get over the
death of the loved one.
In the case of a lost spouse,
even for older folk, I feel that one should consider finding another love to
wipe away the memory of the lost one.
There's nothing dishonorable
about this. Your old love would have
wanted you to be happy. You can't make
it feel better by becoming a hermit or a martyr.
Many older widows and widowers
who were with their spouses for a long time simply give up and die within a
short time after the death of the first.
In some cases if the love was strong, I can understand this. The general consensus is that it takes
anywhere from six months to five years to get over the death of a loved
one.
If you're a friend, consider
sending flowers as a condolence when a friend dies. Go visit the bereaved. You don't have to say much, just be there to
lend moral support and be an outlet if the close person wants to talk.
If you have young children,
first off, give them more credit for understanding life than you might
think. They know about death from TV,
they're also more sensitive than you might think. Be gentle with them. Take them aside and explain it to them in a
mature, fatherly/ motherly way.
Let them cry and hug you if they
want. Tell them about the life cycle
thing and the heaven thing if you're religious.
Tell them people get old and die, it's part of life. Tell them Grandpa was old, it was his time to
die and go to heaven.
Take them to the funeral and let
them be part of the process. If you
don't, they'll feel like they didn't get to say goodbye. You must give them this opportunity.
You might consider letting the
child buy the flowers for the decedent or write a letter or draw a picture and
put it into the casket. Educate them
about death.
Some Biblical passages dealing
with grief are:
Ecclesiastes 3:1-11.
Ecclesiastes 38:17
Genesis 9:13-18.
Hosea 6:1-3.
Isaiah 25:6-8
Isaiah 49:15-16
Isaiah 61:1-3.
Jeremiah 1:4-9.
Jeremiah 31:13.
Job 6:1-13.
Job 7:3-16.
Luke 6:21.
Matthew 5:1-12.
Proverbs 3:4
Proverbs 7:3
Wisdom 4:7-14.
Grief One-Liners
When you are sorrowful look again in your heart and you
shall see that in truth you are weeping for that which has been your delight.
Khalil Gibran
Perhaps they are not the stars but rather openings in Heaven
where the love of our lost ones pours through and shines down upon us to let us
know they are happy.
Separation
Your absence has gone through me
Like thread through a needle.
Everything I do is stitched with its color.
W.S. Merwin
Every one of us is losing something precious to us. Lost
opportunities, lost possibilities, feelings we can never get back again. That’s
part of what it means to be alive.
Haruki Murakami
Every morning, I wake up and forget just for a second that
it happened. But once my eyes open, it buries me like a landslide of sharp, sad
rocks. Once my eyes open, I'm heavy, like there's too much gravity on my heart.
Sarah Ockler
You will lose someone you can’t live without and your heart
will be badly broken and the bad news is that you never completely get over the
loss of your beloved. But this is also the good news. They live forever in your
broken heart that doesn’t seal back up. And you come through. It’s like having
a broken leg that never heals perfectly that still hurts when the weather gets
cold but you learn to dance with the limp.
Anne Lamott
Every evening I turn my worries over to God. He's going to be up all night anyway.
Mary C. Crowley
She was no longer wrestling with the grief but could sit
down with it as a lasting companion and make it a sharer in her thoughts.
George Eliot
We must embrace pain and burn it as fuel for our journey.
Kenji Miyazawa
Memory is a way of holding onto the things you love, the
things you are, the things you never want to lose.
From the television show, The Wonder Years
If you're going through hell, keep going.
Winston Churchill
We acquire the strength we have overcome.
Ralph Waldo Emerson
Time is a physician that heals every grief.
Diphilus
No one ever really dies as long as they took the time to
leave us with fond memories.
Chris Sorensen
The deep pain that is felt at the death of every friendly
soul arises from the feeling that there is in every individual something which
is inexpressible, peculiar to him alone and is, therefore, absolutely and
irretrievably lost.
Arthur Schopenhauer
There's a bit of magic in everything and some loss to even
things out.
Lou Reed
For many, there is comfort in knowing that others–now and
throughout human history–have grieved the loss of someone dear to them. While grieving can be a hard and long
journey, it brings greater emotional resiliency and helps us learn to open our
hearts again to new loving relationships with both people and animals.
Grief Websites 1
4therapy.com
aarp.org/griefandloss, 800 424
3410
athealth.com/consumer/disorders/parentalgrief.html
bereavement.org
bereavementsupport.co.uk
beyondindigo.com, beyond indigo
grief support provides information on caregiving, loss, grieving and
end-of-life issues for family, friends, pets and loved ones.
campjohnmarc.org, grief recovery
program.
centerforloss.com
centering.org, products.
chionline.org, 800-24child,
children’s hospice.
choices.org, choices in dying.
comfort-for-bereavement.com
comfortzonecamp.org, 866 488
5679, free camp in rockville, va to help grieving kids.
comfortzonecamp.org/grief-resources/ask-a-counselor
compassionatefriends.org,
877-969-0010
compassionatefriends.org/home.aspx
complicatedgrief.org
coping.org, coping with life's
stressors. free online self-help books: adult books focused on recovery and
parent books focused on parenting.
coping-with-loss-and-grief.com
counsellor.com.au/grief-counselor.html,
live chat.
death-dying.com
deathwithdignity.org
dgsys.com/~tgolden/1grief.html
dougy.org, grieving children and
families.
dougy.org, the dougy center
provides support in a safe place where children, teens, young adults and their
families grieving a death can share their experiences.
eloquentbooks.com/healyourgrief.html
en.wikipedia.org/wiki/death,_desire_and_loss_in_western_culture,
book.
facebook.com/groups/149122968466058
facebook.com/groups/150273021690175,
a closed group is for parents that have experienced loss due to Twin to Twin
Transfusion Syndrome.
facebook.com/groups/283667218320416,
suicide grief
facebook.com/groups/523992024370357,
christian
facebook.com/groups/584145061660973
facebook.com/groups/98668838382,
suicide grief group
facebook.com/groups/greygriefgroup
funeral.net/info/brvres.html
genesisresources.com
genesys.org, genesys regional
medical center, annual grief recovery camp.
giftfromwithin.org
grief.net
griefcareprovider.com
griefcast.com
griefgirlfriend.com
griefhaven.org
griefhealing.com
griefhealingdiscussiongroups.com
griefnet.org
grief-recovery.com
griefrelief.org
griefwatch.net
griefwords.com
griefworksbc.com/
grievingchildren.org
groups.yahoo.com/neo/search?query=grief
growthhouse.org, books.
growthhouse.org, guide to death,
dying, grief, bereavement.
groww.com
groww.com, grief recovery online
hcd2.bupa.co.uk/fact_sheets/mosby_factsheets/bereavement.html
healgrief.com
hildaszkarlat.blog.com/3170761,
see a licensed therapist or grief counselor.
hopeedelman.com
hospicefoundation.org/griefandloss
hospicefoundation.org/Grief-Support.aspx
hospicesj.com/healingheart.html,
healing a broken heart after the death of a loved one.
isabellacatalog.com
journey-through-grief.com
katsden.com/death/index.html
keepsafefoundation.com
livingourlosses.com
mcdes.org/board.html, minnesota
coalition for death education and support
mentalhealth. dead
website/health/mentalhealth/msub30.htm, grief and mourning resources
mentalhelp.net/guide/grief
mercycare.org/services/hospice/support.aspx,
grief support groups.
missingpieces.org, grief after
abortion.
nahc.org, hospice and homecare.
nasponline.org/resources/crisis_safety/griefwar.pdf,
national association of school psychologists, loss and grief resources.
nationaltwinloss.org.au
ncpamd.com/bereavement.htm asa.ugl.lib.umich.edu/chdocs/support/emotion.html
neosoft.com/~acoustic/wwwajgrsrc.html
neverlettinggo.com, psychic
grief.
nho.org, hospice.
nhpco.org, national hospice and
palliative care organization
noah-health.org/en/mental/disorders/grieving
obituarieshelp.org/words_of_condolences_hub.html
opn.com/willowgreen
otrib.com
pages.prodigy.com/gifts/grief.htm
pages.prodigy.com/nv/fgck08a/penparents.html
pomc.com, 888 818 pomc, parents
of mursered children
psychcentral.com/lib/coping-with-the-loss-of-a-spouse
psychcentral.com/lib/tips-for-better-managing-your-stress
psychcentral.com/library/child_death.htm
rainbows.org
rivendell.org
sadsuk.org, bereavement support
to those who have lost a teenager or adult unexpectedly through sudden adult
death syndrome.
selfhealingexpressions.com
smartlink.net/~tag/grief.html,
teen age grief
suicide.com/suicidecrisiscenter/grief.html
survivorsnet.org, world trade
center survivors' network.
sympathymessageideas.com
taps.og, Tragedy Assistance
Program for Survivors soldiers, sailors, airmen and marines die in service to
our country.
targetwoman.com/articles/family-counselor.html
tcf.org.uk, the compassionate
friends (uk).
tcf-verdugo.org, verdugo hills,
ca chapter of compassionate friends.
the-bright-side.org
touchstonecenter.org, center for
grieving children.
treesforachange.com/pages/sympathy-message-ideas-condolence-quotes-sympathy-card-ideas
ub-counseling.buffalo.edu/relationships/endings/coping.html,
coping with death and grief
users.erols.com/lgold/info.htm,
children and grief
webhealing.com, crisis, grief
and healing.
widownet.org
wordsonloss.ning.com
alt.support.grief
Grief Websites 2
aarp.org/griefandloss
aarp.org/griefandloss/home.html
adec.org/
agast.org/
aidsquilt.org/
angelfire.com/ab3/grievingparents/
angelsforhope.org/
aplacetoremember.com/
bereavedparentsusa.org/
bereavementmag.com/
bfotoronto.ca/
centerforloss.com/
childrensgrief.net/
clarahinton.com/
climb-support.org/
compassionatefriends.org/
condolencephrases.net/
conniebowen.com/
counselingstlouis.net/
cysticfibrosis.com/
deafcounseling.com/
debbidickinson.com/
dougy.org/
drgreene.com/21_201.html
enterthefreudianslip.com/
facebook.com/pages/Puyallup-WA/Grief-Inc
f-conline.com
webhealing.com/
friendsofkaren.org/
friendsway.org/
funeralnet.com/
galenpress.com/
grief.org.au/
griefandrenewal.com/
griefdirectory.org/
griefhealing.com/
grieflossrecovery.com/
griefsong.com/
griefstore.com
groww.org/
helpguide.org/
helpguide.org/mental/grief_loss.htm
helptoheal.co.uk/
holycrosshealth.org/hospice
hospicecaring.org/
hospicechesapeake.org/
hospicefoundation.org/
groups.yahoo.com/group/AngelsSuroundus
groups.yahoo.com/group/ourbrokenheartsofsuicide/
health.groups.yahoo.com/group/DrowningSupportNetwork
members.boardhost.com/donorfamily/
opentohope.com/
qeepr.com/
thegrievingheart.info/
thewebpager.com/sos/
webhealing.com/forums
webhealing.com/videos/
bradleyfuneralhomes.com/
bradleyfuneralhomes.com/resources.html#grief
icfa.org/
joannepang.org/
journeyofhearts.org/
jssahospice.org/
kindermourn.org/
lastchapters.org/
lifewords.com/
livingwithheart.com/
loveneverdies.net/
maledepression.com/
mastersincounseling.org/loss-grief-bereavement.html
mensactivism.org/
missfoundation.org/
missinggrace.org/
montgomeryhospice.org/
ncfm.org/
netcomuk.co.uk/~jollyjon
nfda.org/
nhpco.org/
parentsofsuicide.com/
pomc.com/
pomc.org/
professionalchaplains.org/
restministries.org/
road2healing.com/
robertspress.ca/
sampleletterofsympathy.com/
samplesympathymessages.com/
seattlewidowed.com/
sids.org/
sids-network.org/
silentgrief.com/
sugarloafcounseling.com/
suicidememorialwall.com/
survivingsuicide.com/
sympathymessageideas.com/
taps.org/
thebody.com/index.html
themenscenter.com/
touchstonesongrief.com/
transformations.com/
trinity.edu/~mkearl/death.html#di
twinlesstwins.org/
webhealing.com/
west.net/~awon/
widownet.org/
willowgreen.com/
wingsgrief.org/
wingsoflight.org/
wsfda.org/
zenhospice.org/
growthhouse.org/death.html, Bereavement Links, Growth House,
Inc.
grannyg.bc.ca/ckidbook/grief.html, Children Coping With
Grief
and Dying A list of books about death, loss, illness
rivendell.org, GriefNet, Riverdell Resources, This site has
resources for those who are experiencing loss and grief and
information for health professionals.
lastacts.org, Last Acts, USA, a coalition of non-profit organisations
and professional associations campaigning to improve
end-of-life care.
compassionatefriends.org, The Compassionate Friends;
National
Office, USA, A non-profit self-help organization for
bereaved parents
and siblings
dougy.org, The Dougy Center, The National Center for
Grieving
Children and Families, USA
griefnet.org, GriefNet.
313-761-1960
webhealing.com, Tom Golden's Crisis, Grief and Healing Page.
301-670-1027
webhealing.com/links.html
goodgriefgroups.com, Good Grief Groups.com.
770-977-6377
Fax: 770-926-3743
centering.org, The Centering Corporation
402-553-1200
Fax: 402-553-0507
hospicefoundation.org/grief, Hospice Foundation of America
Grief
Resource Page
800-854-3402
zzrockies.net/~spirit/grief/griefA1.html, Grief and Loss
Resource
Center
cef@rockies.net
goodgrief.org, The Shiva Foundation.
505-757-8906
Fax: 505-757-8905
griefinc.com
866-312-8970
Fax: 502-493-7291
mentalhelp.net
groww.com, Grief Recovery Online for All Bereaved.
407-865-9249
Fax: 407-865-6179
compassionatefriends.org, Compassionate Friends.org for loss
of a
Child.
281-491-1396
Fax: 281-491-1396
bereavementmag.com, Bereavement Magazine.
888-604-4673
Cancer Grief Websites
compassionatefriends.org,
The Compassionate Friends; National
Office
(USA) bereaved parents
dougy.org,
The Dougy Center, The National Center for Grieving
Children
and Families (USA)
Portland,
Oregon
The Centering Corporation
Omaha, NE 68134
centering.org.
books death and grieving.
Children's Hospice International
901 North Pitt Street, Suite 230
Alexandria, VA 22314
800 242-4453, 800-24-CHILD or, 703 684-0330
Fax: 703 684-0226
chionline.org
The Compassionate Friends National
Office
P.O. Box 3696
Oak Brook, IL 60522-3696
877 969-0010
630 990-0010
compassionatefriends.org
bereaved families support meetings at local chapters and
telesupport.
psycom.net/depression.central.grief.html, Grief and
Bereavement.
bereavedfamilies.net, Bereaved Families of Ontario.
Bereavement Self-Help Resources Guide.
growthhouse.org/default.html, Growth House.
resources for life-threatening illness and end of life care.
misschildren.org, M.I.S.S.
the untimely death of an infant, toddler, or young child.
campheaven.com, Camp Heaven.
bridging the gap between Earth and Heaven
the gap between grieving parent and departing child.
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