Volume 57. Caregiver Guide
Chapter 1. The Caregiving Process
Everybody Will Care For
an Elderly or Disabled Person
I watched my mother gets
Alzheimer's Disease.
I watched others get hepatitis
and cancer.
I watched a friend break at
least a dozen bones in a car accident.
It's sad to see strong people
wither away but it happens all the time.
Aging is normal. Diseases are
normal. Accidents are normal.
Look in the mirror. I got one eye now. I’m waiting for a cataract operation.
I suggest you go to the library
and get some caregiving books at #362.175-179 or RA997 and RC963 and check out
some of the websites I list below.
Don't cry too much. Try to be loving.
Caregiving/ Eldercare 1
Have faith, hope, clarity and
love.
Caregiver's mantra
A caregiver is someone who
either lives with the person or comes in for anywhere from a few hours to a
fulltime shift everyday. The caregiver
is usually a relative, good friend, lover or hired help.
Caregiving is often a team
effort between patient and helper unless the patient is so far gone he or she
can't communicate.
Think of the patient as the
boss, working with the helper to get what he or she wants as long as they're
not too bossy or self-centered about it.
A caregiver's basic daily
responsibilties are as follows:
Encourage the patient to stay
hydrated by drinking plenty of liquids, not alcohol.
Safeguard against infection by
keeping the living area clean.
Assist with daily bathing,
toileting and dressing.
Keeping skin clean and
moisturized.
Turn bedridden patients to
another position at least every one to two hours to avoid bed sores.
Help the patient get some
exercise.
Check vital signs in the
morning, at night and anytime a new symptom emerges.
Be a daily companion.
Bathe patient and move him
around the house.
Assist with daily meals,
dressing and routine medications.
Look in on patients who live
alone.
Help raise the patient's
children or deal with their relatives.
Give patient a regular shave,
shampoo, haircut, etc.
Help with personal requests.
Drive patient to and from doctor
and hospital visits.
Get the mail and accept hand
deliveries
Drop off and pick up dry
cleaning
Do the bank duties but don't
embezzle money.
Drive patient to and from daily
activities.
Take care of home and car
maintenance.
Do errands.
Clean the trash.
Shop for groceries.
Have prescriptions filled.
Pick up medical supplies.
Prepare meals.
Do laundry.
Take care of pets.
Handle the bills and personal
affalrs.
Administer medications.
Know when to call the doctor or
the local emergency number.
Constantly ask the patient what
would he or she like you to do to make his life easier.
The biggest problem between
caregiver and patient regardless of whether it's a relative or hired help is
assuming things and not communicating enough such that you see eye to eye and
there's a clear understanding between the two of you.
Work on the following guidelines
together:
Be positive about the situation.
Educate yourselves about the
illness and the pragmatic realities of dealing with it.
Determine how much professional
help and outside care, if any, you need.
Make a plan of how to live with
the illness. Decide how far you'll go,
either full recovery or comfort in a modified form.
Consider possible obstacles and
how you'll deal with them. Have
contingency plans like how you'll get to the hospital in case of emergency.
Stick with a good plan and
adjust it as necessary.
Caregiving is generally tough
emotionally both on the patient and the relatives. If the caregiver is hired help, it's often a
tough job on them. There's often anger, denial,
depression and finally acceptance and compromise. You have to learn to work with it.
Cooperate with the medical
professionals as best as you can.
They're there to help you. Help
the patient by getting involved with them and finding as much information as
you can about the illness and how to control it. be empathetic and sensitive to what the
patient is going through.
If you take liberties with the
patient such as steal their money or things, give them negligent care, etc.,
it's illegal and you will be charged criminally if caught.
Caregiving is very hard
work. It's not like caring for a
child. It's caring for a full grown
adult which is tougher. If they're of
sound mind, they may even become antagonistic towards you.
They feel a loss of dignity
because they can't take care of themselves so they often lash out against those
closest to them, the caregiver.
Try to be positive. Offer creative solutions to the patient's
impediments. Try to understand his or
her life. If you can't handle it alone,
get help.
It's often sudden after
hospitalization.
It's demeaning because you're
very close physically to them and have to do embarrassing things like tend to
bathroom needs.
You must give them their dignity
and some independence. You need your own
life. Try to strike a balance between
care and your own life.
Don't be haphazard about
it. Get organized. Write important phone numbers down. Try to get help from relevant organizations
in the community. Look in the phonebook
for local senior organizations.
Set up a meeting with relatives
and other relevant people. Make a plan
and a budget. Try to make the care
interactive, spread out over several family members so that the burden is not
on just one.
Set up a home health care team
for all the people involved in the care of the patient. Set up a routine. Try to keep them inspired about life as much
as you can.
Have a support network of
friends and family. If they feel good
enough, consider vocational rehabilitation, retraining to go back to work.
Attitude is everything. Join a support group if you feel so
inclined. Get professional counseling if
you feel you need it.
The illness will be a drain of
money so save well, manage your money, leard about your medical insurance plan
and the government's medical assistance programs.
There is often a point where you
have to send a senior to a nursing home.
Some older people are very protective about their homes. They will not want to move out. You'll have to coax them gently.
Try not to make decisions
without the afflicted person. Give them
input into their own lives. There will
be a lot of emotions on both sides, some of it negative. Try to make it a bonding period.
Books about caregiving are at
#362.6, #649.8 or HV1475 at the library.
Caregiving/ Eldercare 2
Caregiving can be stressful and
exhausting. If you are caring for a
loved one who has Alzheimer's disease or some other condition, learn all you
can about the disease so you can be adequately prepared to deal with it.
Watch your older relatives for
warning signs that they can't take care of themselves. A messy house is a dead giveway as is poor
personal hygeine, malnutrition, a confused disposition, memory loss, etc.
Make all necessary legal and
?nancial arrangements including advance directives, durable power of attorney
and payment of healthcare costs.
Contact a lawyer to take care of
all estate paperwork.
Take precautions to protect your
loved one from potential dangers such as falls, burns, poisoning and wandering
away from home. Put an address card in
their jacket pockets.
Lock away hazardous objects and
materials including medications, cleaning ?uids, matches, lighters and
?rearms).
Install locks on doors and
windows.
Placing night-lights from the
bedroom to the bathroom.
Contact your doctor, local
hospitals and volunteer, community and health organizations for information
about help, assistance and support.
Join a caregiver or disease
support group.
Consider hiring a professional
caregiver through a home health agency.
Prepare yourself to deal with
the eventual loss of your loved one.
A lot of people aren't suited to
give car, even to a relative. They
either have no patience or it's just sad to see your relative who was once
strong and healthy degenerate into an old bag of bones.
It's kinda like to put your
parent into some impersonal nursing home is like cutting someone's spirit out
because they'll have no free space and no privacy anymore, surrounded by
strangers, waiting to die. It's sad. It's tough to choose what to do; take care of
a parent on your own with help from others or give them up to a nursing home.
In some cases, there is no
choice. The person is too disabled to
carry on at home even with a caregiver or two to help. In that case, it's a relief because it's
beyond your control. Find your own line
of homecare versus transfer to nursing home care.
Start thinking about long-term
care. Gather information about
longterm-care facilities in your area.
Follow a healthy lifestyle.
There are a few major rules of
homecare:
Yesterday's gone. This is life as lived now, not in your heyday
when you were all strong and young.
Don't do it alone. Let other siblings, friends and relatives
help.
Take care of your own identity
and self while doing the caregiving.
Be realistic. As you see your loved one further slip away,
you have to confront the hard decisions.
Don't leave caregiving at the
back of your mind. Plan now, first for
your parent to move in with you or you with him then for the move to the nursing
home. There are basic indicators; can he
take care of basic life activities like buying food and paying bills, can he
clean himself, is he lonely?
The major forms of caregiving
are:
Go to live with afflicted at
their home.
The afflicted comes to live with
you at your home.
Adult daycare, patient goes
there several hours a day.
Respite, patient goes anywhere
from a day to a few weeks at a time.
Caregiver who comes in for
several hours a day.
Visiting nurse.
Residential care.
Assisted living facility, group
home.
Assisted living, continuing care
retirement community.
Nursing home.
Palliative care, hospice.
There are many matters to take
care of like:
Financial.
Legal.
Medicare.
Pension.
Medications.
Doctor visits.
Diet.
Safety in the home.
Religion.
Social.
Recreation.
Death.
Will.
Funeral.
Estate.
Some elderly people have to be
restrained. Although they have a
driver's license, they're not really competent to drive.
If the person is incompetent
mentally and/ or physically, you may have to get a Power of Attorney to manage
their affairs.
Illness often leads to death
before one's time. Be ready for it. Face reality.
Get financial affairs in order.
Talk to a lawyer. Make funeral
arrangements now. Affirm your life by
preparing for the afterlife with your God.
Finally, caregiving as a
vocation or as an obligation to a loved one can be very stressful because you
develop an emotional connection to the patient and feel guilty if you're not
around all the time but in order to be the best caregiver you can be, you need
to find a balance with the patient and your own life, particularly your
relationship with your spouse and your children, especially if they're under 18
years old.
Take a break from caregiving
here and there.
Get enough sleep.
Get some fresh air and physical
activity.
Watch your health. Wash yourself after dealing with the patient.
Watch your mood to see if you
feel overwhelmed or are getting depressed.
Caregiving/ Eldercare 3
Most of us don't realize how
tough it is to live through the process of going from strong person to frail
one. They can't do simple tasks that you
and I take for granted.
Slow down and listen to
them. Feel their pain. Don't fight.
Don't attack their pride. Just
make mild suggestions. Don't say you
can't do that. Just offer an alternative
suggestion. Go slow with them.
A family is there to help each
other. You should feel obligated to help
your parents even if they don't ask for it because they're probably too
proud. Talk to them as adults talking to
adults. Be gentle, understanding and
compassionate.
In some cases, it may get to the
point where you have to parent the parent.
In such cases, be easy with them, treat them with kid gloves.
Everybody has a certain amount
of pride. They may resent feeling less
than independent so proceed lightly.
You have to overcome these
psychological, emotional type barriers that could come between you helping your
parents. Be nice but give them their
space and dignity. Talk about everything
and anything that might affect them;
Money
Health
Housing
Boredom
Staying active
Social life
Marriage
Relationship for a widow
Legal
Will
Death
Dying
Aging
Family issues
Government
Social security
Medicare
Possible depression
Mental health problems
Loneliness
Stress
Regressing into the past
Poorer eyesight
Taking their medication
Alcohol
Eating properly
Keeping clean
Whether they notice signs of
slowdown
If they can drive properly
If they have someone to talk to
day by day even a pet
Shopping for groceries
Your relationship with them.
Other things
Try to resolve all unsolved
baggage within the family to smooth things out for everybody like if two
siblings are at odds with each other, try to get them to make peace so the
parents know before it's too late.
Talk about yourself, your own
life, your own problems, hopes and dreams, etc.
Try to make your parents see that they raised a good person who wants to
continue the torch they started and pass it on for the good of humanity.
Most children and young adults
never even conceive that they'll someday have to help their parents out but if
they're good people, their parents will need their help and they'll help
them. The fact is that people get old
and die, they get sick and have to take care of their affairs.
Both sides are reluctant to do
these things. The father doesn't want to
have to reveal weaknesses to the kids and the kids are too embarrassed to ask
the parents if they need help but the fact is that at some point in time,
You must talk about things to
get them straightened away before the inevitable happens and it all becomes a
big mess.
If you have brothers and
sisters, all of you should get involved in this process. Beyond medical matters, the main issues are
financial and legal matters like the parents should tell the kids where the
money is, make up legal wills, prepare for death and the funeral, etc. You should write it all down and keep it in
notes.
Parents get fragile with
age. You should help them out but leave
them their dignity. Don't mother
them. Give them space. Let them make most of the decisions
themselves unless they start acting irrationally.
Talk to them human to human to
get over any unresolved baggage from childhood.
Act like an adult. Make them treat
you like an adult not like the kid you were 20 years ago.
Think prevention. That means help them stay active in social
activities, exercise, eating the right foods, avoiding fat and junk foods,
believe in something, anything other than to just vegetate, use it or lose it
both physically and mentally.
Keep an interest in the doctors
they go to and the treatments they're getting to watch that they're not getting
ripped off and watch out if they go for quack alternative therapies for things
like arthritis, fountain of youth, etc.
Everything will start to
go. They are a limited version of the
vibrant people they once were. You must
accept that and help them out.
Their eyesight will be weak,
hearing will be weaker, memory will go, they'll feel tired, arthritis will
creep in, joints will wear out, incontinence, ulcers, etc. You owe it to them to educate yourself and
them about these disorders.
Keep an eye on your parents that
they stay clean, keep the house clean and try to look their bodies over
inconspicuously for signs of sores or any other types of illnesses.
Watch for little things like do
they wear clean clothes, changing and washing them often, do they drink much
alcohol, do they live in a fog of prescription drugs, do they watch TV all day
long, do they live in the past, etc.
Isolation and alienation are
part of growing old especially after one part of a couple dies. The other feels lonely and may regress to
living in the nostalgia of the past.
That's alright as long as they
don't lose a complete hold on reality.
Many widows and widowers of long marriages die very soon after the first
dies, it's a fact of life.
Hospitals and nursing homes are
a drag. When a parent goes, make it a
point to visit them, bring uplifting gifts like flowers and try to get them to
get up and around.
Don't listen to everything the
doctors say. I'm a strong believer in a
concept called iatrogenesis which means that hospitals make patients sicker and
doctors actually create new diseases to diagnose the patients and keep them in
the hospital or on treatments to make money not necessarily to help them.
Think twice before committing your parents to
a nursing home or a retirement community.
Despite what they say, the old-fashioned way is better, to have the
parents live with their children in an extended family situation.
Build them a basement apartment
or a small cottage in the yard if possible or if you can afford it, buy them a
small house near where you live.
Living with your parents is like
living with a spouse. There will be bad
times and disagreements so take it cool when it happens. Many seniors in nursing homes die of a broken
heart.
If you commit your parents, try
to visit them as often as possible. Some
areas have housing programs for seniors.
Check with your local agency on aging.
As your parents near death, you
may vie for a hospital stay, hospice care or you may choose to have them spend
their last remaining time at home in a peaceful setting.
Don't get overly dramatic, just
give them a peaceful, quiet, gentle atmosphere with which to pass on. Touch him and hold him and love him when he's
dying. It's the best you can do. Let him lay in peace for awhile if you
want. Call your friends and relatives to
tell them about it.
In the end, you'll probably
grieve for awhile then you have to accept it as part of life and know that your
legacy is to honor your parents by being the best person you can be in the
world.
If your parents' taxable income
is less than about $2700 and they're your dependent, you can deduct some of the
cost of your support, caregiver and medical expenses on your tax return.
Get Form 2441 from the IRS at
800-829-3676, irs.gov. If you share the
burden with siblings, get Form 2120.
Check out your local YMCA for
courses for seniors. Gardening is a good
activity.
Check out your local agency on
aging for resources on just about anything related to seniors. Eldercare Locator, 800-677-1116,
eldercare.com, will give you a list of local facilities for medical services.
The National Meals On Wheels
Program is located at givemeals.com, 800-999-6262.
A/PACT stands for parents and
adult children together.
The Sandwich Generation means
the parents, their adult children and their grandchildren.
Books about talking to and
caring for aging parents are at #306.874 and HQ1063 at the library.
Caregiving/ Eldercare 4
Can you afford time off work to
care for your parent? Have you talked to
your children? You can still work and
they can help out. Have him come live at
your house. Sell his house, build an
extra room or apartment onto your house.
What are your senior's exact
medical, legal and financial issues?
How is the person coping now?
Who will take care of him day by
day?
Is your senior mobile? Is there a need for a walker, scooter or
wheelchair?
Will he stay at home or move to
a nursing home?
What can the community offer
life adult daycare, meals on wheels, senior social center?
What is the proximity of the
senior's house to you, his doctor, the hospital, etc. If it's too far, better to move now than
later.
It's not very hard to see if
someone is declining. The house looks
messy. They look messy. They can't talk in a straight way all the
time. Their spirit is gone.
When you first realize that you
will or should care for an aging parent, you often feel overwhelmed, wondering
how you'll cope.
Tell your relatives and her
friends. Ask for help.
Reassure her that you'll take
care of things.
Redo the house to suit her
needs.
Possibly quit work, take leave
or a few wekks off to set her up in the home.
You not only have to take care
of her at home but become her advocate and spokesperson for medical care. You have to be up on experimental treatments,
what could possibly help her that her insurance company is leery about because
it costs them money.
You have to drive her to the
hospital, visit her then drive her back home.
Help her do what she wants to
make her happy.
Some adult children sleep in the
same bedroom so they just reach over to turn them over every few hours.
Memory and mobility will
go. Feed the person healthy food, try to
get them up and about physicially and keep their minds active.
Install grab bars in bathrooms
where the senior might have balance problems.
Consider installing a raised
toilet seat.
Add sturdy handrails wherever
you think they'll help.
If the senior is still walking
the stairs, remove all loose rugs and coverings. Make sure that the handrail is sturdy.
Throw out flimsy chairs. Get sturdy chairs.
Your aging parent wants you to
love her, listen to her and help her.
In the end, you're tired. The person who was once strong and vital is
not the same person you see now. All of
us answer to the physical limits of nature.
You might have to move your
parent to the hospital or hospice so they can get drugs to die in comfort.
Make up a living will or
advanced directive regarding medical treatment if the parent lapses out of
consciousness.
If your parent is dying little
by little with the organs shutting down, they will be out of consciousness. There is no sense calling the doctor or
ambulance. Let them die in peace then
call the funeral home. It's nature. Don't try to prolong the inevitable. If there is no quality of life left, it's
time to move on.
After it's over, you have to
readjust to normal life again. That will
take a year or so.
Now I have to tell you the truth
of the matter. There is a loss of
dignity when you shove the bowl under your parent for them to poop then you
wipe their butt but at this point life takes more precedent. It's better to hang on like this than to die
because you love your parent and want them to keep living.
Once you divorce love from it,
death is common. Several dozen people
die everyday in any fair-sized city.
Life goes on. The next generation repeats the cycle then they pass. Dying is a part of living. The sooner you accept it for you and your
loved ones the better.
Dying at home in your sleep is
the best case scenario possible. It
beats dying a violent death or dying in a hospital.
Take care of financial affairs
before they pass. Ask for your parent's
financial papers. Get power of
attorney. Spend money to help him but
don't spend so much that he loses the house.
Sometimes, people sell the house
for economic reasons. The only
alternative is a nonprofit nursing home.
If one parent dies and the other
is alive, you might have to help that parent with practical things. A lot of women, at least in the past, never
dealth with the finances of the house.
Get them a copy of my money book.
Caregiving One-Liners 1
Seeing a loved one deteriorate
is always a shock at first. You have to
take control, plan out a reasonable daily routine.
Talk about the situation to the
level that you feel comfortable with.
The sick person is probably in denial, ashamed and doesn't want to talk.
Don't let the sick person put a
guilt trip on you and try to make you do more than you reasonably can. Some sick people get clingy and always want
you around.
It's really hard to change
people, especially old sick people. Try
to tell them that what you are doing is good for them.
Try to help but ultimately it's
that person's illness. Only they can try
to stay inspired about their lives.
If the sick person does not want
to talk and express himself, that's fine.
You can only do so much.
Some people like friends and
relatives are busybodies. They will tell
you what to do and give plenty of unsolicited advice.
No matter what, everybody needs
rest.
There is still intimacy. If you're caring for your spouse, you can
still be affectionate and sexual.
Don't let anyone try to abuse
you or try to take advantage of you.
Don't be afraid to ask for help
if you think you need it.
Don't feel guilty about having
fun sometimes.
Don't be too dependent on the other
person.
Don't hesitate or stall about
doing something that is good for you.
Try to relax.
Try not to isolate
yourself. It can make you feel alone.
You can't stop death. Honorable dying people want you to be the
best you can be.
Try to have fun and even go out
sometimes, if just for a car drive.
Get enough sleep.
Eat healthy foods.
Get some exercise.
Go to church if you're a
believer.
Do funeral planning in advance.
Keep your sense of love even
when you feel like crying or get angry.
You can't do anything about your
loved one's state of health. Just try to
keep everything happy and comfortable.
Take care of your finances. Money books are at #332 at the library.
Take care of your own health.
Try to make medical
appointments.
Oxygen is the key to life. Be physically and mentally active to get
oxygen to the brain and through the body.
There is a certain amount of
hope and a certain amount of inevitability.
Try to live an inspired life everyday no matter what. You achieve that by doing something that
comes from your true nature as I've talked about in my book A Free Spirit's
Search For Enlightenment.
Everybody dies. I already made peace with my death. It's no big deal. I'm on borrowed time. I escaped death already by living through bad
accidents. Until then I will cherish
life but when my time comes, I won't cry.
I will do it with nobility.
Check out local hospices.
Make final arrangements.
Try to tell others that it's ok
that you're dying. It's normal. Treat you like a friend until the very end.
Dying is a part of living. Move on and continbue to release your free
spirit as fully as possible after loved ones die.
Caregiving One-Liners 2
Visit the patient regularly with love.
Do grocery shopping.
Ask what you can do to help.
Offer to stay with the patient.
Give book or mp3s of short stories.
Offer to go places together, even a walk or a ride.
Do things to make them feel included and less isolated.
Include the patient and family in your activities.
Do not visit if you have a cold or the flu.
Make it clear that you are there to help and give support,
not to offer sympathy.
Be calm and just be there.
Be a good listener.
Reassure them by
saying you have chosen freely to be there.
Treat the patient as if you expect them to live.
Allow them to express anger.
Help them relieve stress.
Express love at every opportunity.
Touch, hug, kiss.
The patient needs reassurance that you are caring.
Give them little gifts.
Be a friend.
Be cheerful.
Don’t be depressed.
Be honest with the patient.
Treat the patient as a worthy individual.
Talk like an adult.
Don’t treat them like kids.
Evn though someone is sick, they are still that person who
was loving, had interests, etc.
Do not assume the patient is going to die.
Many are cured.
Bring messages, music and books of support.
Share your feelings.
Help them talk and share their feelings.
Encourage them to be physically and mentally active.
Be funny and laugh.
Watch funny movies.
Do not tell horror stories of other patients.
Reminisce about good times.
Have an optimistic outlook.
Encourage the patient to try anything that gets them moving.
Be natural and loving.
You Might Have to Support
Your Parents
It's possible that your parents
run out of money and you have to support them, especially if they get sick or
injured. Older people get sick or lose
their mind through Alzheimer's then their pension is not enough to cover their
medical expenses. Medicare only covers
about 53 percent of health care costs for its recipients.
Learn about money from either my
money book or get books at #332 at the library.
The National Family
Caregiver Support Program (NFCSP)
The National Family Caregiver
Support Program, funded by the federal Older Americans Act, Title III E, is an
organization that helps people of any age who serve as unpaid caregivers for
people ages sixty and older.
The goal of this program is to
relieve the emotional, physical, and financial hardships of providing continual
care.
National Family Caregivers
Association
10604 Concorde Street
#501
Kensington MD 20895-2504
800-896-3650
nfcacares.org
info@nfcacares.org.
Chapter 2. The Caregiver Has to Take Care of
Themselves Too
A Caregiver's Bill of
Rights
The American Association of
Retired Persons at aarp.org and the National Well Spouse Foundation
(wellspouse.org) have published a
Caregiver's Bill of Rights which are guidelines for caregivers to live by. The following points come from the article
Helping an Aged Loved One by Jo Horne.
Use the list as guideline but add your own points to it as you go along.
I have the right:
To take care of myself. This is
not an act of selfishness. It will give
me the capability of taking better care of my relative.
To seek help from others even
though my relative may object. I recognize the limits of my own endurance and
strength.
To maintain facets of my own
life that do not include the person I care for, just as I would if he or she
were healthy. I know that I do
everything that I reasonably can for this person and I have the right to do
some things just for myself.
To get angry, be depressed and
express other difficult feelings occasionally.
To reject any attempt by my relative
either conscious or unconscious-to manipulate me through guilt, anger or
depression.
To receive consideration,
affection, forgiveness and acceptance for what I do from my loved one for as
long as I offer these qualities in return.
To take pride in what I am
accomplishing and to applaud the courage it has sometimes taken to meet the
needs of my relative.
To protect my individuality and
my right to make a life for myself that will sustain me in the time when my
relative no longer needs my full-time help.
To expect and demand that as new
strides are made in finding resources to aid physically and mentally impaired
persons in our country, similar strides will be made toward aiding and
supporting caregivers.
The Caregiver Needs Help/
Caregiver Support Groups
When you care for someone like
an aging parent or a relative with some disease like Alzheimer's or cancer, you
could get worn out because it never ends.
Support groups can be in person
or they can be online. There are some
health care providers like the local hospital that provides caregiver support
groups.
A caregiver support group might
help you emotionally but you can also get practical knowledge and ideas from
them.
Look up Home Health Services in
your local phone book. Your best bet is to
find a doctor who specializes in homecare, contact your local health and human
services offices for referrals and find a support group.
Home health care books are at
#649.8 and RC108 at the library. Books
about dying at home are at #362.196 or R726.8 at the library.
nfcacares.org/connecting_caregivers.caregiver_community_action_network.cfm,
caregiver community action network.
aaaphx.org/caregiver+support+groups,
phoenix, az.
aging.lacity.org/caregivers/support.cfm,
los angeles.
alznyc.org/caregivers/support.asp
anokacounty.us/v1_seniors/caregivers/caregiver-support-groups.asp
cancerlifeline.cmiregistration.com/supportgroups.aspx,
this group is designed specifically for caregivers
caregiver.com
caregiver.org
caregiversupportservices.org,
caregiver support services of omaha, ne.
caregiving.com
carersconnectint.com, support
group for caregivers.
caring.com/tips/caregiver-support-groups
dhss.delaware.gov/dhss/dsaapd/caregivesg.html,
caregiver information and support.
eldercare.com, the advantages of
caregiver support groups
geistblogs.com/blog/alzheimer-association-local-family-caregiver-support-groups,
indianapolis, in.
groups.
helpguide.org/elder/caring_for_caregivers.htm
mskcc.org/mskcc/html/18092.cfm,
sloan-kettering help for caregivers, families and friends
nncf.unl.edu/family/eldercare/tips-caregiver/caregiver-support-groups
parents.berkeley.edu/recommend/therapy/caregiver.html,
berkeley parents network: caregiver support
pbs.org/wgbh/caringforyourparents/handbook/caringcaregiver/supportgroups.html
scrc.signonsandiego.com,
southern caregiver resource center, san diego, ca.
ssw.unc.edu/cares/aaafile.htm,
north carolina.
westchestergov.com/aging/caregiverssupportgroups.htm
American Self Help Clearinghouse
St. Clare's-Riverside Medical
Center
100 E. Hanover Ave.
#202
Cedar Knolls, Nj 07927-2020
800-For-Mash
800-367-6274
973-326-6789
973-326-8853
973-625-7101
973-625-9053, Tdd
Fax: 973-625-8848
Fax: 973-326-9467
ashc@cybernex.net
cmhc.com/selfhelp
selfhelpgroups.org
Mostly mental health help but
also help in locating local support groups in most conditions.
Chapter 3. Caregiving Resources
"Find
Caregiving" Websites
a nationwide network of local agencies that provides aging
services known as the Aging Network in the U.S.
eldercare.gov/Eldercare.NET/Public/Index.aspx
Eldercare Locator
1-800-677-1116
caregiver.org
aarp.org/applications/search/search.action?q=caregiving,
AARP Caregiving Resource Center.
alz.org/we_can_help_caresource.asp, Alzheimers Association
CareSource™.
medicare.gov/caregivers, Caregiver Information at
Medicare.gov.
cfad.org/, Caring From a Distance.
caregiver.org/caregiver/jsp/home.jsp, FCA: Family Caregiver Alliance.
A community-based nonprofit organization
caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083,
state-by-state Family Care Navigator
familycaregiving101.org/index.cfm, Family Caregiving 101.
the National Family Caregivers Association (NFCA) and the National Alliance for
Caregiving (NAC).
web.raffa.com/nac/axa/, National Alliance for Caregiving’s
Family Care Resource Clearinghouse.
nfcacares.org/, National Family Caregivers Association.
ltcombudsman.org, The National Long-Term Care Ombudsman
Resource Center.
includes a state by state locator to find local Long-Term Care Ombudsman.
nextstepincare.org/, Next Step in Care.
easy-to-use guides to help family caregivers and health care providers work
closely together
caregiver.va.gov/, VA Caregiver Support.
The caregiving site of the U.S. Department of Veterans Affairs
revolutionhealth.com/healthy-living/caring/basics/get-started/help-find-it
elderweb.com
bestcaregiverinfo.com/articles.shtml
bestcaregiverinfo.com
nfcacares.org, the national
family caregivers association, 800-896-3650
respitelocator.org
thearc.org, the national organization
of and for people with mental retardation and related developmental
disabilities and their families.
aarp.org, the american
association of retired persons (aarp).
caregiver.org
caregiving.org
aoa.gov/prof/aoaprog/caregiver/carefam/where_to_find_help/where_to_find_help.asp
aoa.gov, u.s. dept. of health
and human services, administration on aging
carepages.com
rediclinic.com
extendhealth.com
revolution.com
casefoundation.org
American Health Care Association
(AHCA)
1201 L St., N.W.
Washington, DC 20005
(202) 842-4444
ahca.org
FamilyCare America
1004 N. ThompsonSt. Suite 205
Richmond, VA 23230
(804) 342-2200
info@familycareamerica.com
familycareamerica.com
Family Caregiver Alliance
180 Montgomery St. Suite 11001
San Francisco, CA 94104
(415) 434-3388
800-445-8106
info@caregiver.org
caregiver.org
National Alliance for Caregiving
4720 Montgomery Lane Fifth Floor
Bethesda, MD 20814
info@caregiving.org
caregiving.org
National Center for Assisted
Living
1201 L Street, NW
Washington, DC 20005
(202) 842-4444
ncal.org
National Family Caregivers
Association
10400 Connecticut Ave Suite 500
Kensington, MD 20895-3944
800-896-3650
(301) 942-6430
nfcacares.org
The Well Spouse Foundation
63 West Main St. Suite H
Freehold, NJ 07728
(732) 577-8899
800-838-0879
wellspouse.org
AARP
601 E Street NM
Washington, DC 20049
1-888-OUR-AARP
(1-888-687-2277)
AARP.com
Eldercare Locator
Provides help in finding local
services for seniors.
800-677-1116
eldercare.gov
National Family Caregiver
Support Program
Administration on Aging
Washington, DC 20201
(202) 619-0724
800-677-1116
aoainfo@aoa.gov
aoa.gov/caregivers
U.S. Department of Housing and
Urban Development
451 7th St. SW
Washington, DC 20410
Phone: (202) 708-1112
TTY: (202) 708-1455
hud.gov
Centers for Medicare and
Medicaid Services
7500 Security Blvd.
Baltimore, MD 21244-1850
1-800-MEDICARE
medicare.gov
Health Care Finance
Administration
1-877-267-2323
hcfa.gov
Major Caregiving Websites
Try #362.1968, #649.8 or
RA645.35 and RC108-RC271 or RT61 at the library.
caregiver.org, family caregiver
alliance offers programs at national, state and local levels to support and
sustain caregivers.
familycaregiving101.org
caregiving.org, national
alliance for caregiving is a non-profit coalition of national organizations
focusing on issues of family caregiving.
thefamilycaregiver.org
caregiver.com
caringtoday.com
nfcacares.org, 800-896-3650,
national family caregivers assn.
jointcommission.org/generalpublic/choices/hc_asl.htm,
helping you choose quality assisted living.
eeoc.gov/policy/docs/caregiving.html
eldercare.gov
aarp.org/caregiving
familycaregiving101.com
carersblog.wordpress.com
la4seniors.com/assisted_living.htm,
guide to finding and checking an assisted living facility
aarp.org/family/caregiving/
caregiving.com
caregiver.org
caregiversupportnetwork.org
nfcacares.org, national family
caregivers association offering support to caregivers along with free
membership in the organization.
caregiver.com
babyboomercaretaker.com
caremanager.org, geriatric care manager for a fee, does tasks.
caremanager.org, professional
caregivers.
n4a.org, national assn. of area
agencies on aging
elderaffairs.state.fl.us
agingcarefl.org
agingcarefl.org/caregiver/NationalSupport,
national family caregiver support program
medicare.gov/caregivers
aftergiving.com
extendedcare.com, 800 654 0889,
allscripts care management
caregiversnetwork.org, 866 634
9412
caregiving.com
caringinfo.org, 800 658 8898
caregiver.org
socialworkers.org
caregiverslibrary.org
nfcacares.org, national family
caregivers assn.
caregiver.com
citehealth.com
growthhouse.org
Family Caregiver Alliance 690
Market St.
#600
San Francisco, CA 94104
415-434-3388
415-435-3308(fax)
info@caregiver.org
caregiver.org
Caregiver Websites 1
Try #362.1968, #649.8 or RA645.35
and RC108-RC271 or RT61 at the library.
aahsa.org, american assn. of
homes and services for the aging.
aahsa.org/consumer_info/default.asp,
assisted living/continuing care consumer resources
aaoms.org, oral and
maxiillofacial surgeons.
aarp.org/caregive, 800-424-3410,
american assn. of retired persons.
aarp.org/family/caregiving
aarp.org/research/housing-mobility/assistedliving
abcdependentcare.com,
800-447-0543, american business collaboration for quality dependent care.
abcdependentcare.com, american
business collaboration for quality dependent care
access.digex.net/~nova,
800-try-nova, victim assistance.
achca.org, healthcare
administrators.
ache.org, health care
executives.
acor.org, click on "mailing
lists" then click on caregivers.
cancer caregiving information applies to other conditions.
acsu.buffalo.edu/drstall/hndbk0,
how to care for elders.
adapt.org, american disabled for
attendant programs today, information on alternatives to nursing homecare.
adaptenv.org, adaptive
environments.
agedcarecrisis.com
ageinfo.org
ageinfo.org/naicweb/elderloc
agenet.com
aging.lacity.org/caregivers, los
angeles.
agingindependently.org
agingnets.com, network of
private practice geriatric social workers who care for older folks for a fee.
aging-parents-and-elder-care.com
ahaf.org, american health
assistance foundation.
ahca.org, health care
administrators, publications about nursing homes.
airs.org, alliance of
information and referral systems, information in the human services.
alfa.org, assisted living federation
of america.
alfa.org, assisted living.
alfa.org/public/articles/index.cfm?cat=6,
assisted living state by state listings.
alliance1.com, alliance for
children and families
americaneldercare.com, florida
home and long-term care.
aoa.dhhs.gov, health and human
services.
asktransitions.com/testimon.html,
eldercare consulting firm.
assistguide.com
bausch.com, human resources from
bausch-lomb.
bcbsnj.com, blue cross and blue
shield of nj.
beingafamily.com/eldercare/
caphis.mlanet.org/consumer/seniorhealth.html,
caring for aging elderly parents
caps4caregiver.org, children of
aging parents
caps4caregivers.org,
800-227-7294, children of aging parents.
caps4caregivers.org, children of
aging parents
careerplanning. dead website,
try dotdash.com, thoughtco.com, thebalance.com, tripsavvy.com and verywell.com
/od/balancingworkandfamily/a/elder_care.htm
caregiver.com
caregiver.org, 800-445-8106,
family caregiver alliance.
caregiver.va.gov
caregiver911.com
caregiveraction.org, caregiver
action network; offers caregiver resources, education, support, and advocacy.
caregiverresource.net/radio_programs.php,
radio show, podcast.
caregiverresourcecenter.com
caregivers.com
caregiverscinti.com/services.htm,
caregivers health network inc of cincinnati
caregivershome.com
medicalnewstoday.com/articles/76987.php, seven tips to make life easier for
people caring for loved ones.
caregiversworld.com
caregiverzone.com
caregiving.com
caregiving.org
caregivingwithlove.com
careguide.com
careguide.net, 800-777-3319,
800-227-7294, children of aging parents
caremanager.org
caremanager.org, national assn.
of geriatric care managers
caremanager.org, national assn.
of professional geriatric managers
carepages.com carepathways.org,
877 521 9987
carepages.com
familycaregiverweb.com aahsa.org, american assn. of homes and services for the
aging.
careplans.com, nursing care
plans.
carereports.com, child and elder
care database.
carescout.com, nursing home
ratings, assisted living locator
carethere.com, 888-236-3961.
caring.com/tips
caringinfo.org ccal.org,
consumer consortium on assisted living.
catholiccharitiesswo.org/programs/caregiver.html,
caregiver assistance network works closely with churches, senior groups,
employers, and other organizations in presenting educational programs on
caregiving and related topics through the catholic charities southwestern ohio
agency.
ccal.org, consumer consortium on
assisted living.
cv.commonline.net/organizations/retiredandseniorvolunteerprogram(rsvp)
deltasociety.org, human-animal
connection.
dol.gov/dol/wb/public/wbpubs/elderc,
work and eldercare.
easterseals.org, 800-221-6827
ecarediary.com edenalt.com, pet
program.
egyptianaaa.org/caregivingindex.htm
elderabusecenter.org
eldercare.com
eldercare.com, area agencies of
aging.
eldercare.uniontrib.com, san
diego.
eldercareadvocates.com
eldercareoptions.org
eldercareteam.com
elderhostel.org, activities for
seniors.
elderlifecare.org
elderlivingsource.com
elderweb.com
eons.com
faithinaction.org, volunteers do
caregiving for neighbors.
familycareamerica.com
familycaregiving101.org/
find retirement and nursing
homes, home care and other seniors services
friendshealthconnection.org,
created by roxanneblack.com.
fsanet.org, family service
america, network of social service organizations.
ftnside.com, fountainside
eldercare inn and villas a full service assisted living eldercare community
near greenville, sc.
fullcirclecare.org
geron.org, gerontological
society.
givemeals.com, 800-999-6262,
meals on wheels.
grandviewpalms.com, luxury
assisted living
graypanthers.org, senior
activists.
healthcenter.com
healthcenter.com/senior/caregiver
healthguide.com
healthy.net
healthycaregiver.com
help4seniors.org
helpguide.org
homecaremag.com
home-recovery.com, home health care services and support to medical
professionals, virginia.
housecalls-network.com,
independent living and assisted living resources for elderly howtocare.com
iowacaregivers.org
jointcommission.org
lagunacare.com, family owned and
operated small residential care facility, sacramento, ca.
lastacts.org, palliative care.
leezasplace.org, 888 ok leeza
maveric.org/projects/study1a.html
local-nursing-homes.com
longevity. dead website,
try dotdash.com, thoughtco.com, thebalance.com, tripsavvy.com and verywell.com
/od/agingproblems/a/caregiver-men.htm, helping men be caregivers
longtermcarelocators.com
lotsahelpinghands.com, community
board for caregivers.
loveyourparentstodeath.com, a
site for elder care givers.
lsni.org, life services network,
services for the aging and the assisted living federation of america.
ltc4everyone.com/care_education_senior.htm, resources for care education
mcknightsonline.com
mealsonwheelsassn.org,
800-999-6262
medicare.gov/nursing/home.asp,
nursing homes.
medicare.gov/publications/overview,
800-medicare.
mediconsult.com
metlife.com
mindspring.com/~eldrcare
missingpatient.com, look after
your loved ones
nabweb.org, national assn. of
boards of examiners for long-term care administrators.
naela.com, elder law attorneys.
nafc.org, 800-252-3337,
incontinence.
nahc.org, assn. for homecare.
nahc.org, national assn. for
homecare.
nasua.org, state agencies of
aging.
nasw.com, national assn. of
social workers
naswdc.org, assn. of social
workers.
nationalcaregiversconference.org
aplaceformom.com assistedlivingfacilities.org thecareguide.com, the care guide
ncal.org, national assn. for
assisted living.
ncal.org, national center for
assisted living.
nccnhr.org, national citizens'
coalition for nursing home reform.
ncf.ca/disability
ncoa.org/nisc/nisc.htm, national
institute of senior centers.
ncscinc.org, council on senior
citizens.
ncsu.edu, cud@ncsu.edu,
800-647-6777, school of design, center for universal design and accessible
housing information.
newlifestyles.com, 800-820-3013
nfivc.org, interfaith volunteer
caregivers.
nho.org, 800-658-8898, hospice
organization.
nih.gov/nia, 800-222-2225,
800-222-4225, tty, institute on aging.
nncf.unl.edu/family/eldercare/tips-caregiver
nserc.org/nursing.htm, nursing
home info.
nursing-hints.com
nursingworld.org, american
nurses assn.
osher.ucsf.edu/caregivers
partnershipforcaring.org
partnershipforcaring.org, 800
989 9455
patientadvocate.org
pbs.org/wgbh/caringforyourparents/handbook
pinnaclecare.com, chronic disease
management.
privatedutyhomecare.org, the national private duty association
aoa.gov/aoaroot/aoa_programs/hcltc/ltc/index.aspx, long term care options.
ptct.com/html/industry
pw2.netcom.com/~lehdoll/caretaker1.html
qualityeldercare.com
rci.gsw.edu, rosalyn carter
institute for caregiving.
rci.gsw.edu, rosalyn carter
institute.
referenceforbusiness.com/small/di-eq/eldercare.html
retirenet.com
river2u.com
sdslane.org/inhomeres.html,
senior and disabled services (s&ds) in-home care resources
seniorbridge.net
seniorcarectrs.com, senior care
centers of america.
senior-care-education.dewifansite.nl
senior-directions.com
seniormag.com/caregiverresources/handbook/index.htm,
caregiver's handbook
seniormag.com/services/home_health_care
seniornet.org
senioroutlook.com
seniorresource.com, 877 793 7901
sharingcare.com, 866-736-4695,
alzheimer's, caregiving.
skillednursingfacilities.org
theinfocenter.info/seniors/cms.php nationalhomecarenetwork.com
socialworkers.org
soros.org/death, palliative
care.
ssa.gov, 800-ssa-1213, social
security.
strengthforcaring.com, community
for family caregivers.
temple.edu/cil, center for
intergenerational learning.
thecareguide.com, find
retirement and nursing homeshome care and other seniors services
thefamilycaregiver.org
thefamilycaregiver.org, 800 896
3650
thehomecaredirectory.com, lists
hospices and homecare agencies.
the-park.com/kairos
thevintagegroup.net, assisted
living residences.
trustcaregivers.com
usa.gov/citizen/topics/health/caregivers.shtml
assistedlivingguide.com eldercare911handbook.com
visitingangels.com
vnaa.org, visiting nurses.
wellspouse.org, 800-838-0879.
whirlpoolcorp.com
workingwomenplus.com, helping
adult children cope with aging parents.
Caregiver Websites 2
caregiver.on.ca, Caregiver Network, Canada.
listserv.acor.org/archives/caregivers.html36, CAREGIVERS;
Email list, ACOR.
cancerbacup.org.uk/info/coping.htm, Coping at home: caring
for someone with advanced cancer
friendly4seniors.com, Friendly 4 Seniors, USA
cancerbacup.org.uk/info/talk.htm, Lost for words; how to
talk to someone with cancer
nfcacares.org, National Family Caregivers Association, USA
listserv.acor.org/archives/tc-supporters.html,
TC-SUPPORTERS; Testicular Cancer Supporters Discussion Group
cycleofhope.org/tips.html, Tips for Caregivers
cancer.gov/about-cancer/coping/caregiver-support
helpforcancercaregivers.org/
helpforcancercaregivers.org/library
abcdbreastcancersupport.org,
abcd - after breast cancer diagnosis.
caregiveraction.org, caregiver action network.
caregiver.com
helpforcancercaregivers.org, help for cancer
caregivers.
thingsiwishidknown.com, things i wish i'd
known.
cancer.org/treatment/caregivers, american
cancer society - caregiver support.
advocacyconnector.com/
freecancerresources.com/
cancercare.org/
caregiveraction.org/
caregiverstress.com/
caregiver.org/
mycancercircle.lotsahelpinghands.com/caregiving/home/
caregiverslibrary.org/
netofcare.org/
strengthforcaring.com/
Caregiver Organizations
Family Caregiver Alliance
180 Montgomery St
#1100
San Francisco, CA 94104
(800) 445-8106
Fax: (415) 434-3508
info@caregiver.org
caregiver.org
National Alliance for Caregiving
4720 Montgomery Lane
5th Floor
Bethesda, MD 20814
info@caregiving.org
caregiving.org
National Caregivers Library
901 Moorefield Park Drive
#100
Richmond, VA 23236
(804) 327-1112
caregiverslibrary.org
The National Family Caregivers
Association
10400 Connecticut Avenue
#500
Kensington, MD 20895-3944
(800) 896-3650
Fax: (301) 942-2302
info@thefamilycaregiver.org
thefamilycaregiver.org
Caregiver Software to be Organized
carebinders.com
caregiverstouch.com
Caregiving Resources
Assisted Living Federation Assn.
of America
10300 Eaton Pl.
#400
Fairfax, Va 22031
703-691-8100
Fax: 703-691-8106
info@alfa.org
alfa.org
Free Guide and Checklist and
list of providers in your state. I got
26 pages worth of facilities for California.
Consortium On Assisted Living
703-533-8121
ccal.org
National Center for Assisted
Living
800-555-9414
ncal.org
American Assn. of Homes &
Services for the Aging
901 E St. NW
#500
Washington, DC 20004-2011
800-508-9442
202-783-2242
aahsa.org
American Assn. of Retired
Persons
601 E Street, NW
Washington, DC 20005
800-424-3410
202-434-3470
Fax: 202-434-6483
aarp.org
Assisted Living Federation of
America
10300 Eaton Place
#400
Fairfax, VA 22030
703-691-8100
Fax: 703-691-8106
alfa.org
Information about choosing an
assisted living residence. Consumer
brochure. Online directory of assisted
living.
CareTrust Publications
Pob 10283
Portland, OR 97296-0283
800-565-1533
503-221-1315
Fax: 503-221-7019
Department of Health and Human
Services Medicare Office
7500 Security Blvd.
Baltimore, MD 21244
800-Medicar
800-820-1202
medicare.gov
Eldercare Locator
800-677-1116
nfa.org
eldercarelocator.com
Directs you to helping resources
in your local area.
Family Caregiver Alliance
690 Market Street
#600
San Francisco, CA 94104
415-434-3388 Fax: 415-434-3508
gen-info@caregiver.org
caregiver.org
Family Caregivers of The Aging
409 3rd St. Sw
2nd Fl.
Washington, Dc 20024
800-424-9046
Resource center to caregivers
and senior facilities.
LA Shanti
1616 North Labrea Ave.
Los Angeles, CA 90028
(323) 962-8197
Fax: (213) 962-8299
lashanti.org
National Alliance for Caregiving
4720 Montgomery Ln.
#642
Bethesda, Md 20814
703-299-9300
800-930-1357
301-718-8444 Fax: 301-652-7711
caregiving.org
National Family Caregivers
Association
10605 Concord St.
#501
Kensington, MD 20895
800-896-3650
nfcacares org
The National Association for
Home
Care
228 Seventh St. NE
Washington, DC 20003
202-547-7424
nahc.org
National Federation of
Interfaith
Volunteer Caregivers
368 Broadway
Kingston, NY 12401
914-331-1358
nfivc.org
National Self-Help Clearinghouse
25 West 43rd St.
#620
NYC 10036
(212) 354-8525
selfhelpweb.org
North Carolina State University
center for Universal Design
bok 8613
Raleigh, NC 27695-8613
800-647-6777
919-515-3082
Fax: 919-515-3023
design.ncsu.edu/cud
Home designs for disabled
people.
Rosalyn Carter Institute
For Human Development
Georgia Southwestern College
800 Wheatley St.
Americus, GA 31709-4693
912-928-1234
gsw.edu
Visiting Nurse Association of
America
11 Beacon St.
Boston, MA 02108
617-523-4042
vnaa.org
Well Spouse Foundation
30 East 40th Street
NYC 10018
800-838-0879
212-685-8815
Fax: 212-685-8676
wellspouse.org
Provides support to partners of
chronically ill and/or disabled people.
Family Caregiver Websites
parentingmymom.blogspot.com
aplaceformom.com/senior-care-resources/articles/
agingparentsandeldercare.com
aging-parents-and-elder-care.com
amazon.com, hard questions for
adult children and their aging parents by susan piver.
caps4caregivers.org, 800 227
7294, children of aging parents.
doityourself.com/senior/agingparents.htm
eldercarelink.com/articles/checklist-for-adult-children.html
extension.iastate.edu/homefamily/aging/caregiving/acap_curriculum.htm
fcs.tamu.edu/families/aging/elder_care/building_positive_relationships.php
feddesk.com/freehandbooks/1014-4.pdf,
aging parents and adult children together.
ftc.gov/bcp/conline/pubs/services/apact/
gbod.org/coa/articles.asp,
center on aging and older adult ministries.
info.wustl.edu/tips/page/normal/6190.html,
adult children in the dark about aging parents.
k2z-ebooks.com, book on the
subject.
kutv.com/guides/parenting/story.aspx,
adult children share care of aging parents.
mediate.com/articles/generational.cfm
nfcacares.org, 800-896-3650,
national family caregivers assn.
post-gazette.com/pg/06023/643035.stm,
building project helps adult children care for aging parents.
pueblo.gsa.gov/cic_text/misc/aging-parents/guardianship.htm
seniorliving. dead website,
try dotdash.com, thoughtco.com, thebalance.com, tripsavvy.com and verywell.com
/od/retirement/a/senior_sandwich.htm
seniorsmartliving.com/seniors-and-aging-children.html
thesandwichgeneration.com, aging
parents, adult children and grandchildren.
tpronline.org, youth with ill
parents.
workingwomenplus.com/articles.html,
articles on aging parents and adult children coping.
yourfamilyshealth.com/aging/care
Children of Aging Parents
1609 Woodbourne Rd.
#302
Levittown, Pa 19057
215-945-6900
800-227-7294
careguide.net
caps4caregivers.org
Answers: The Magazine for Adult
Children of Aging Parents
75 Seabreeze Dr.
Richmond, Ca 94804-7411
Local Senior Programs/
Neighborhood Senior Services
Go to your favorite search
engine and type in:
local senior programs your city,
state
local senior programs houston,
texas
neighborhood senior services
your city, state
nonprofit senior help your city,
state
norcblueprint.org, naturally
occuring retirement community, lists nonprofit programs.
Set up a Caregiver
Website
Create your own personal website
to provide friends and families with a central hub to keep in touch and to
organize things if several people are involved in caregiving for one person.
carecentral.com
caringbridge.org, free.
lotsahelpinghands.com, calendar
software to stay organized.
Leeza's Place Community
Centers That Help Caregivers With Knowledge and Support
The Leeza Gibbons Memory
Foundation
3050 Biscayne Blvd.
#605
Miami, FL 33137
(888) OK-Leeza
leezasplace.org
info@leezasplace.org
Leeza's Place at Olympia Medical
Center
5901 West Olympic Blvd
#300A
Los Angeles, California 90036
323-932-5414
Circle of Care Leeza's Place
5000 Van Nuys Boulevard
#110
Sherman Oaks, CA 91403
(818) 817-3259
Health First Leeza's Place
3661 Babcock Street,
Melbourne, Fl 32901
(321) 951-7118
Fax: (321) 951-7280
Leeza's Place at Memorial
Hospital Pembroke
2261 N. University Drive
#103
Pembroke Pines, FL 33024
(954) 967-7240
Fax: (954) 967-7241
Leeza's Place at Provena Saint
Joseph Medical Center
113 Republic Avenue
Joliet, IL 60435
(815) 741-0077
Fax: (815) 741-7069
Leeza's Place at WellMed
14100 Nacogdoches Rd
#120
San Antonio, TX 78247
(210) 599-4614
Fax: (210) 599-4093
Leeza's Place by WellMed
at the Bob Ross Senior Center
2219 Babcock Road
San Antonio, TX 78222
(210) 207-5310
Fax: (210) 589-6539
Leeza's Place by WellMed
In Lower Rio Grande Valley
5401 S. McColl Road
Edinburg, TX 78539
956-566-2671
Leeza's Place at GLEH
1602 N. Ivar Avenue
Hollywood, CA 90028
Grandparents as Caregivers
The Administration on Aging,
aoa.gov, has programs to help grandparents who are raising grandchildren. Call the eldercare locator for more
information, 800-677-1116, n4a.org. You
can earn money by being a foster parent to either children or other seniors.
aoa.gov, administration on
aging.
cwla.org, child welfare league.
ewol.com/brookdale, brookdale
foundation, relatives as parents program.
fostercare.org
grandparenting.org
grandsplace.com
gu.org, generations united.
nfpainc.org, 800-557-5238,
national foster parent assn.
Aarp Grandparent Information
Center
601 E. St. Nw
Washington, Dc 20049
800-424-3410
202-434-2296
gic@aarp.org
aarp.org
Creative Grandparenting
100 W. 10th St.
#1007
Wilmington, De 19801
302-656-2122
Fax: 302-656-2123
Department of Health and Human
Services
200 Independence Ave. Sw
Washington, Dc 20201
202-619-0257
hhs.gov
os.dhhs.gov
aoa.dhhs.gov, administration on
aging.
acf.dhhs.gov, administration for
children and families.
Eldercare Locator
800 677 1116
n4a.org
Foster Grandparents Program
National Senior Service Corps
1201 New York Ave. Nw
Washington, Dc 20525
800-424-8867
800-942-2677
202-606-5000
cns.gov/senior
If you're a low income senior,
you can get paid to be a foster grandparent for 20 hours a week.
National Coalition of
Grandparents
137 Larkin St.
Madison, Wi 53705
608-238-8751
Older American Volunteer
Programs
Action
806 Connecticut AVE. NW
#1006
Washington, DC 20525
800-424-8867
800-424-8580
They have a foster grandparent
and senior companion program where you get paid to help out.
Retired Senior Volunteer Program
1100 Vermont AVE. NW
Washington, DC 20525
202-606-4851
800-424-8867
Advocates volunteer work like
foster grandparents.
Rocking, Inc.
Raising Our Children's Kids
Pob 96
Niles, Mi 49102
616-683-9038
Volunteers of America
#400
3939 N. Causeway Blvd.
Metaire, La 70002
504-837-2652
Fax: 504-837-4200
voa.org
Foster grandparent and senior
volunteer programs.
Volunteer Grandparents
1734 W. Broadway
#3
Vancouver, Bc V6j 1y1
Be a foster grandparent.
Cancer
Caregiver Websites
patientresource.com/Finding_Caregivers_and_Counselors.aspx
cancer.org/treatment/caregivers/index
cancer.gov/cancertopics/coping/familyfriends
abta.org/care-treatment/caregivers
cancer.org/
cancer.org/treatment/supportprogramsservices/onlinecommunities/participateinacancereducationclass/icancopeonline/index
apos-society.org/
cancercare.org/
caringbridge.org/
caregiver.org/
lotsahelpinghands.com/
nlm.nih.gov/medlineplus/
nlm.nih.gov/medlineplus/caregivers.html
canceradvocacy.org/
/caregiveraction.org/
sharethecare.org/
Chapter 4. Eldercare Resources
Eldercare Websites/
Senior Care Websites
The field of eldercare refers to
caring for older people either at home or in some kind of facility like a
nursing home, adult daycare center, continuous care retirement home, etc.
Some elders don't need
eldercare. They live in their own homes
or in a retirement community.
Try this formula:
elderweb.com/region/**/**.htm
elderweb.com/region/al/al.htm
elderweb.com/region/nm/nm.htm
howtodothings.com/family-and-relationships/a4142-how-to-find-senior-care-resources.html
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