Cancer Organizations

 

Volume 34. Cancer Organizations Guide

 

Chapter 1. Mega-Cancer Organizations List

 

The Big, Older List from cancer.gov

 

This is an old list from cancer.gov, 800-4-CANCER, LiveHelp Online Chat

 

American Cancer Society

250 Williams Street

Atlanta, GA 30303

404-320-3333 (English only)

1-800-227-2345 (1-800-ACS-2345) (calls in English and Spanish)

 

The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization. The ACS offers a variety of services and programs for patients and their families. The ACS also supports research, provides printed materials and conducts educational programs. Staff can accept calls and distribute publications in Spanish.

 

Categories: Health Insurance (includes co-payments), Lodging and Travel, Medical Supplies, Wigs, Prostheses, Medication (includes co-payments), Screening, Treatment, Peer/Buddy Programs, Support Groups

 

American Childhood Cancer Organization

POB 498 (Mailing Address)

Suite A, 10920 Connecticut Avenue (Physical Address)

Kensington, MD 20895

301-962-3520 (English only)

1-855-858-2226 (English only)

staff@acco.org

The American Childhood Cancer Organization (ACCO) is a nonprofit organization that provides information for children and adolescents with cancer and their families, advocates for their needs and supports research. ACCO publishes books on childhood cancer that provide information on all aspects of a diagnosis of childhood cancer (treatment information, financial help, emotional and social issues, late effects of treatment and more). ACCO will provide a free copy of any of their books to families of children with cancer. ACCO has over 40 local chapters (affiliates) that provide direct support to patients and families through hospital and community based programs, such as face-to-face and online support groups and day and sleepover childhood cancer camps. Affiliates also provide emergency financial assistance for rent or mortgage payments, car repairs, transportation, pre-paid gas cards, groceries, parking and more. ACCO maintains a list of other organizations to which eligible families may apply for financial assistance.

Categories: Childhood, General Living Expenses, Lodging and Travel, Scholarships and Camps, Advocacy, Support Groups

 

Bladder Cancer Advocacy Network

4813 St. Elmo Avenue

Bethesda, MD 20814

301-215-9099 (English only)

1-888-901-2226 (1-888-901-BCAN) (English only)

 

The Bladder Cancer Advocacy Network (BCAN) is a nonprofit organization dedicated to increasing public awareness about bladder cancer, advancing bladder cancer research and providing educational and support services for the bladder cancer community. BCAN offers an online support community and in-person support groups where survivors, families, friends and caregivers can connect. The Bladder Cancer Profiler (available on the BCAN Web site) is an interactive tool designed to help patients make treatment decisions. BCAN conducts patient forums at various sites across the country and brings together medical professionals, researchers, bladder cancer patients, caregivers and loved ones.

Categories: Bladder, Other Cancers, Advocacy, Support Groups

 

Cancer and Careers

19th Floor

286 Madison Avenue

New York, NY 10017

212-685-5955, ext. 132 (English only)

cancerandcareers@cew.org

Cancer and Careers empowers and educates people with cancer so that they may thrive in their workplace. The organization provides a comprehensive Web site (in both English and Spanish), free publications, career coaching and a series of support groups and educational seminars. Resources are geared toward employees with cancer and their healthcare providers and coworkers. Cancer and Careers is a program of the CEW Foundation, the charitable arm of Cosmetic Executive Women, Inc., a nonprofit trade organization of executives in the beauty, cosmetics, fragrance and related industries.

Categories: Educational Programs, Legal Issues, Support Groups

 

Cancer Support Community

Suite 500

1050 17th Street, NW.

Washington, DC 20036

202-659-9709 (English only)

1-888-793-9355 (English only)

cancersupportcommunity.org

The Cancer Support Community (CSC) is dedicated to providing support, education and hope to people affected by cancer. It offers a global network of personalized services and education for all people affected by cancer. These free services include support groups, counseling, education and healthy lifestyle programs. These support services are available online and through a network of 50 local affiliates with more than 100 satellite locations.

Categories: Counseling, Educational Programs, Support Groups

 

Cancer Survivors Network

The Cancer Survivors Network (CSN) is an American Cancer Society Web-based service for cancer survivors, their families, caregivers and friends. CSN is a noncommercial, private, secure way to find and communicate with others who share your interests and experiences. Membership in CSN is free, but in order to access all areas of CSN, registration with a valid e-mail address is required. Services provided include discussion boards and access to chat rooms; ability to create your own "CSN My Space" where you can tell your story, blog, or recommend resources; and a free monthly CSN newsletter.

Categories: Support Groups

 

CancerCare

22nd Floor

275 Seventh Avenue

New York, NY 10001

212-712-8400 (Administrative)

1-800-813-4673 (1-800-813-HOPE) (English and Spanish)

info@cancercare.org

CancerCare provides free professional support for anyone affected by cancer. CancerCare programs include counseling and support groups, cancer education workshops, information on financial assistance and practical help. Counseling is provided by oncology social workers and is available over the and face-to-face (available at offices in New York City, Long Island, New Jersey and Connecticut). Support groups are offered online, via teleand in face-to-face groups. CancerCare also provides free publications, some in Spanish.

 

Some financial assistance may be available to women with cancer for cancer-related costs such as transportation to and from cancer treatment, child care and home care. At this time, only limited assistance is available for men with cancer. For details about eligibility, available funding and how to apply, visit the website or call the toll-free number. A section of the CancerCare Web site is available in Spanish.

Categories: General Living Expenses, Health Insurance (includes co-payments), Lodging and Travel, Medication (includes co-payments), Treatment, Counseling, Educational Programs, Support Groups

 

The Cholangiocarcinoma Foundation

5526 West 13400 South

#510

Salt Lake City, UT 84096

801-999-0455 (English only)

info@cholangiocarcinoma.org

The Cholangiocarcinoma Foundation strives to unite patients, physicians, caregivers and public and private institutions in the collaboration, understanding, research and education of cholangiocarcinoma (bile duct cancer). The Foundation provides current information on cholangiocarcinoma on its Web site; a bi-annual newsletter; a Discussion Board for use by patients, friends, caregivers and loved ones suffering with cholangiocarcinoma; and Live Chat to speak with someone about cholangiocarcinoma.

Categories: Other Cancers, Support Groups

 

CureSearch

Suite 600

4600 East West Highway

Bethesda, MD 20814

626-447-1674 (English and Spanish)

1-800-458-6223 (English only)

info@curesearch.org

CureSearch National Childhood Cancer Foundation supports the work of the Children's Oncology Group (COG), the world's largest cooperative cancer research organization that treats more than 90% of all children with cancer. CureSearch provides information for the newly diagnosed and patients in treatment, at the end of treatment and after treatment. A searchable Resource Directory is available that includes local, national and international organizations that offer resources for helping community members, parents and kids with childhood cancer. A Discussion Board allows anyone affected by childhood cancer to connect and share information, experiences and advice. Information on the Web site is available in Spanish.

Categories: Childhood, Support Groups

 

International Association of Laryngectomees

Suite 316

925B Peachtree Street, NE.

Atlanta, GA 30309

678-767-2955 (English only)

1-866-425-3678 (1-866-IAL-FORU) (English only); 1-800-305-0117 (Speak to a Larynx Cancer Survivor in English only)

ialhq@theial.com

The International Association of Laryngectomees (IAL) is a nonprofit, voluntary organization composed of member clubs and recognized regional organizations. These clubs are generally known as Lost Chord or New Voice clubs. Club membership ranges from 10 to more than 300 laryngectomees. The purpose of the IAL is to assist these local clubs in their efforts toward the total rehabilitation of the laryngectomee. The IAL exchanges ideas and disseminates information to member clubs and to the public, facilitates the formation of new clubs, fosters improvement in laryngectomee programs and improves the minimum standards for teachers of post-laryngectomy speech. The IAL Voice Institute trains laryngectomees and prospective instructors of speech in an intensive 5-day course that emphasizes speech restoration as the central component to multidisciplinary total rehabilitation. A directory of laryngectomee-experienced speech instructors in the United States is available on the IAL Web site. Some Spanish materials are also available.

 

Categories: Head and Neck, Oral, Other Cancers, Educational Programs, Health Professional Referrals, Support Groups

 

International Myeloma Foundation

Suite 206

12650 Riverside Drive

North Hollywood, CA 91607

818-487-7455 (English and Spanish)

1-800-452-2873 (1-800-452-CURE) (English and Spanish)

TheIMF@myeloma.org

The International Myeloma Foundation (IMF) is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure. The IMF Hotline answers questions from patients and family members and provides information about medical services, pharmaceutical access and patient support groups. Free IMF publications include the IMF Multiple Myeloma Patient Handbook; Multiple Myeloma: A Concise Review of the Disease and Treatment Options; and the Understanding Series - treatment specific brochures on new therapies and clinical trials. The Foundation conducts Patients and Family Seminars to educate patients on the latest information about current therapies, research advances and emerging treatment options. A comprehensive network of support groups from around the world are also available to assist patients and their families. The IMF operates Bank-On-A-Cure(r), a unique global gene bank to advance myeloma research. The IMF's research grant program funds research projects around the world for both multiple myeloma and amyloidosis.

Categories: Multiple Myeloma, Educational Programs, Support Groups

 

International Waldenstrom's Macroglobulinemia Foundation

3932D Swift Road

Sarasota, FL 34231

941-927-4963 (English only)

info@iwmf.com

 

The International Waldenstrom's Macroglobulinemia Foundation (IWMF) provides encouragement and support to people with Waldenstrom macroglobulinemia (WM) and offers information and education programs that address patient's concerns and promotes and supports research leading to a cure. The IWMF offers many patient publications, including a New Patient Information Package (Info Pak). IWMF-Talk is an e-mail talklist for discussion of every aspect of WM (available in English, French, German, Spanish, Nordic Countries, U.K.). TeleLifeline Support provides telenumbers of IWMF volunteers who will answer questions about their first-hand experience with specific treatment for WM. IWMF also provides teleand e-mail network lists that connect patients and caregivers. IWMF provides funding to researchers studying a treatment or cure for Waldenstrom macrogloblinemia or related blood cancer. Information on the Web site is available in French, Spanish and German.

Categories: Non-Hodgkin Lymphoma, Educational Programs, Support Groups

 

Kidney Cancer Association

POB 96503

Washington, DC 20090

847-332-1051 (English and Spanish)

1-800-850-9132 (English and Spanish)

kidney.cancer@hotmail.com

The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers and other health professionals globally. The KCA offers a variety of services: educating patients and families and helping those with kidney cancer cope with the disease, advancing medical research and providing education for physicians and nurses and serving as an advocate on behalf of patients. Contact the Nurse Hotline to find answers to questions about the treatment of kidney cancer and referrals to physicians in the United States. The KCA Web site provides free publications, calendars for support groups and patient conferences, online forums and chat rooms and videos and podcasts. KCA English and Spanish.

Categories: Kidney, Other Cancers, Advocacy, Health Professional Referrals, Support Groups

 

Leukemia and Lymphoma Society

Suite 310

1311 Mamaroneck Avenue

White Plains, NY 10605

914-949-5213 (English only)

1-800-955-4572 (English and Spanish)

The Leukemia and Lymphoma Society (LLS) is dedicated to funding blood cancer research, public and professional education, advocacy and community services. Services include family support groups led by health care professionals and First Connection (Peer-to-Peer) Program that links patients and their families with a trained volunteer who has experienced a similar situation. Numerous other resources are available for patients and caregivers and include education programs, online support programs and information about home-care services. The LLS provides a limited amount of financial assistance ($150) to help patients offset expenses. To apply, a patient must be a U.S. resident and be in active treatment or ongoing medical follow-up for leukemia, lymphoma, myeloma, myelodysplastic syndromes or another blood cancer. LLS's headquarters is located in New York and chapter offices are located across the United States.

 

Categories: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, General Living Expenses, Advocacy, Educational Programs, Peer/Buddy Programs, Support Groups

 

Living Beyond Breast Cancer

Suite 224

354 West Lancaster Avenue

Haverford, PA 19041

484-708-1550 (English only); 610-645-4567 (English only)

1-888-753-5222 (1-888-753-LBBC) (Survivors' Helpline) (English and Spanish)

mail@lbbc.org

Living Beyond Breast Cancer (LBBC) aims to empower all women affected by breast cancer to live as long as possible with the best quality of life. LBBC provides specialized programs and services for the newly diagnosed, young women, women with advanced breast cancer, women at high risk for developing the disease and African American and Latina women. The LBBC Survivors' Helpline is a national, toll-free teleservice staffed by trained volunteers affected by breast cancer. Helpline volunteers offer guidance, information and hope. Spanish-speaking helpline volunteers are available. LBBC publishes Insight (quarterly educational newsletter), provides interactive message boards and offers comprehensive guides, brochures and transcripts and audio recordings of conferences. LBBC also offers education programs and services to help health care professionals counsel women affected by breast cancer. The LBBC Web site is available in Spanish.

Categories: Breast, Advocacy, Educational Programs, Peer/Buddy Programs, Support Groups

 

Lymphoma Foundation of America

1100 North Main Street

Ann Arbor, MI 48104

734-222-1100 (Main Office) (English only)

1-800-385-1060 (Patient Hotline) (English only)

LFA@lymphomahelp.org

The Lymphoma Foundation of America (LFA) is an independent, nonprofit charitable organization dedicated to helping lymphoma patients and their families find the best care available. LFA offers one-on-one counseling via the patient hotline, referrals for legal advice and second opinions and information on starting a local support group. LFA also monitors and disseminates information about research into possible causes of lymphoma.

Categories: Hodgkin Lymphoma, Non-Hodgkin Lymphoma, Counseling, Health Professional Referrals, Legal Issues, Support Groups

 

Man to Man

404-320-3333 (English only)

1-800-227-2345 (1-800-ACS-2345) (English and Spanish)

Man to Man is an American Cancer Society (ACS) program designed to help men cope with prostate cancer by offering community-based education and support for patients and family members. Activities and services may include one-on-one visits with a prostate cancer survivor, community education (speaker's bureau), a Man to Man newsletter and outreach to high-risk groups, such as African American men and collaboration with health care providers. Program services and activities vary depending on the location. Some Man to Man groups may invite wives and partners to attend meetings. In other locations, wives and partners may meet separately in a group called Side by Side.

Categories: Prostate, Educational Programs, Peer/Buddy Programs, Support Groups

 

The Mautner Project

Suite 710

1875 Connecticut Avenue, NW.

Washington, DC 20009

202-332-5536 (English only)

1-866-628-8637 (1-866-MAUTNER) (English only)

info@mautnerproject.org

The Mautner Project is committed to improving the health of women who partner with women--including lesbian, bisexual and transgender (LBT) individuals--through direct and support service, education and advocacy. The Mautner Project offers and online support, nationwide community outreach and health-related publications targeted for the LBT community. The Mautner Project provides in-person bereavement and smoking cessation support groups and online groups for survivors of serious illness, caregivers and bereavement. Removing the Barriers(r) (RTB) is a training program designed to educate and bring awareness to health care providers about lesbian health care needs. The Spirit Health Education (S.H.E.) Circle(r) is a national health education program focused on African American women who partner with women. The program uses the multidimensional influences of culture and sexuality. EDUcate is a new breast health program that focuses on the needs of low-income African American lesbian and bisexual women.

Categories: Breast, Educational Programs, Support Groups

Melanoma International Foundation

 

Melanoma International Foundation

250 Mapleflower Road

Glenmoore, PA 19343

610-942-3432 (Philadelphia Area) (English only)

 

1-866-463-6663 (Outside Philadelphia Region) (English only)

cpoole@safefromthesun.org

The Melanoma International Foundation (MIF) creates and supports melanoma programs for the prevention, early detection and treatment of melanoma. Educating patients about clinical trials as well as providing funds for patient travel and lodging for clinical trials and second opinions are included in MIF's patient services. MIF provides a hotline to help melanoma patients and their families understand their pathology, what clinical trials are available and how to get the best palliative care. MIF also provides early detection education and teaches skin self-examination and sun safety. An online forum is available to provide community support for people with melanoma and their caregivers. MIF's educational programs range from educating new parents through high school students. MIF also offers webinars and workplace education programs to bring melanoma awareness and education to corporations across the country.

Categories: Melanoma, Other Cancers, Lodging and Travel, Educational Programs, Support Groups

Mesothelioma Applied Research Foundation

 

Mesothelioma Applied Research Foundation

1317 King Street

Alexandria, VA 22314

703-879-3820 (English only)

1-877-363-6376 (1-877-END-MESO) (English only)

info@curemeso.org

The Mesothelioma Applied Research Foundation is a nonprofit collaboration of patients and families, physicians, advocates and researchers dedicated to eradicating mesothelioma. Services provided include a dedicated nurse practitioner who works with patients to provide current information on mesothelioma and to connect patients with mesothelioma treatment specialists. The practitioner also offers emotional support and access to community forums available through their Web site. An annual symposium offers patients, family members and caretakers the opportunity to learn from and interact directly with the world's top experts on mesothelioma. Financial aid for medical travel is available to newly-diagnosed patients to consult with a mesothelioma expert. Contact the Mesothelioma Applied Research Foundation to obtain a free book titled "100 Questions and Answers About Mesothelioma." The Mesothelioma Applied Research Foundation also funds research projects around the world.

Categories: Mesothelioma, Lodging and Travel, Educational Programs, Health Professional Referrals, Support Groups

MyLifeLine.org Cancer Foundation

 

MyLifeLine.org Cancer Foundation

55 Madison St., Suite 750

Denver, CO 80206

720-883-8715

 

support@mylifeline.org

MyLifeLine.org is a nonprofit organization where cancer patients, survivors and caregivers can create free, customized websites that allow friends and family to be informed and involved in their cancer journey. A patient, family member or friend creates the site and invites guests to visit and participate in the online community. Patients can share their cancer experience and receive support via messages and photos.

Categories: Other Cancers, Peer/Buddy Programs, Support Groups

 

National Bone Marrow Transplant Link

Suite 108

20411 West 12 Mile Road

Southfield, MI 48076

248-358-1886 (English only)

1-800-546-5268 (1-800-LINK-BMT) (English only)

info@nbmtlink.org

The National Bone Marrow Transplant Link (nbmtLink) is a nonprofit organization specifically serving stem cell transplant patients, their caregivers, families and health professionals. The nbmtLink provides information and support services, including a volunteer peer support program, resource referrals for patients and health professionals and educational guides, videos and Webcasts. The free nbmtLINK Online Library contains hundreds of journal articles, booklets and reference materials, as well as comprehensive links to additional online information. Information on how to become a donor is also available.

Categories: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, Educational Programs, Peer/Buddy Programs, Support Groups

 

The National Children's Cancer Society

Suite 800

One South Memorial Drive

St. Louis, MO 63102

314-241-1600 (General) (English only)

1-800-532-6459 (1-800-5-FAMILY) (English only)

pbeck@children-cancer.org

 

The National Children's Cancer Society (NCCS) strives to improve the quality of life for children with cancer and their families worldwide. The NCCS provides support through four programs: Pediatric Oncology Program (offers direct financial support), Care to Share Cancer Connection Program (Internet support network for families), Global Outreach Program (distributes donated cancer-related pharmaceuticals) and Beyond The Cure (helps childhood cancer survivors integrate the cancer experience into their new lives). The Pediatric Oncology Program financial support includes meals during treatment, transportation to and from treatment, long distance telecards, lodging during treatment, health insurance premiums and medical expenses not covered by insurance. The application for financial assistance is available in both English and Spanish. In addition, NCCS offers free publications for order or download from their Web site, as well as access to helpful videos and educational teleconferences.

Categories: Childhood, General Living Expenses, Health Insurance (includes co-payments), Lodging and Travel, Scholarships and Camps, Support Groups

 

National Lymphedema Network

Suite 235

116 New Montgomery Street

San Francisco, CA 94105

415-908-3681 (English only)

1-800-541-3259 (English only)

nln@lymphnet.org

The National Lymphedema Network (NLN) provides education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. The NLN offers a toll-free support hotline and provides referrals to lymphedema treatment centers, health care professionals, training programs and support groups. NLN produces a quarterly newsletter (LymphLink) with information about medical and scientific developments and educational materials for health care professionals and patients. The NLN Marilyn Westbrook Garment Fund provides funds for lymphedema appliances, compression sleeves/stockings and alternative garments. NLN's Netpal/Penpal program provides a forum for people suffering with primary lymphedema, parents and their children and people with lower extremity and upper/breast cancer-related lymphedema. The forums allow people to share their experiences and talk with others in similar situations. Some Spanish-language materials are available.

Categories: Medical Supplies, Wigs, Prostheses, Treatment, Health Professional Referrals, Peer/Buddy Programs, Support Groups

 

Planet Cancer - a LIVESTRONG initiative

1-855-220-7777 (English and Spanish)

Planet Cancer is a LIVESTRONG initiative that focuses on the unique needs and issues of young adults (ages 18 to 40) with cancer. Planet Cancer provides an online community where young adults with cancer from around the world may discuss what's on their minds. A weekend retreat program brings together young adults with cancer for recreation and personal exploration with their peers, helping them to forge connections that will sustain them as they move on with their lives, in or out of treatment. The Planet Cancer website offers information, connections, entertainment and support

 

Categories: Scholarships and Camps, Educational Programs, Peer/Buddy Programs, Support Groups

 

Prostate Cancer Foundation

1250 Fourth Street

Santa Monica, CA 90401

310-570-4700 (English only)

1-800-757-2873 (1-800-757-CURE) (English only)

info@pcf.org

The Prostate Cancer Foundation (PCF) is a leading source of support for prostate cancer research to discover better treatments and a cure for prostate cancer. PCF connects patients, loved ones, care providers and scientists to critical updates, the latest developments, best practices and treatment news. PCF produces comprehensive guides (e.g., "Report to the Nation on Prostate Cancer: A Guide for Men and Their Families") available for download or order on the PCF Web site. The Foundation has funded more than 1,500 research projects at nearly 200 institutions worldwide. PCF also advocates for greater awareness of prostate cancer and increased government spending on prostate cancer.

Categories: Prostate, Advocacy, Support Groups

 

Reach to Recovery

404-320-3333 (English only)

1-800-227-2345 (1-800-ACS-2345) (English and Spanish)

Reach to Recovery is an American Cancer Society (ACS) program designed to help both women and men cope with breast cancer. Trained volunteers support patients through face-to-face visits or by before, during and after breast cancer treatment. Program services and activities vary depending on the location. To locate a Reach to Recovery program in your area call the toll-free number or search online at the link provided in the Additional Resources section.

Categories: Breast, Educational Programs, Peer/Buddy Programs, Support Groups

 

Sharsheret

1086 Teaneck Road

Suite 3A

Teaneck, NJ 07666

201-833-2341

1-866-474-2774

info@sharsheret.org

 

Sharsheret, Hebrew for "chain", is a national organization which supports young Jewish woman and families facing breast and ovarian cancer. They offer a peer support network that connects women newly diagnosed or at high risk of developing breast or ovarian cancer with others who share similar diagnoses and experiences. They also provide support and education programs addressing advanced breast cancer, genetics, parenting, cosmetic side effects of treatment as well as programs for caregivers and those facing ovarian cancer. Genetic counselors are available to discuss family history, concerns about cancer risk and the implications of genetic counseling. Sharsheret's programs are open to all women and men.

Categories: Breast, Ovarian, Educational Programs, Peer/Buddy Programs, Support Groups

 

Starlight? Children's Foundation

Suite M100

5757 Wilshire Boulevard

Los Angeles, CA 90036

310-479-1212 (English and Spanish)

1-800-315-2580 (English and Spanish)

info@starlight.org

Starlight? Children's Foundation is a nonprofit organization dedicated to helping seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities. Starlight builds playrooms and teen lounges in hospitals and provides PC Pals and Fun Centers for kids to play games, e-mail and chat with friends. Entertainers and parties are provided for children in the hospital. Starbright World is an online social network where teens (ages 13 to 20) who have serious medical conditions and siblings of seriously ill teens, can connect with each other via moderated chat rooms, games, bulletin boards, videos and more. Chapters are located in many U.S. states and in other countries.

Categories: Childhood, Educational Programs, Peer/Buddy Programs, Support Groups

 

Support for People with Oral and Head and Neck Cancer

POB 53

Locust Valley, NY 11560

1-800-377-0928 (English only)

info@spohnc.org

 

Support for People with Oral and Head and Neck Cancer (SPOHNC) is a nonprofit organization dedicated to addressing the emotional and physical needs of people with oral and head and neck cancer. The organization offers support groups facilitated by local chapters; current information on oral and head and neck cancer through its newsletter, "News From SPOHNC,"; free publications on topics such as treatment for head and neck cancer and dental care, recipes and resource guide to cope with eating challenges and a survivor's guide. SPOHNC also offers a National Survivor Volunteer Network, which pairs survivors or family members with volunteers who have had a similar diagnosis and treatment program.

Categories: Head and Neck, Oral, Peer/Buddy Programs, Support Groups

 

Teens Living with Cancer

Suite 300

1000 Elmood Avenue

Rochester, NY 14620

585-563-6221 (English only)

info@teenslivingwithcancer.org

Teens Living with Cancer (TLC) is a Web-based resource for teens with cancer, their families and friends. TLC focuses on teen issues, presents information about cancer and treatment, provides opportunities to interact with other teens living with cancer through an online community and offers links to relevant sites. The TLC Web site is translated into many languages and a translator is available to respond to e-mails written in Spanish.

Categories: Support Groups

 

Thyroid Cancer Survivors' Association, Inc.

POB 1545

New York, NY 10159

1-877-588-7904 (English and Spanish)

thyca@thyca.org

The Thyroid Cancer Survivors' Association, Inc. (ThyCa) is a national nonprofit organization of thyroid cancer survivors, families and health care professionals dedicated to educate, communicate and support early detection for thyroid cancer. ThyCa offers a toll-free survivors' line, publications, e-mail support groups, local support groups, a person-to-person network, newsletters and conferences. ThyCa also offers a free packet of educational materials for newly diagnosed patients. In addition, ThyCa is active in raising funds and providing grants for thyroid cancer research. The organization has volunteers who are fluent in Spanish and sections of the Web site are available in Spanish.

Categories: Other Cancers, Thyroid, Health Professional Referrals, Peer/Buddy Programs, Support Groups

 

The Ulman Cancer Fund for Young Adults

Suite G1

10440 Little Patuxent Parkway

Columbia, MD 21044

410-964-0202 (English only)

1-888-393-3863 (1-888-393-FUND) (English only)

info@ulmanfund.org

 

The mission of the Ulman Cancer Fund for Young Adults (UCF) is to enhance lives by supporting, educating and connecting young adults (ages 15 to 40) and their loved ones, affected by cancer. UCF offers remote (via telephone) and on-site (in Maryland) patient navigation programs that provide access to support resources and treatment information and tips on effective communication with the patient's health care team. UCF provides support groups in Maryland and Washington, DC that are facilitated by professional social workers. Participants in the support groups include cancer patients, survivors and spouses, friends and children of people with cancer. UCF has a Peer Mentor Network that connects survivors, parents and other young adults affected by cancer with one another for peer support and information exchange. UCF has a National College Scholarship Program and offers competitive scholarship awards. Applications for scholarships are available on the UCF Web site.

Categories: Childhood, Scholarships and Camps, Peer/Buddy Programs, Support Groups

 

Us TOO(r) International, Inc.

5003 Fairview Avenue

Downers Grove, IL 60515

630-795-1002 (English only)

1-800-808-7866 (1-800-80-Us TOO) (Support Hotline) (English only)

ustoo@ustoo.org

Us TOO(r) International, Inc. is a nonprofit organization committed to helping men and their families make informed decisions about prostate cancer detection and treatment through support, education and advocacy. Us TOO provides free publications (including videotapes/DVDs, Webinars and books), a toll-free patient support line, more than 300 local support groups, online discussion communities, newsletters, a Circles of Love program (for companions and families of those with prostate cancer) and newly diagnosed patient resource kits. A limited selection of Spanish-language publications is available.

Categories: Prostate, International, Advocacy, Educational Programs, Support Groups

 

Young Survival Coalition

Suite 2235

61 Broadway

New York, NY 10006

646-257-3000 (English only)

1-877-972-1011 (1-877-YSC-1011) (English only)

info@youngsurvival.org

 

The Young Survival Coalition (YSC) focuses on issues unique to young women who are diagnosed with breast cancer. YSC works with survivors; caregivers; and the medical, research, advocacy and legislative communities to improve the quality of life for women age 40 and under who have been diagnosed with breast cancer. YSC's affiliate network provides peer-support and networking opportunities for young women in all stages of the treatment and recovery cycle. The Coalition also hosts teleconferences, conferences and retreats for young women newly diagnosed with breast cancer, women diagnosed with metastatic breast cancer and community volunteers interested in leadership development. YSC offers a SurvivorLink program that matches young women facing breast cancer with a survivor who shared a similar diagnosis. YSC also produces educational materials. Some publications are available in Spanish. Additionally, Spanish-speaking volunteers are available to serve as survivor matches in its peer-support program.

Categories: Breast, International, Advocacy, Educational Programs, Peer/Buddy Programs

 

Chapter 2. Cancer Organization Guide

 

Find Local Cancer Organizations at greatnonprofits.org

 

Easy search engine there for categories and local area.

 

A List of Cancer Organizations at patientresource.com/Partners.aspx

 

Academy of Oncology Nurse Navigators

aonnonline.org/education

 

American Psychosocial Oncology Society

apos-society.org

 

American Society of Clinical Oncology

asco.org

 

Association of Community Cancer Centers

accc-cancer.org

 

Oncology Nursing Society

ons.org

 

4th Angel Mentoring Program:

4thangel.org

 

4Women.com

4women.com

 

Bosom Buddies of Arizona

bosombuddies-az.org

 

Breast Cancer Alliance

breastcanceralliance.org/patient-information-resources

 

CaringBridge:

caringbridge.org

 

The Cholangiocarcinoma Foundation

cholangiocarcinoma.org

 

Cutaneous Lymphoma Foundation

clfoundation.org

 

Caring Ambassadors Lung Cancer Program

lungcancercap.org

 

Familial Ovarian Cancer Registry

ovariancancer.com

 

Friend for Life Cancer Support Network

friend4life.org

 

FORCE: Facing Our Risk of Cancer Empowered

facingourrisk.org

 

Free To Breathe

freetobreathe.org

 

Foundation for Women’s Cancer

foundationforwomenscancer.org

 

Global Resource for Advancing Cancer Education (GRACE): cancergrace.org

 

HER2 Support Group

her2support.org

 

Hirshberg Foundation for Pancreatic Cancer Research

pancreatic.org

 

Hope Light Foundation

hopelightproject.com

 

Joe’s House

joeshouse.org

 

Living Beyond Breast Cancer

lbbc.org

 

Leukemia & Lymphoma Society

lls.org

 

The Lustgarten Foundation

lustgarten.org

 

Melanoma Patients Australia

melanomapatients.org

 

Mercy Medical Angels

mercymedical.org

 

Mothers Supporting Daughters with Breast Cancer

mothersdaughters.org

 

Myelodysplastic Syndromes Foundation

mds-foundation.org/

 

MyLifeLine.org Cancer Foundation

mylifeline.org

 

National Center on Caregiving

caregiver.org

 

National CML Society

nationalcmlsociety.org

 

National Ovarian Cancer Coalition

ovarian.org

 

National Patient Travel Center

patienttravel.org

 

Oley Foundation

oley.org

 

Patient Advocate Foundation

patientadvocate.org

 

Patients Against Lymphoma

lymphomation.org

 

Partners in Healing

partnersinhealing.net

 

Pink Link

pink-link.org

 

R.A. Bloch Cancer Foundation

blochcancer.org

 

Sarcoma Alliance

sarcomaalliance.org

 

ThyCa: Thyroid Cancer Survivors' Association, Inc.

thyca.org

 

Ulman Cancer Fund

ulmanfund.org

 

Young Adult Cancer Canada

youngadultcancer.ca

 

A List of Cancer Organizations at cancer.net/coping-with-cancer/finding-support-and-information/general-cancer-groups

 

ASCO.org

Conquer Cancer Foundation

 

4th Angel Mentoring Program

866-520-3197

4thangel.org

 

Air Charity Network

877-621-7177

aircharitynetwork.org

 

AMC Cancer Fund

303-724-7824

amc.org

 

American Association for Cancer Research (AACR)

215-440-9300

866-423-3965

aacr.org

 

American Cancer Society

404-320-3333

800-ACS-2345

TTY: 866-288-4327

cancer.org

 

American Cancer Society Cancer Action Network (ACS CAN)

800-ACS-2345

acscan.org

 

American Society for Radiation Oncology

703-502-1550 1-800-962-7876

astro.org/Patient-Care.aspx

 

American Society of Breast Surgeons

410-992-5470

1-877-992-5470

breastsurgeons.org

 

Anderson Network, A Program of Volunteer Services

844-348-1352

mdanderson.org/andersonnetwork

 

Arab Community Center for Economic and Social Services (ACCESS)

313-842-7010

accesscommunity.org

 

Association of Cancer Online Resources

212-226-5525

acor.org

 

Association of Community Cancer Centers (ACCC)

301-984-9496

accc-cancer.org

 

Cancer Family Relief Fund

cancerfamilyrelieffund.org

 

Cancer Financial Assistance Coalition

cancerfac.org

 

Cancer Hope Network

877-HOPENET 

908-879-6518

cancerhopenetwork.org

 

Cancer Information and Counseling Line (CICL)

amc.org

 

Cancer Information and Support Network

cisncancer.org

 

Cancer Legal Resource Center

866-843-2572

cancerlegalresourcecenter.org

 

Cancer Pain Management in Chlidren

childcancerpain.org

 

Cancer Research Foundation

312-630-0055

cancerresearchfdn.org

 

Cancer Research Institute

800-992-2623

212-688-7515

cancerresearch.org

 

Cancer Support Community

202-659-9709

888-793-WELL (9355)

cancersupportcommunity.org

 

Cancer Survivors Gathering Place

cancersurvivorsplace.org

 

Cancer Trials Support Unit

888-823-5923

ctsu.org

 

Cancer.com

888-227-5624

cancer.com

 

CANCER101

646-638-2202

cancer101.org

 

CancerCare

800 813 HOPE (4673)

cancercare.org

 

CancerGuide

cancerguide.org

 

CancerHelp

CancerQuest

404-727-0308

cancerquest.org

 

CaringBridge

651-789-2300

caringbridge.org

 

Centers for Disease Control and Prevention (CDC)

800-CDC-INFO (800-232-4636)

cdc.gov

 

Children's Cause for Cancer Advocacy

202-304-1850

childrenscause.org

 

Coalition of Cancer Cooperative Groups

215-789-3600

cancertrialshelp.org

 

College of American Pathologists

800-323-4040 x7439

MyBiopsy.org

 

Corporate Angel Network, Inc.

914-328-1313

866-328-1313

corpangelnetwork.org

 

Critical Mass: The Young Adult Cancer Alliance

Dia de La Mujer Latina

281-489-1111

diadelamujerlatina.org

 

Education Network to Advance Cancer Clinical Trials (ENACCT)

240-482-4730

 

Family Reach

973-394-1411

familyreach.org

 

FDA Cancer Liaison Program

1-888-INFOFDA

fda.gov/ForConsumers/default.htm

 

Federation of American Societies for Experimental Biology (FASEB)

301-634-7000

faseb.org

 

Fertile Action

877-276-5951

fertileaction.org

 

Friend for Life Cancer Support Network

502-893-0643

866-374-3634

friend4life.org

 

HairToStay

800-270-1897

hairtostay.org

 

Hospice Foundation of America

800-854-3402

hospicefoundation.org

 

I'm Too Young for This! Cancer Foundation

1-877-735-4673

stupidcancer.org

 

Imerman Angels

866-IMERMAN (463-7626)

imermanangels.org

 

Intercultural Cancer Council (ICC)

iccnetwork.org

 

International Association for Hospice and Palliative Care (IAHPC)

936-321-9846

866-374-2472

346-571-5919

hospicecare.com

 

International Psycho-Oncology Society

416-968-0260

ipos-society.org

 

Jack and Jill Late Stage Cancer Foundation

404-537-5253

jajf.org/home

 

LIVESTRONG Foundation

512-236-8820 866-236-8820

livestrong.org

 

Locks of Love

561-833-7332

1-888-896-1588

locksoflove.org

 

Look Good..Feel Better (LGFB)

202-331-1770

800-395-5665

lookgoodfeelbetter.org

 

Lotsa Helping Hands

lotsahelpinghands.com

 

Lymphatic Education and Research Network

516-625-9675

lymphaticnetwork.org

 

Malecare

212-673-4920

malecare.org

 

Mautner Project

202-745-7000

202-332-5536

866-MAUTNER (866-628-8637)

mautnerproject.org

 

MyLifeLine.org

888-234-2468, ext. 0

mylifeline.org

 

MyOncofertility.org

1-866-708-3378

myoncofertility.org

 

National Accreditation Program for Breast Centers

312-202-5185

napbc-breast.org

 

National Asian Women's Health Organization

877-986-9472

healthywomen.org

 

National Association for Home Care and Hospice

202-547-7424

nahc.org

 

National Breast and Cervical Cancer Early Detection Program

TTY 888-232-6348

800-292-4636

cdc.gov/cancer/index.htm

 

National Cancer Institute (NCI)

301-435-3848

800-4-CANCER

TTY: 800-332-8615

cancer.gov

 

National Cancer Survivors Day Foundation

615-794-3006

ncsdf.org

 

National Center for Complementary and Alternative Medicine

301-519-3153

888-644-6226

nccam.nih.gov

 

National Coalition for Cancer Survivorship

301-650-9127

877-NCCS-YES

(877-622-7937)

canceradvocacy.org

 

National Comprehensive Cancer Network

215-690-0300

nccn.com

 

National Family Caregivers Association

301-942-6430

800-896-3650

nfcacares.org

 

National Hospice and Palliative Care Organization

800-646-6460

nhpco.org

 

National LGBT Cancer Network

212-675-2633

cancer-network.org

 

National Library of Medicine

301-594-5983

888-FIND-NLM (888-346-3656)

nlm.nih.gov

 

National Lymphedema Network(NLN)

510-809-1660

800-541-3259

lymphnet.org

 

National Organization for Rare Disorders (NORD)

203-744-0100

800-999-6673

rarediseases.org

 

Native American Cancer Research

303-838-9359

natamcancer.org

 

Nikolas Ritschel Foundation

nikolasritschelfoundation.org

 

Nueva Vida, Inc.

202-223-9100

1-866-986-8432

nueva-vida.org

 

Nurse Oncology Education Program (NOEP)

800-862-2022

512-452-0645

texasnurses.org/?NOEP

 

Office of Cancer Survivorship

301-402-2964

dccps.nci.nih.gov/ocs

 

Office of Minority Health

800-444-6472

minorityhealth.hhs.gov

 

Oley Foundation

518-262-5079

oley.org

 

OncoLink

215-349-8895

oncolink.org

 

Oncology Nursing Society (ONS)

412-859-6100

866-257-4ONS (4667)

ons.org

 

cancersymptoms.org

 

Partnership for Prescription Assistance

888-4PPA-NOW (477-2669)

pparx.org

 

Patient Advocate Foundation

757-873-6668

800-532-5274

patientadvocate.org

 

Patient AirLift Services (PALS)

888-818-1231

palservices.org

 

Patient Power

206-232–1542 x7

patientpower.info

 

PearlPoint Cancer Support

615-467-1936 1-877-467-1936

pearlpoint.org

 

Prepare to Live

preparetolive.org

 

Prevent Cancer Foundation

703-836-4412

800-227-2732

preventcancer.org

 

R.A. Bloch Cancer Foundation, Inc.

816-854-5050

1-800-433-0464

blochcancer.org

 

Research Advocacy Network

877-276-2187

researchadvocacy.org

 

Sam Fund

617-938-3484

thesamfund.org

 

Self chec

selfchec.org

 

Society for Women's Health Research

202-223-8224

womenshealthresearch.org

 

Society of Nuclear Medicine

703-708-9000

discovermi.org

 

Stand By Me

(818) 664-4100

standbymela.org

 

Stand Up 2 Cancer

standup2cancer.org

 

SuperSibs

610-649-3034

866-333-1213

alexslemonade.org

 

Talk about Health

917-710-1927

talkabouthealth.com

 

Teen Cancer America

310-208-0400

teencanceramerica.org

 

Teens Living With Cancer

585-563-6221

13thirty.org/welcome

 

The Comprehensive Cancer Center of Wake Forest University

Main: (336) 716-7971

Appointments: (336) 716-WAKE

 

wakehealth.edu/Comprehensive-Cancer-Center

The Pink Fund

877-234-PINK (7465)

pinkfund.org

 

The Rapunzel Project

rapunzelproject.org

 

Ulman Cancer Fund for Young Adults

410-964-0202

888-393-FUND (3863)

ulmanfund.org

 

United Ostomy Associations of America (UOAA)

800-826-0826

ostomy.org

 

V Foundation for Cancer Research

919-380-9505

1-800-454-6698

jimmyv.org

 

Your Disease Risk

800-600-3606

yourdiseaserisk.wustl.edu

 

List of Cancer Charities at charity.lovetoknow.com/List_of_Cancer_Charities

 

cancer.org/docroot/home/index.asp

 

charity.lovetoknow.com/Breast_Cancer_Charities

 

cancersurvivorsfund.org

 

cancercare.org

 

cancerresearch.org

 

childrenscancer.org

 

livestrong.org

 

lungevity.org

 

charity.lovetoknow.com/Government_Funding_for_Cancer_Research

 

charity.lovetoknow.com/Next_Generation_Choices_Foundation_Less_Cancer_Campaign

 

komen.org

 

vineman.com

 

cancerindex.org

 

thebreastcancercharities.org

bcrfcure.org

 

cancer.org

 

avonwalk.org

 

the3day.org

 

itsthejourney.org

 

li2daywalk.org

 

Cancer Organizations at annieappleseedproject.org/other-cancer-organizations-2

 

arborontheweb.com

 

bcaction.org

 

brustkrebs.net

 

cancer-connection.org

 

cancer.ucsd.edu

 

canceradvocacy.org

 

cancerresearchamerica.org

 

carcinoidawareness.org

 

caresfgh.org

 

castingforrecovery.org

 

councilofdads.com

 

diadelamujerlatina.org

 

ditex.com

 

drugwatch.com

 

dtrf.org/dtrf_thefoundation.htm

 

fightingchance.org

                

friendforlifecancersupport.com

 

friendsofmel.org

 

gildasclub.org

 

gildasclublivingroom.org

 

givingvoice.org

 

gwccs.org

 

liddyshriversarcomainitiative.org/Newsletters/esun_newsletter.htm

 

mautnerproject.org

 

moments-with-mary.com

 

mountainlaurelcancer.org

 

natamcancer.org/community.html

 

nccf.org

 

nkca.org

 

pfsjer.org

 

pillowsforlife.com

 

researchadvocacy.org

 

saath

 

sharethecare.org

 

stopbreastcancer.org

 

stopcancer.org

 

stopcancerfund.org

 

swimcancerfoundation.org

 

texaswings.org

 

turningpointkc.org

 

wcn.org

 

wcrc.org

 

wellspouse.org

 

womenlisten.org

 

A List of Cancer Organizations from verywellhealth.com/leading-cancer-charities-and-organizations-514087

 

livestrong.org

American Institute for Cancer Research, aicr.org

 

Gilda’s Club/Cancer Support Community

gildasclubnyc.org

 

cancersupportcommunity.org

Cancer Support Community. 

 

The American Cancer Society

cancer.org

 

Chapter 3. United States Cancer Organizations Guide

 

United States Cancer Organizations

 

aacr.org, American Association for Cancer Research

 

cancer.org, American Cancer Society

900 local offices nationwide.

 

asco.org, American Society of Clinical Oncology

 

cancer.gov, National Cancer Institute

 

accc-cancer.org, Association of Community Cancer Centers/ ACCC

 

swog.org, Southwest Oncology Group

 

soc-neuro-onc.org, Society for Neuro-Oncology

 

abta.org, American Brain Tumor Association

 

acco.org, American Childhood Cancer Organization

 

acro.org, American College of Radiation Oncology

 

astro.org, American Society for Radiation Oncology

 

aspho.org, American Society of Pediatric Hematology/Oncology

ASPHO

 

cancerresearch.org, Cancer Research Institute

 

childhoodbraintumor.org, Childhood Brain Tumor Foundation

 

clf4kids.org, Childhood Leukemia Foundation

 

cncfhope.org, Children's Neuroblastoma Cancer Foundation

 

childrensoncologygroup.org, Children's Oncology Group

 

ccalliance.org, Colon Cancer Alliance

 

fanconi.org, Fanconi Anemia Research Fund, Inc.

 

foundationforwomenscancer.org, Foundation for Women's Cancer

 

gog.org, Gynecologic Oncology Group

 

hoparx.org, Hematology/Oncology Pharmacy Association

 

lcfamerica.org, Lung Cancer Foundation of America

 

lymphoma.org, Lymphoma Research Foundation

 

melanoma.org, Melanoma Research Foundation

 

msts.org, Musculoskeletal Tumor Society

 

braintumor.org, National Brain Tumor Society

 

ncra-usa.org, National Cancer Registrars Association

 

nccc-online.org, National Cervical Cancer Coalition

 

leukemiafoundation.org, National Children's Leukemia

Foundation

 

nationalcmlsociety.org, National CML Society

Chronic Myeloid Leukemia (CML)

 

nccn.org, National Comprehensive Cancer Network

 

skincancerprevention.org, National Council on Skin Cancer

Prevention

 

path.jhu.edu/nfltr.html, National Familial Lung Cancer Registry, The

 

pathology.jhu.edu/pancreas/nfptr, National Familial Pancreas Tumor Registry

 

nationallungcancerpartnership.org, National Lung Cancer

Partnership

 

nant.org, New Approaches to Neuroblastoma Therapy

 

ocularmelanoma.org, Ocular Melanoma Foundation

 

oralcancer.org, Oral Cancer Foundation

 

pancan.org, Pancreatic Cancer Action Network

 

preventcancer.org, Prevent Cancer Foundation

 

rtog.org, Radiation Therapy Oncology Group

 

sitcancer.org, Society for Immunotherapy of Cancer

 

sroa.org, Society for Radiation Oncology Administrators

 

sgno.org, Society of Gynecologic Nurse Oncologists

 

sgo.org, Society of Gynecologic Oncology

 

surgonc.org, Society of Surgical Oncology

 

stroudcup.org, Stroud Foundation

 

calgb.org, Cancer and Leukemia Group B

 

abmdr.org, American Bone Marrow Donor Registry

 

anausa.org, Acoustic Neuroma Association

 

headandneckcancer.org, American Head and Neck Society

 

rarediseases.org, National Organization for Rare Disorders

 

oncofertility.northwestern.edu, Oncofertility Consortium

 

seer.cancer.gov, SEER; Surveillance, Epidemiology and End

Results A program of the National Cancer Institute

 

ctf.org, Children's Tumor Foundation

 

ons.org, Oncology Nursing Society

 

taybearhugs.org, TayBearTeddy Bears for Cancer Kids

Teddy Bears as presents for kids

 

Regional United States Cancer Organizations

 

Vincent P. Gurucharri MD Foundation, Missouri

573-443-8773

docg.org

 

Florida

Gulfcoast Oncology Foundation, Florida, Tampa Bay area

727-821-0017 Ext. 2264

gulfcoastoncologyfoundation.com

 

Florida

L.I.G.H.T. of Southwest Florida

Lee and Collier counties

lightswfl.org

 

Indiana and Kentucky

Michael Quinlan Brain Tumor Foundation, Indiana and Kentucky

1815 Arboro Pl, Louisville, KY 40220

502-896-1701

 

Kansas City

Wy/Jo Care

Wyandotte and Johnson Counties.
913-403-0544 fax: 913-403-1423

wyjocare@msjwc.org

 

Kansas City

KC Medicine Cabinet

Call 211

 

Kansas City

Helping Hand Foundation

913-341-5411

helpingfoundation.org

 

Kansas City

Northland CARE/MetroCARE

816-531-8432

816-880-6700

 

Los Angeles

Beckstrand Cancer Association

beckstrand.org

 

Minnesota

Angel Foundation

952-830-0519

mnangel.org

 

New York City

Cancer Advocacy Project

New York City Bar Fund

212-382-4785

abcny.org

 

North Texas

Bridge Breast Network

breast cancer.

877-258-1396

214-821-3820

bridgebreast.org

 

Chapter 4. Cancer Organizations from theagapecenter.com/Organizations/Conditions-Diseases/Cancer.htm

 

Cancer Association Websites

 

en.wikipedia.org/wiki/Category:Cancer_organizations

 

acgtfoundation.org, Alliance for Cancer Gene Therapy (ACGT).

 

aacpi.org, American Alliance of Cancer Pain Initiatives (AACPI).

 

medicaldosimetry.org, American Association of Medical Dosimetrists (AAMD), Radiation oncology.

 

cancer.org, American Cancer Society.

 

acro.org, American College of Radiation Oncology (ACRO).

 

acosog.org, American College of Surgeons Oncology Group (ACOSOG).

 

cancerstaging.org, American Joint Committee on Cancer (AJCC).

 

astro.org, American Society for Therapeutic Radiology and Oncology (ASTRO).

 

asco.org, American Society of Clinical Oncology (ASCO).

 

aspho.org, American Society of Pediatric Hematology/Oncology (ASPH/O).

 

aicr.org, American Institute for Cancer Research (AICR).

 

acfoundation.org, Animal Cancer Foundation (ACF).

 

aicr.org.uk, Association for International Cancer Research (AICR). United Kingdom (UK) Charity.

 

aaarro.org, Association of Administrators of Academic Radiology and Radiation Oncology (AAARRO).

 

cancerexecutives.org, Association of Cancer Executives (ACE).

 

acor.org, Association of Cancer Online Resources (ACOR).

 

accc-cancer.org, Association of Community Cancer Centers (ACCC).

 

afroc.org, Association of Freestanding Radiation Oncology Centers (AFROC).

 

aosw.org, Association of Oncology Social Work (AOSW).

 

apon.org, Association of Pediatric Oncology Nurses (APON).

aposw.org, Association of Pediatric Oncology Social Work (APOSW).

 

arro.org, Association of Residents in Radiation Oncology (ARRO).

 

cos.ca/camo/index.asp, Canadian Association of Medical Oncologists (CAMO). Canada

 

cos.ca/cano/index.html, Canadian Association of Nurses in Oncology (CANO). Canada

 

capho.ca, Canadian Association of Pharmacy in Oncology (CAPhO). Canada (CA).

 

capca.ca, Canadian Association of Provincial Cancer Agencies (CAPCA). Canada (CA).

 

capo.ca, Canadian Association of Psychosocial Oncology (CAPO). Canada (CA).

 

cos.ca, Canadian Oncology Society (COS). Canada (CA).

 

cos.ca/csso/index.html, Canadian Society for Surgical Oncology (CSSO). Canada (CA).

 

calgb.org, Cancer and Leukemia Group B (CALGB).

 

cansa.org, za, Cancer Association of South Africa (CANSA). South Africa (ZA).

 

cancerbacup.org.uk, CancerBACUP, United Kingdom (UK) Cancer Information Service.

 

cfoa.org, Cancer Fund of America (CFOA).

 

cancerhopenetwork.org, Cancer Hope Network. patient support, not-for-profit organization.

 

preventcancer.org, Cancer Research and Prevention Foundation (CRPF).

 

cancerresearch.org, Cancer Research Institute (CRI).

 

cancerresearchuk.org, Cancer Research UK. United Kingdom (UK).

 

cancernz.org, nz, Cancer Society of New Zealand (CSNZ), New Zealand (NZ).

 

ctep.info.nih.gov, Cancer Therapy Evaluation Program (CTEP).

 

ctsu.org, Cancer Trials Support Unit (CTSU). cancer.gov, NCI.

 

candlelighters.org, Candlelighters Childhood Cancer Foundation (CCCF).

 

canteen.org, nz, CanTeen, Teenage Cancer Patients' Society. - New Zealand (NZ).

 

thechampfoundation.org, Champ Foundation, The, Pediatric Cancer.

 

childcancer.org, nz, Child Cancer Foundation (CCF),  - New Zealand (NZ).

 

ccrg.ox.ac.uk, Childhood Cancer Research Group (CCRG). United Kingdom (UK).

 

childrenscancerassociation.org, Children's Cancer Association (CCA).

 

ccf.org, hk, Children's Cancer Foundation (CCF). Hong Kong (HK).

 

ccrf.org, Children's Cancer Research Fund.

 

coca-intl.org, Children's Oncology Camping Association (COCA).

 

childrensoncologygroup.org, Children's Oncology Group (COG).

 

christies.org, Christie's against Cancer.cancer charity.United Kingdom (UK).

 

cancertrialshelp.org, Coalition of National Cancer Cooperative Groups (CNCCG).

 

eacr.org, European Association for Cancer Research (EACR).

 

cancerworld.org/progetti/cancerworld/EONS/Pagine/Home/homeframeEONS.html, European

Oncology Nursing Society (EONS).

 

eortc.be, European Organization for Research and Treatment of Cancer (EORTC).

 

esmo.org, European Society for Medical Oncology (ESMO.).

 

estro.be, European Society for Therapeutic Radiology and Oncology (ESTRO).

 

esso-surgeonline.be, European Society of Surgical Oncology (ESSO).

 

fcco.org, Families of Children with Cancer (FCC).

fecs.be, Federation of European Cancer Societies (FECS).

 

gog.org, Gynecologic Oncology Group (GOG).

 

ifcp.us, Institute for Cancer Prevention (IFCP). USA.

 

iccnetwork.org, Intercultural Cancer Council (ICC).

 

iarc.fr, International Agency for Research on Cancer (IARC).part of WHO.

 

icare.org, International Cancer Alliance for Research and Education (ICARE).

 

icccpo.org, International Confederation of Childhood Cancer Parent Organizations (ICCCPO).

 

inctr.org, International Network for Cancer Treatment and Research (INCTR).

 

iosg.org, International Oncology Study Group (IOSG).

 

uicc.org, International Union Against Cancer (UICC).

 

uicc.org, International Union Against Cancer GLOBALink (UICCGLOBALink), The Tobacco Control

Community.

 

siop.nl, International Society of Paediatric Oncology (SIOP).

 

cancer.ie, Irish Cancer Society (ICS). Ireland (IE).

 

laf.org, Lance Armstrong Foundation (LAF), Cancer patient support.

 

miroda.org, Medical Imaging and Radiation Oncology Data Alliance (MIRODA).

 

naccpo.org, National Alliance of Childhood Cancer Parent Organisations (NACCPO). United Kingdom

(UK).

 

nas.edu/cancerbd, National Cancer Policy Board.

 

cancer.gov, National Cancer Institute (NCI).

 

ncra-usa.org, National Cancer Registrars Association (NCRA).

 

children-cancer.org, National Children's Cancer Society (NCCS).

 

canceradvocacy.org, National Coalition for Cancer Survivorship (NCCS). survivor-led advocacy organization.

 

nccn.org, National Comprehensive Cancer Network (NCCN).

 

researchforacure.com, National Foundation for Cancer Research (NFCR).

 

naaccr.org, North American Association of Central Cancer Registries (NAACCR).

 

oncc.org, Oncology Nursing Certification Corporation (ONCC).

 

ons.org, Oncology Nursing Society (ONS).

 

pcfweb.org, Pediatric Cancer Foundation (PCF).

 

pregnantwithcancer.org, Pregnant With Cancer Network (PWCN).

 

rtog.org, Radiation Therapy Oncology Group (RTOG).

 

retinoblastoma.net, Retinoblastoma International (RI), Childhood eye cancer.

 

rbsociety.org.uk, Retinoblastoma Society (RS), Childhood eye cancer. - United Kingdom (UK).

 

singaporecancersyndicate.org, Singapore Cancer Syndicate (SCS). Singapore (SG).

 

sroa.org, Society for Radiation Oncology Administrators (SROA).

 

sgno.org, Society of Gynecologic Nurse Oncologists (SGNO).

 

sgo.org, Society of Gynecologic Oncologists (SGO).

 

g-o-c.org, Society of Gynecologic Oncologists of Canada (GOC). Canada (CA).

 

surgonc.org, Society of Surgical Oncology (SSO).

 

seer.cancer.gov, Surveillance, Epidemiology and End Results (SEER), Cancer Research.

 

theunbrokencircle.org, Unbroken Circle, The, Native American cancer.

 

ukccsg.org, United Kingdom Children's Cancer Study Group (UKCCSG). United Kingdom (UK).

 

vetcancersociety.org, Veterinary Cancer Society (VCS).

 

wcn.org, Women's Cancer Network (WCN).

 

wcrf-uk.org, World Cancer Research Fund (WCRF UK). United Kingdom (UK).

 

Cancer Organizations by U.S. State from theagapecenter.com/Organizations/Conditions-Diseases/Cancer.htm

 

wacpi.org, Washington Alaska Cancer Pain Initiative (WACPI)

 

co-cancer-foundation.org, Colorado Cancer Foundation (CCF)

 

survivalhelp.org, Foundation For Cancer Survival-Vernon, CT.

 

fbccoalition.org, Florida Breast Cancer Coalition (FBCC).

 

fcra.org, Florida Cancer Registrars Association (FCRA).

 

florida-prostate-cancer.org, Florida Prostate Cancer Network (FPCN)

 

gabcc.org, Georgia Breast Cancer Coalition (GBCC).

 

idcancer.org, Cancer Data Registry of Idaho (CDRI).

 

kcr.uky.edu, Kentucky Cancer Registry

 

lcltfb.org, Louisiana Cancer and Lung Trust Fund Board (LCLTFB).

 

theashleyfoundation.org, Ashley Foundation, The, Teens with cancer New Market, MD.

marylandcancerplan.org, Maryland Comprehensive Cancer Control Plan.

 

michigancancer.org, Michigan Cancer Consortium (MCC).

 

mich-cpi.org, Michigan Cancer Pain Initiative (MCPI).

 

nycancer.org, New York Cancer Society (NYCC).

 

ndcancercoalition.org, North Dakota Cancer Coalition (NDCC).

 

ndhealth.gov/CompCancer, North Dakota Comprehensive Cancer Prevention and Control Program.

 

ndhealth.gov/cancerregistry, North Dakota Statewide Cancer Registry (NDSCR)

 

pabreastcancer.org, Pennsylvania Breast Cancer Coalition (PBCC).

 

papainrelief.org, Pennsylvania Cancer Pain Initiative (PCPI)

 

alamobreastcancer.org, Alamo Breast Cancer Foundation (ABCF).

 

sanantonio.gov, San Antonio, Texas (TX).

 

rgcf.org, Rio Grande Cancer Foundation (RGCF).

 

elpasotexas.gov, El Paso, Texas.

 

texascancercouncil.org, Texas Cancer Council (TCC) state agency.

 

txcancer.org, Texas Cancer Data Center (TCDC).

 

texaspainrelief.org, Texas Cancer Pain Initiative (TCPI)

 

vcpi.org, Virginia Cancer Pain Initiative (VCPI)

 

musom.marshall.edu/pain, West Virginia Cancer Pain Initiative (WVCPI)

 

Cervical Cancer Associations, Organizations, Websites

 

nccc-online.org, National Cervical Cancer Coalition (NCCC).

 

Childhood Cancer Associations, Organizations, Websites

 

ccrf.org, Children's Cancer Research Fund (CCRF).

 

nccf.org, National Childhood Cancer Foundation (NCCF).

 

Colon Cancer Associations, Organizations, Websites

 

ccalliance.org, Colon Cancer Alliance (CCA). patient organization.

 

colorectal-cancer.net, Colorectal Cancer Network (CCN).

 

nccra.org, National Colorectal Cancer Research Alliance (NCCRA).

 

Esophageal Cancer, Associations, Organizations, Websites

 

eccafe.org, Cathy's EC Caf? a for um devoted to esophageal cancer.

 

ecaware.org, Esophageal Cancer Awareness Association (ECAA).

 

barrettsregistry.com, National Registry for Antireflux Surgery and Barrett's Esophagus

(NRASBE).

 

UK Oesophageal Cancer

 

opa.org.uk, Oesophageal Patients Association (OPA). United Kingdom (UK).

 

hosg.org.uk, Humberside Oesophageal Support Group (HOSG). United Kingdom (UK).

 

opani.org, Oesophageal Patients Association (OPA) Northern Ireland. United Kingdom (UK).

 

sosg.info, Southern Oesophageal Support Group (SOSG), United Kingdom (UK).

 

Kidney Cancer Associations, Organizations, Websites

 

kidneycancerassociation.org, Kidney Cancer Association (KCA).

 

Leukemia Associations, Organizations, Websites

 

leukemia.org, Leukemia and Lymphoma Society (LLS)

 

leukemia.ca, Leukemia Research Fund of Canada (LRFC)

Canada (CA).

 

leukemiafoundation.org, National Children's Leukemia Foundation (NCLF)

 

mdleukemia.org, Maryland Chapter; Leukemia and Lymphoma Society (LLS)

 

Liver Cancer Associations, Organizations, Websites

 

livercancer.com, Liver Cancer Network

 

livercancer.com/about/agh.html, Allegheny General Hospital, Pittsburgh, Pennsylvania.

 

Lung Cancer Associations, Organizations, Websites

 

en.wikipedia.org/wiki/Lung_cancer, Wikipedia

alcase.org, Alliance for Lung Cancer Advocacy, Support, and Education (ALCASE)

 

culcasg.org, Cuneo Lung Cancer Study Group (CuLCaSG)

 

elcwp.org, European Lung Cancer Working Party (ELCWP)

 

lungcanceralliance.org, Lung Cancer Alliance (LCA)

 

lungcancercap.org, Lung Cancer Caring Ambassadors Program (LCCAP)

 

lungcanceronline.org, Lung Cancer Online Foundation (LCOF)

 

path.jhu.edu/nfltr.html, National Familial Lung Cancer Registry (NFLCR)

 

roycastle.org, Roy Castle Lung Cancer Foundation (RCLCF), United Kingdom (UK).

 

Ovarian Cancer Associations, Organizations, Websites

 

lynnecohenfoundation.org, Lynne Cohen Foundation for Ovarian Cancer Research

 

ovariancanada.org, National Ovarian Cancer Association (NOCA), Canada (CA).

 

ovarian.org, National Ovarian Cancer Coalition (NOCC)

 

ovca.org, National Ovarian Cancer Network (OvCa Australia)

 

ovariancancercanada.ca, Ovarian Cancer Canada (OCC)

 

ovariancancer.org, Ovarian Cancer National Alliance (OCNA)

 

ovariancancerprogram.org.au, Ovarian Cancer Program (OCP)

 

ocrf.org, Ovarian Cancer Research Fund (OCRF)

 

roccs.org, Research for Ovarian Cancer and Continued Survival (ROCCS)

 

gaovariancancer.org, Georgia Ovarian Cancer Alliance (GOCA)

 

Ovarian Awareness of Kentucky (OAK)

 

ocan.org, Ovarian Cancer Alliance of Nevada (OCAN)

 

Prostate Cancer Associations, Organizations, Websites

 

ameripros.org, American Prostate Society (APS)

 

capcure.org, Association for the Cure of Cancer of the Prostate (CaP CURE).

 

canadian-prostate.com, Canadian Prostate Health Council (CPHC), Canada (CA).

 

ecpcp.org, Education Center for Prostate Cancer Patients (ECPCP).

 

4npcc.org, National Prostate Cancer Coalition (NPCC).

 

prostate-cancer.org.uk, Prostate Cancer Charity, The, United Kingdom (UK).

 

prostate.org.au, Prostate Cancer Foundation of Australia,  Australian (AU).

 

prostatecancer.ca, Prostate Cancer Research Foundation of Canada (PRCF), Canada (CA).

 

prostate-cancer.org, Prostate Cancer Research Institute (PCRI).

 

prostatefoundation.org, Robert Benjamin Ablin Foundation for Cancer Research, Prostrate Cancer.

 

ustoo.com, Us Too! International, prostate cancer education and support.

 

florida-prostate-cancer.org, Florida Prostate Cancer Network (FPCN).

 

manpros.org, Manitoba Prostate Cancer Support Group (MPCSG), Canada.

 

Retinoblastoma (Childhood Eye Cancer) related Associations, Organizations

 

retinoblastoma.net, Retinoblastoma International (RI), Childhood eye cancer.

 

rbsociety.org.uk, Retinoblastoma Society (RS), Childhood eye cancer, United Kingdom (UK).

 

Skin Cancer Associations, Organizations, Websites

 

melanomafoundation.org, American Melanoma Foundation (AMF)

 

skincheck.com, Melanoma Education Foundation (MEF), Skin Cancer.

 

melanoma.org, Melanoma Research Foundation (MRF).

 

skincancer.org, Skin Cancer Foundation, The.

 

massmelanoma.org, Massachusetts Melanoma Foundation (MMF).

 

Thyroid Websites

 

thyroidfoundation.org, American Foundation of Thyroid Patients (AFTP).

 

thyroid.org, American Thyroid Association (ATA).

 

british-thyroid-association.org, British Thyroid Association (BTA).

 

eurothyroid.com, European Thyroid Association (ETA).

 

thyroid.org.au, Thyroid Australia, Patient-family organization.

 

thyca.org, Thyroid Cancer Survivors' Association (ThyCa)

thyroid-fed.org, Thyroid Federation International (TFI).

 

allthyroid.org, Thyroid Foundation of America (TFA).

 

thyroid.ca, Thyroid Foundation of Canada (TFC).

 

Chapter 5. supportorgs.cancer.gov, Lists of Type of Cancer Organizations, Financial Help Organizations, etc.

 

supportorgs.cancer.gov List of 100+ Cancer Organizations

 

I just list the websites.  If you want an explanation of what they do, go to the website supportorgs.cancer.gov.

13thirty.org, 13thirty Cancer Connect

Suite 300
1000 Elmood Avenue
Rochester, NY 14620
585-563-6221

staff@13thirty.org

for adolescents and young adults (AYA)

4thangel.org, 4th Angel Mentoring Program

9500 Euclid Avenue
R36
Cleveland, OH 44195
216-445-8734
866-520-3197
4thangel@ccf.org

teleor e-mail support to cancer patients

abcdbreastcancersupport.org, ABCD: After Breast Cancer Diagnosis

5775 N Glen Park Road
Suite 201
Glendale, WI 53209
800-977-4121 (Monday - Saturday)
helpline@abcdmentor.org

information and support to people affected by breast cancer

aircharitynetwork.org, Air Charity Network™

877-621-7177
execdir@aircharitynetwork.org

free air transportation

 

abta.org, American Brain Tumor Association.

acco.org, American Childhood Cancer Organization.

aicr.org, American Institute for Cancer Research.

apos-society.org, American Psychosocial Oncology Society.

apps.nccd.cdc.gov/dcpc_Programs/default.aspx?NPID=4, Contact a Colorectal Cancer Control Program (CRCCP).

askican.org, International Cancer Advocacy Network.

askican.org/contact.html, Contact Info.

bcan.org, Bladder Cancer Advocacy Network.

benefits.gov, Benefits.gov.

benefits.gov/benefits/benefit-finder/#benefits&qc=cat_1, Core Questions: Benefit Finder.

benefits.gov/benefits/browse-by-category, Browse for Benefits by Category.

benefits.gov/benefits/browse-by-category/category/MED+, State Medicaid Offices.

benefits.gov/benefits/browse-by-state+, Additional State Benefit Programs.

benefits.gov/benefits/browse-by-state, Browse for Benefits by State.

bethematch.org, Be the Match.

blochcancer.org, R.A. Bloch Cancer Foundation, Inc.

blog.braintumor.org/files/public-docs/frankly-speaking-about-cancer-brain-tumors.pdf, Frankly Speaking About Cancer: Brain Tumors.

braintumor.org, National Brain Tumor Society.

campkesem.org, Camp Kesem.

cancer.org, American Cancer Society.

cancer.org/treatment/supportprogramsservices/index, Support Programs and Services webpage, or call the toll-free number above.

canceradvocacy.org, National Coalition for Cancer Survivorship.

cancerandcareers.org, Cancer and Careers.

cancercare.org, CancerCare.

cancercare.org/financial, Co-payment Assistance Foundation (1-866-552-6729;

cancercarecopay.org, CancerCare Co-Payment Assistance Foundation.

cancerfac.org, Cancer Financial Assistance Coalition.

cancerhopenetwork.org, Cancer Hope Network.

cancerlegalresources.org, Cancer Legal Resource Center.

cancersupportcommunity.org, Cancer Support Community.

caritas.org, Caritas Internationalis Headquarters.

catholiccharitiesusa.org, Catholic Charities USA.

catholiccharitiesusa.org/find-help, List of Member Agencies.

cbtf.org, Children's Brain Tumor Foundation.

ccalliance.org, Colon Cancer Alliance.

cdc.gov/cancer/crccp, Colorectal Cancer Control Program.

cdc.gov/cancer/nbccedp, National Breast and Cervical Cancer Early Detection Program Centers for Disease Control and Prevention, Division of Cancer Prevention and Control.

children-cancer.org, The National Children's Cancer Society.

cholangiocarcinoma.org, The Cholangiocarcinoma Foundation.

cholangiocarcinoma.org/clinicaltrials.htm, Clinical Trials.

cholangiocarcinoma.org/majorcancercenters.htm, Major Cancer Centers.

cleaningforareason.org, Cleaning for a Reason Foundation.

cms.gov/MedicaidGenInfo, Medicaid (Medical Assistance).

cms.hhs.gov/RegionalOffices, Regional Medicare Offices.

connections.govbenefits.gov/ssa_en.portal, Benefit Eligibility Screening Tool (BEST).

copays.org, Co-Pay Relief Program.

corpangelnetwork.org, Corporate Angel Network.

curemeso.org, Mesothelioma Applied Research Foundation.

curesearch.org, CureSearch for Children's Cancer.

eapps.naic.org/cis, Consumer Information Source (CIS) Tool.

eapps.naic.org/cis/fileComplaintMap.do, File Complaint with State Insurance Department.

eldercare.gov, Eldercare Locator.

eldercare.gov/Eldercare.NET/Public/Resources/Resources.aspx, Fact Sheets and Booklets.

es.benefits.gov, Benefits.gov in Spanish.

espanol.insurekidsnow.gov/enes, CHIP Web site in Spanish.

facingourrisk.org, FORCE: Facing Our Risk of Cancer Empowered.

fertilitywithinreach.org, Fertility Within Reach.

fertilitywithinreach.org/banking-on-the-future, Banking on the Future.

fightcolorectalcancer.org, Fight Colorectal Cancer.

fightcolorectalcancer.org/do-something/change-policy, Be An Advocate.

fightcolorectalcancer.org/do-something/support-research/research-advocacy-training-and-support-rats, Research Advocacy Training and Support.

fightcolorectalcancer.org/fight-it, Fight It.

fightcolorectalcancer.org/policy/advocate_toolbox, Advocate Toolbox.

finaid.org, FinAid! The SmartStudent Guide to Financial Aid.

firstdescents.org, First Descents.

freetobreathe.org, Free to Breathe.

friend4life.org, Friend for Life Cancer Support Network.

gooddaysfromcdf.org, Good Days.

gooddaysfromcdf.org/for-patients/diseases-and-medications-covered, Diseases and Drugs Covered.

healthcare.gov, Healthcare.gov.

healthwellfoundation.org, HealthWell Foundation®.

hhnetwork.org, Healthcare Hospitality Network.

hrsa.gov/gethealthcare/affordable/hillburton, Hill-Burton Program.

hrsa.gov/gethealthcare/affordable/hillburton/facilities.html, Facilities Obligated To Provide Free or Reduced-Cost Health Care.

hrsa.gov/gethealthcare/affordable/hillburton/hillburton.pdf, Hill-Burton Brochure.

hud.gov, U.S. Department of Housing and Urban Development.

hud.gov/homeless/hmlsagen.cfm, Local Homeless Assistance by State.

hud.gov/offices/hsg/sfh/hcc/hcs.cfm, HUD Approved Housing Counseling Agencies.

icisg.org, International Cancer Information Service Group.

icisg.org/meet_memberslist.htm, ICISG Member List.

imermanangels.org, Imerman Angels.

insurekidsnow.gov, Children's Health Insurance Program.

insurekidsnow.gov/state/index.html, Locate State Health and Oral Care Providers.

insureuonline.org, Insure U - Get Smart About Insurance.

insureuonline.org/insureu_library.htm, Consumer Resources and Guides on Insurance.

iwmf.com, International Waldenstrom's Macroglobulinemia Foundation.

joeshouse.org, Joe's House.

joeshouse.org/Default.aspx?tabid=55, Search for Lodging.

kidneycancer.org, Kidney Cancer Association.

komen.org, Susan G. Komen for the Cure®.

lbbc.org, Living Beyond Breast Cancer.

livestrong.org, LIVESTRONG.

livestrong.org/we-can-help/fertility-services, LIVESTRONG Fertility.

livestrong.org/we-can-help/young-adults, Services for Young Adults.

liveunited.org, United Way Worldwide.

liveunited.org/myuw, Find a Local United Way Organization.

lls.org, Leukemia and Lymphoma Society.

lls.org/copay, Leukemia and Lymphoma Society Co-Pay Assistance Program.

lodging.hhnetwork.org.

lodging.hhnetwork.org 

lookgoodfeelbetter.org, Look Good.Feel Better®.

lookgoodfeelbetter.org/programs/programs-for-teens, Look Good…Feel Better® for Teens.

lungcanceralliance.org, Lung Cancer Alliance.

lustgarten.org, The Lustgarten Foundation.

lymphnet.org, National Lymphedema Network.

lymphnet.org/find-treatment, Find Treatment.

lymphoma.org, Lymphoma Research Foundation.

lynchcancers.com, Lynch Syndrome International.

medicare.gov, Medicare.

medicare.gov/contacts/organization-search-criteria.aspx, State Health Insurance Assistance Program.

medicare.gov/navigation/medicare-basics/medicare-benefits/medicare-benefits-overview.aspx, Medicare Benefits - Parts A,B,C,D.

medicare.gov/pharmaceutical-assistance-program/state-programs.aspx, Search for State Pharmaceutical Assistance Programs.

myeloma.org, International Myeloma Foundation.

mylifeline.org, MyLifeLine.org Cancer Foundation.

myoncofertility.org, MyOncofertility.org.

naic.org, National Association of Insurance Commissioners.

naic.org/state_web_map.htm, Contact Information for State Insurance Commissioners.

nbmtlink.org, National Bone Marrow Transplant Link.

nccc-online.org, National Cervical Cancer Coalition.

nccd.cdc.gov/dcpc_Programs/default.aspx?NPID=4

nccd.cdc.gov/dcpc_Programs/index.aspx, Find a Screening Provider Near You.

ncsl.org/programs/health/drugaid.htm, State Pharmaceutical Assistance Programs.

needymeds.org, NeedyMeds.

nfcc.org, National Foundation for Credit Counseling.

nfcc.org/agency-locator/

nhpco.org, National Hospice and Palliative Care Organization.

oralcancerfoundation.org, The Oral Cancer Foundation.

ovarian.org, National Ovarian Cancer Coalition.

ovariancancer.org, Ovarian Cancer National Alliance.

pancan.org, Pancreatic Cancer Action Network.

patientadvocate.org, Patient Advocate Foundation.

patientadvocate.org/help.php?p=480PAF Publications

patientadvocate.org/index.php?p=69

patientadvocate.org/resources.php?p=749Patient Resources

patientadvocate.org/resources.phpScholarships for Survivors

patienttravel.org, National Patient Travel Center.

portal.hud.gov/portal/page/portal/HUD/localoffices, HUD's Local Offices.

portal.hud.gov/portal/page/portal/HUD/topics/homelessness, Resources and Information on Homelessness.

portal.hud.gov/portal/page/portal/HUD/topics/rental_assistance, Rental Assistance.

preventcancer.org, Prevent Cancer Foundation.

rmhc.org, Ronald McDonald House Charities®.

safefromthesun.org, Melanoma International Foundation.

salvationarmy.org/ihq/www_sa.nsf, The Salvation Army International Headquarters.

salvationarmyusa.org, The Salvation Army National Headquarters.

sarcomaalliance.org, Sarcoma Alliance.

secure3.convio.net/ftb4lc/site/SSurvey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=3760, Free Patient and Awareness Resources (including Information Kit for Newly Diagnosed Patients).

sharsheret.org, Sharsheret.

sistersnetworkinc.org, Sisters Network®, Inc.

sites.google.com/site/merkelcellcarcinomaseattle/home, Merkel Cell Carcinoma Support Group.

skincancer.org, Skin Cancer Foundation.

socialsecurity.gov/compassionateallowances, Compassionate Allowance Initiative.

spohnc.org, Support for People with Oral and Head and Neck Cancer.

ssa.gov, Social Security Administration.

ssa.gov/ssi, Supplemental Security Income (SSI).

stopbreastcancer.org, National Breast Cancer Coalition.

theial.com, International Association of Laryngectomees.

themmrf.org, Multiple Myeloma Research Foundation.

thesamfund.org, Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer.

thyca.org, Thyroid Cancer Survivors' Association, Inc.

tnbcfoundation.org/helpline.htm, Triple Negative Breast Cancer Helpline.

uhccf.org, UnitedHealthcare Children's Foundation.

uicc.org, Union for International Cancer Control.

uicc.org/membership/list.

ulmanfund.org, The Ulman Cancer Fund for Young Adults.

urologyhealth.org, Urology Care Foundation.

ustoo.org, Us TOO® International, Inc.

youngsurvival.org, Young Survival Coalition.

zerocancer.org, ZERO the End of Prostate Cancer

 

Financial Assistance, General Living Expenses

 

acco.org, American Childhood Cancer Organization.

benefits.gov, Benefits.gov.

benefits.gov/benefits/benefit-finder/#benefits&qc=cat_1, Core Questions: Benefit Finder.

benefits.gov/benefits/browse-by-category, Browse for Benefits by Category.

benefits.gov/benefits/browse-by-state, Browse for Benefits by State.

cancercare.org, CancerCare.

cancercare.org/financial

CancerCare Co-payment Assistance Foundation 1-866-552-6729

cancercarecopay.org.

cancerfac.org, Cancer Financial Assistance Coalition.

catholiccharitiesusa.org, Catholic Charities USA.

catholiccharitiesusa.org/find-help, List of Member Agencies.

children-cancer.org, The National Children's Cancer Society.

cleaningforareason.org, Cleaning for a Reason Foundation.

connections.govbenefits.gov/ssa_en.portal, Benefit Eligibility Screening Tool (BEST).

eldercare.gov, Eldercare Locator.

eldercare.gov/Eldercare.NET/Public/Resources/Resources.aspx, Fact Sheets and Booklets.

es.benefits.gov, Benefits.gov in Spanish.

hhs.gov, U.S. Department of Health and Human Services

livehelp.cancer.gov, LiveHelp Online Chat.

liveunited.org, United Way Worldwide.

liveunited.org/myuw, Find a Local United Way Organization.

lls.org, Leukemia and Lymphoma Society.

lymphoma.org, Lymphoma Research Foundation.

nih.gov, National Institutes of Health

salvationarmyusa.org, The Salvation Army National Headquarters.

socialsecurity.gov/compassionateallowances, Compassionate Allowance Initiative.

ssa.gov, Social Security Administration.

ssa.gov/ssi, Supplemental Security Income (SSI).

thesamfund.org, Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer.

youtube.com/ncigov, YouTube.

 

Health Insurance (includes co-payments)

 

benefits.gov, Benefits.gov.

benefits.gov/benefits/benefit-finder/#benefits&qc=cat_1, Core Questions: Benefit Finder.

benefits.gov/benefits/browse-by-category, Browse for Benefits by Category.

benefits.gov/benefits/browse-by-category/category/MED+, State Medicaid Offices.

benefits.gov/benefits/browse-by-state+, Additional State Benefit Programs.

benefits.gov/benefits/browse-by-state, Browse for Benefits by State.

cancer.org, American Cancer Society.

cancer.org/treatment/supportprogramsservices/index, Support Programs and Services webpage, or call the toll-free number above.

cancercare.org, CancerCare.

cancercare.org/financial

CancerCare Co-payment Assistance Foundation 866-552-6729

cancercarecopay.org, CancerCare Co-Payment Assistance Foundation.

cancerfac.org, Cancer Financial Assistance Coalition.

cdc.gov/cancer/nbccedp, National Breast and Cervical Cancer Early Detection Program Centers for Disease Control and Prevention, Division of Cancer Prevention and Control.

children-cancer.org, The National Children's Cancer Society.

cms.gov/MedicaidGenInfo, Medicaid (Medical Assistance).

cms.hhs.gov/RegionalOffices, Regional Medicare Offices.

eapps.naic.org/cis, Consumer Information Source (CIS) Tool.

eapps.naic.org/cis/fileComplaintMap.do, File Complaint with State Insurance Department.

es.benefits.gov, Benefits.gov in Spanish.

espanol.insurekidsnow.gov/enes, CHIP Web site in Spanish.

healthcare.gov, Healthcare.gov.

healthwellfoundation.org, HealthWell Foundation®.

insurekidsnow.gov, Children's Health Insurance Program.

insurekidsnow.gov/state/index.html, Locate State Health and Oral Care Providers.

insureuonline.org, Insure U - Get Smart About Insurance.

insureuonline.org/insureu_library.htm, Consumer Resources and Guides on Insurance.

livestrong.org, LIVESTRONG.

livestrong.org/we-can-help/fertility-services, LIVESTRONG Fertility.

livestrong.org/we-can-help/young-adults, Services for Young Adults.

lls.org/copay, Leukemia and Lymphoma Society Co-Pay Assistance Program.

medicare.gov, Medicare.

medicare.gov/contacts/organization-search-criteria.aspx, State Health Insurance Assistance Program.

medicare.gov/navigation/medicare-basics/medicare-benefits/medicare-benefits-overview.aspx, Medicare Benefits - Parts A,B,C,D.

naic.org, National Association of Insurance Commissioners.

naic.org/state_web_map.htm, Contact Information for State Insurance Commissioners.

nccd.cdc.gov/dcpc_Programs/index.aspx, Find a Screening Provider Near You.

patientadvocate.org, Patient Advocate Foundation.

patientadvocate.org/help.php?p=480PAF Publications

patientadvocate.org/index.php?p=69

patientadvocate.org/resources.php?p=749Patient Resources

patientadvocate.org/resources.phpScholarships for Survivors

sistersnetworkinc.org, Sisters Network®, Inc.

thesamfund.org, Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer.

uhccf.org, UnitedHealthcare Children's Foundation.

 

Lodging and Travel

acco.org, American Childhood Cancer Organization.

aircharitynetwork.org, Air Charity Network™, 877-621-7177

benefits.gov, Benefits.gov.

benefits.gov/benefits/benefit-finder/#benefits&qc=cat_1, Core Questions: Benefit Finder.

benefits.gov/benefits/browse-by-category, Browse for Benefits by Category.

benefits.gov/benefits/browse-by-state, Browse for Benefits by State.

cancer.org, American Cancer Society.

cancer.org/treatment/supportprogramsservices/index, Support Programs and Services webpage, or call the toll-free number above.

cancercare.org, CancerCare.

cancercare.org/financial, ) or call the toll-free number above. If assistance is not available, CancerCare’s oncology social workers can refer to other financial assistance resources.Co-payment assistance for chemotherapy and targeted therapy drugs might also be available from CancerCare. For information, contact the CancerCare Co-payment Assistance Foundation (1-866-552-6729;

 

cancercare.org/financial.

cancercarecopay.org.

cancerfac.org, Cancer Financial Assistance Coalition.

catholiccharitiesusa.org, Catholic Charities USA.

catholiccharitiesusa.org/find-help, List of Member Agencies.

children-cancer.org, The National Children's Cancer Society.

corpangelnetwork.org, Corporate Angel Network.

curemeso.org, Mesothelioma Applied Research Foundation.

eldercare.gov, Eldercare Locator.

eldercare.gov/Eldercare.NET/Public/Resources/Resources.aspx, Fact Sheets and Booklets.

es.benefits.gov, Benefits.gov in Spanish.

gooddaysfromcdf.org, Good Days.

gooddaysfromcdf.org/for-patients/diseases-and-medications-covered, Diseases and Drugs Covered.

hhnetwork.org, Healthcare Hospitality Network.

hud.gov, U.S. Department of Housing and Urban Development.

hud.gov/homeless/hmlsagen.cfm, Local Homeless Assistance by State.

hud.gov/offices/hsg/sfh/hcc/hcs.cfm, HUD Approved Housing Counseling Agencies.

joeshouse.org, Joe's House.

joeshouse.org/Default.aspx?tabid=55, Search for Lodging.

livestrong.org, LIVESTRONG.

livestrong.org/we-can-help/fertility-services, LIVESTRONG Fertility.

livestrong.org/we-can-help/young-adults, Services for Young Adults.

liveunited.org, United Way Worldwide.

liveunited.org/myuw, Find a Local United Way Organization.

lodging.hhnetwork.org.

lymphoma.org, Lymphoma Research Foundation.

patienttravel.org, National Patient Travel Center.

portal.hud.gov/portal/page/portal/HUD/localoffices, HUD's Local Offices.

portal.hud.gov/portal/page/portal/HUD/topics/homelessness, Resources and Information on Homelessness.

portal.hud.gov/portal/page/portal/HUD/topics/rental_assistance, Rental Assistance.

rmhc.org, Ronald McDonald House Charities®.

safefromthesun.org, Melanoma International Foundation.

salvationarmyusa.org, The Salvation Army National Headquarters.

sarcomaalliance.org, Sarcoma Alliance.

sistersnetworkinc.org, Sisters Network®, Inc.

thesamfund.org, Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer.

 

Medication includes co-payments

benefits.gov/benefits/browse-by-category/category/MED+, State Medicaid Offices.

benefits.gov/benefits/browse-by-state+, Additional State Benefit Programs.

cancercare.org, CancerCare.

cancercare.org/financial.

cancercarecopay.org, CancerCare Co-Payment Assistance Foundation.

cancerfac.org, Cancer Financial Assistance Coalition.

cms.gov/MedicaidGenInfo, Medicaid (Medical Assistance).

cms.hhs.gov/RegionalOffices, Regional Medicare Offices.

copays.org, Co-Pay Relief Program.

gooddaysfromcdf.org, Good Days.

gooddaysfromcdf.org/for-patients/diseases-and-medications-covered, Diseases and Drugs Covered.

healthwellfoundation.org, HealthWell Foundation®.

livestrong.org, LIVESTRONG.

livestrong.org/we-can-help/fertility-services, LIVESTRONG Fertility.

livestrong.org/we-can-help/young-adults, Services for Young Adults.

liveunited.org, United Way Worldwide.

liveunited.org/myuw, Find a Local United Way Organization.

lls.org/copay, Leukemia and Lymphoma Society Co-Pay Assistance Program.

medicare.gov, Medicare.

medicare.gov/navigation/medicare-basics/medicare-benefits/medicare-benefits-overview.aspx, Medicare Benefits - Parts A,B,C,D.

medicare.gov/pharmaceutical-assistance-program/state-programs.aspx, Search for State Pharmaceutical Assistance Programs.

ncsl.org/programs/health/drugaid.htm, State Pharmaceutical Assistance Programs.

needymeds.org, NeedyMeds.

sistersnetworkinc.org, Sisters Network®, Inc.

 

Scholarships and Camps

 

acco.org, American Childhood Cancer Organization.

benefits.gov, Benefits.gov.

benefits.gov/benefits/benefit-finder/#benefits&qc=cat_1, Core Questions: Benefit Finder.

benefits.gov/benefits/browse-by-category, Browse for Benefits by Category.

benefits.gov/benefits/browse-by-state, Browse for Benefits by State.

campkesem.org, Camp Kesem.

cancerfac.org, Cancer Financial Assistance Coalition.

cbtf.org, Children's Brain Tumor Foundation.

children-cancer.org, The National Children's Cancer Society.

es.benefits.gov, Benefits.gov in Spanish.

finaid.org, FinAid! The SmartStudent Guide to Financial Aid.

komen.org, Susan G. Komen for the Cure®.

patientadvocate.org, Patient Advocate Foundation.

patientadvocate.org/help.php?p=480PAF Publications

patientadvocate.org/index.php?p=69

patientadvocate.org/resources.php?p=749Patient Resources

patientadvocate.org/resources.phpScholarships for Survivors

rmhc.org, Ronald McDonald House Charities®.

salvationarmyusa.org, The Salvation Army National Headquarters.

thesamfund.org, Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer.

ulmanfund.org, The Ulman Cancer Fund for Young Adults.

 

Chapter 6. Cancer Organization Website Guide

 

A List of Cancer Organizations 1

 

patientpower.info/resources

 

American Cancer Society

cancer.org

(800) ACS-2345

 

American Society of Clinical Oncology (ASCO)

asco.org

(703) 299-0150

ASCLS

 

ascls.org

(571) 748-3770

 

CanCare

cancare.org

(888) 461-0028

 

CancerCare

cancercare.org

(800) 813-HOPE

 

Cancer Today | AACR (American Association for Cancer Research)

aacr.org

(866) 423-3965

 

chemotherapy.com

(800) 772-6436

 

ClinicalTrials.com

clinicaltrials.com

(800) 664-5099

ClinicalTrials.gov

 

clinicaltrials.gov

(888) FIND-NLM

 

Consumer Dangers

consumerdangers.com

 

European Association for Palliative Care (EAPC)

eapcnet.eu/

 

Imerman Angels

imermanangels.org

(866) 463-7626

 

International Melanoma Foundation

safefromthesun.org

(866) 463-6663

 

Lab Tests Online

labtestsonline.org

 

Lung Cancer Online

lungcanceronline.org

 

Melanoma International Foundation

melanomaintl.org

(866) 463-6663

 

Medivizor

Multiple Myeloma FIGHTERS!

mmfighters.home.comcast.net/

(425) 432 2928

 

National Bone Marrow Transplant Link

nbmtlink.org

(800) 546-5268

 

National Cancer Institute

cancer.gov

(800) 422 6237

 

National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM)

nccaom.org

(703) 548-9004

 

People Living With Cancer

plwc.org

(703) 797-1914

 

Prostate Cancer Petition

prostatecancerpetition.org

 

Sharsheret

sharsheret.org

(866) 474-2774

 

Stress, Anxiety and Depression Resource Center

stress-anxiety-depression.org

 

Strike Out Cancer

strikeoutcancer.org

(617) 308-4468

 

The Leukemia and Lymphoma Society

lls.org

(800) 955 4572

 

The National Pain Foundation

nationalpainfoundation.org

(303) 783-8899

 

The US Oncology Network

usoncology.com

(800) 381-2637

 

The Wellness Community

thewellnesscommunity.org

(888) 793 WELL

 

Us TOO International

ustoo.com

(800) 329-1165

 

Washington Comprehensive Cancer Control Partnership

doh.wa.gov/YouandYourFamily/IllnessandDisease/Cancer/ComprehensiveCancerControl.aspx

(360) 236 3784

 

Zero, The Project to End Prostate Cancer

zerocancer.org

(888) 245-9455

 

A List of Cancer Organizations 2

 

American Institute for Cancer Research

1759 R St. Nw

Washington, Dc 20069

202-328-7744

800-843-8114

aicrweb@aicr.org

aicr.org

Information hotline, penpal club.

 

Cancer Counseling and Research Center

1300 Summit

#710

Ft. Worth, Tx 76102

817-335-4823

 

Cancer Research Foundation of America

200 Daingerfield Rd.

#200

Alexandria, Va 22314

800-227-Crfa

crfa.org

preventcancer.org

Support organization offering education and treatment.

 

Cancer Research Institute

681 5th Ave.

Nyc 10022

800-99 Cancer

800-Ourgift

cancerres@aol.com

cancerresearch.org

 

European Organization For

Research On Treatment of Cancer

Institute Jules Bordet

1000 Brussels, Belgium

 

Food and Drug Administration FDA

Emergency Investigational New Drug

IND-Program

Drug Information Branch

Cancer Liaison Program

5600 Fishers Lane

Parklawn Building, Room 949

Rockville, MD 20857

301-827-4573, Drug Information Branch

Fax. 301-827-4577

fda.gov

People with cancer not eligible for clinical

trials may be able to receive drugs not

yet approved by the FDA by having their

doctor apply for an Emergency IND.

 

Hereditary Cancer Institute

Creighton University

2500 California Plaza

Omaha, Ne 68178

800-648-8133

Research on the genetic basis of cancer

 

National Coalition for

Cancer Research

800-9-Research

Free information.

 

National Foundation for Cancer Research

7315 Wisconsin Ave.

#332

Bethesda, Md 20891

301-654-1250

 

United Cancer Research Society

Highland, Ca

800-286-0958

 

American Cancer Society

cancer.org

 

The American Institute for Cancer Research

aicr.org

 

The American College of Radiation Oncology

acro.org

 

American Society for Therapeutic Radiology And Oncology

astro.org

 

American Association for Cancer Research

aacr.org

 

ASCO - American Society of Clinical Oncology

asco.org

 

The American Society of Pediatric Hematology/Oncology

aspho.org

 

Association for International Cancer Research

aicr.org.uk

 

Breast Cancer Society of Canada

bcsc.ca

 

British Association Of Surgical Oncology

baso.org.uk

 

Canadian Cancer Society - Société canadienne du cancer

cancer.ca

 

Canadian Oncology Societies

cos.ca

 

European Association of Dermato-Oncology

eado.org

 

EANO-European-Association for NeuroOncology

eano.de

 

European Society of Surgical Oncology

esso-surgeonline.be

 

Federation of European Cancer Societies

fecs.be

 

The Institute of Cancer Research

icr.ac.uk

 

International Psycho-Oncology Society

ipos-society.org

 

National Cancer Center

ncc.go.jp

 

National Cancer Institute of Canada

ncic.cancer.ca

 

Oncology Nursing Society

ons.org

 

Society of Gynecologic Oncologists

sgo.org

 

Society for Neuro-Oncology

soc-neuro-onc.org

 

The Society of Surgical Oncology

surgonc.org

 

Singapore Cancer Society-Breast Cancer

singaporecancersociety.org.sg

 

Breast Cancer Foundation Singapore

bcf.org.sg

 

A List of Cancer Organizations 3

 

CFAC - Cancer Financial Assistance Coalition

financial assistance organizations help cancer patients

cancerfac.org

 

Healthwell Foundation

healthwellfoundation.org

 

Financial Assistance Options

Options for financial assistance from the National Cancer Institute. supportorgs.cancer.gov/home.aspx.

 

CancerCare

CancerCare is a national nonprofit, 501c(3) organization providing free, professional support services to anyone affected by cancer: 800-813- HOPE (4673)

cancercare.org/helpinghand.

 

Patient Advocate Foundation

The Patient Advocate Foundation has a national financial resource directory to assist patients find financial assistance.

patientadvocate.org

877-563-7468

 

American Brain Tumor Association

abta.org

 

Boston Cancer Support

Massachusetts

bostoncancersupport.org.

 

Cancercare

free, professional support services

cancercare.org

 

Cancer Hope Network

cancerhopenetwork.org.

 

Cancer Monthly

cancermonthly.com.

 

Chemocare

Chemocare.com

 

Coalition of Cancer Cooperative Groups

cancertrialshelp.org.

 

Cure Magazine

curetoday.com

onclive.com

 

Cancer Support Community

cancersupportcommunity.org.

 

CaringBridge

caringbridge.org

 

Esophageal Cancer Awareness Association

ecaware.org.

 

Lance Armstrong Foundation

livestrong.org.

 

Lung Cancer Alliance

lungcanceralliance.org

 

ManageCare

ManageCancer.org

finances, medication, travel, housing

managecancer.org

 

The Melanoma International Foundation

melanomaforum.org.

 

Michael's Mission

colorectal cancer

michaelsmission.org.

 

National Brain Tumor Society

braintumor.org.

 

Teen Cancer America

teencanceramerica.org.

 

The 4th Angel Mentoring Program

matches cancer patients and their caregivers with a volunteer

4thangel.org.

 

The National Coalition for Cancer Survivorship (NCCS)

canceradvocacy.org.

 

The National Comprehensive Cancer Network

nccn.com.

 

Patient Advocate Foundation

patientadvocate.org.

 

Patient Resource Cancer Guide

map the cancer journey

list of cancer treatment facilities

patientresource.com

 

Sarcoma Alliance

sarcomaalliance.org.

 

The Life Raft Group

GIST-(gastrointestinalstromal tumor) patients

liferaftgroup.org

 

Vital Options

global cancer dialogue vitaloptions.org

 

Lotsa Helping Hands

caregiving coordination service

lotsahelpinghands.com

 

My Life Line

mylifeline.org.

 

A List of Cancer Organizations 4

 

cancer.org, American Cancer Society.

 

asco.org, American Society of Clinical Oncology 

 

cancer.gov/cancerinformation

 

cancernews.com, Cancer News on the Net 

 

leukemia.org, Leukemia and Lymphoma Society 

 

natlbcc.org, National Breast Cancer Coalition 

 

oncolink.upenn.edu, OncoLink: Cancer database 

 

blochcancer.org, R.A. Bloch Cancer Foundation: Practical advice

 

healthwatcher.net/ISCAN/index.html, Skin Cancer Awareness Network

 

aap.org/sections/hemonc/index.htm, American Academy of

Pediatrics, Section on Hematology/Oncology

847-434-4000

Fax: 847-434-8000

 

oncolink.upenn.edu, Oncolink, University of Pennsylvania.

215-349-8895

Fax: 215-349-5445

 

aacr.org, American Association for Cancer Research.

215-440-9300

866-423-3965

Fax: 215-440-9313

 

acro.org, American College of Radiation Oncology.

301-368-3733

Fax: 630-571-7837

 

asco.org, American Society of Clinical Oncology (ASCO).

703-299-0150

Fax: 703-299-1044

 

aspho.org, American Society of Pediatric Hematology/Oncology.

847-375-4716

Fax: 847-375-6316

 

astro.org, American Society for Therapeutic Radiology and

Oncology.

800-962-7876

703-502-1550

Fax: 703-502-7852

aosw.org, Association of Oncology Social Workers.

215-599-6093

Fax: 215-545-8107

 

apon.org, Association of Pediatric Oncology Nurses.

847-375-4724

Fax: 877-734-8755

 

bonetumor.org, Bone Tumor.org

Educational site run by doctors.

617-965-6301

 

cancercare.org, Cancer Care. org

Excellent Information and Assistance Resources, Phone

800-813-4673

Fax: 212-712-8495 

 

childrensoncologygroup.org, Children's Oncology Group

(Formerly CCG and POG).

626-447-0064

Fax: 626-445-4334

 

iarc.fr, International Agency for Research on Cancer (IARC).

33-0-4-72-73-84-85

Fax: 33-0-4-72-73-85-75

 

siop.nl, International Society of Paediatric Oncology.

011-31-40-269-75 44

Fax: 011-31-40-269-75-45

 

ons.org, Oncology Nursing Society.

412-859-6100

866-257-4667

Fax: 412-859-6162

 

opnet.org, Oncology Physician Network.

215-728-3539

Fax: 215-728-4766

 

sarcoma.net, Sarcoma.net.

617-632-5122

Fax: 617-632-3408

 

ukccsg.org, United Kingdom Children's Cancer Study Group.

44-0-116-249-4460

Fax: 44-0-116-254-9504

 

A List of Cancer Organizations 5

 

livestrong.org/

aicr.org/

gildasclub.com/

cancer.org/

lls.org/

teamintraining.org/

stjude.org/

allbloodcancers.org

charitynavigator.org

lymphoma.org

themmrf.org/

bethematch.org/

nccn.org/patients/guidelines/cancers.aspx

lymphomaresources.com/

lungevity.org/

lungevity.org/events/hope-summit-events

lungcanceralliance.org/

lung.org/

iaslc.org/

lcfamerica.org/about/

cancercare.org/

cancer.gov

 

cancer.org, American Cancer Society.

800-227-2345

404-320-3333

Fax: 404-325-0230,

Umbrella cancer organization.

 

aicr.org, American Institute for Cancer Research.

800-843-8114

202-328-7744

Fax: 202-328-7226

 

abc-survivors.net, Adult Bone Cancer Survivors Stories of Survivors.

 

cancer.ca, Canadian Cancer Society.

888-939-3333

416-961-7223

Fax: 416-961-4189,

Canadian cancer organization.

 

cancercare.org, Cancer Care, Inc.

212-712-8400

Fax: 212-712-8495,

Counseling, support groups and info.

 

cancerresearch.org, Cancer Research Institute.

800-992-2623

212-688-7515

Fax: 212-832-9376,

Immunologic treatment.

 

candlelighters.org, Candlelighters Childhood Cancer Foundation.

800-366-2223

301-962-3520

Fax: 301-962-3521

 

candlelighters.ca, Candlelighters Childhood Cancer Foundation of

Canada.

800-363-1062

416-489-6440

Fax: 416-489-9812

 

chailifeline.org, Chai Lifeline.

877-CHAI-LIFE

212-465-1300

Fax: 212-465-0949Supports

Jewish Families and parents with Catastrophically and chronically

ill children.

 

fertilehope.org, Fertile Hope.

888-994-HOPE A nonprofit organization dedicated to helping cancer

patients faced with infertility.

 

flashesofhope.org, Flashes of Hope.

440-442-9700Dedicated to creating uplifting portraits of children

fighting cancer and other life threatening illnesses.

 

locksoflove.org, Locks of Love.

888-896-1588

561-963-1677

Fax: 561-963-9914An

organization dedicated to assisting children with hair loss.

 

nahhh.org, National Association of Hospital Hospitality Houses,

Inc.

800-542-9730

828-253-1188

Fax: 828-253-8082

 

blochcancer.org, National Cancer HotlineTalk with a Survivor.

1-800-433-0464

816-932-8453

Fax: 816-931-7486

 

cancer.gov/cancer_information, National Cancer Institute.

 

nationalchildrenscancersociety.com, National Children's Cancer

Society.

800-532-6459

314-241-1600

Fax: 314-241-1996

 

curesearch.org, National Childhood Cancer Foundation.

800-458-6223

626-447-1674

Fax: 626-447-6359,

Information for families of children with cancer

 

sarcomaalliance.com, Sarcoma Alliance and Foundation.

415-381-7236

Fax: 381-7235,

Nice Information and Support Site for all Sarcomas

 

speciallove.org, Special Love, Inc.

540-667-3774

Fax: 540-667-8144offers

programs to help children with cancer experience normal things that

healthy children experience every day; laughing, running, swimming,

and friends.

 

icccpo.org, The International Confederation of Childhood Cancer

Parent Organizations.

011-31-30-242-2944.

Fax: 011-31-30-242-2945

 

naccpo.org.uk, The National Alliance of Childhood Cancer Parent

Organizations.

011-44-1785 603763

 

icare.org, International Cancer Alliance.

800-ICARE61

301-656-3461