Chronic Illness

 

Volume 56. A Chronic Illness Guide

 

Chapter 1. When it Gets Serious

 

How to Face a Serious Illness

 

Your genetics and other factors are out of your hands but you can control your health to some extent.  If you don't take care of it now, someday you'll have to because you'll get seriously ill from all those years of neglect.

 

Everybody wants peace regardless of whether you're healthy, facing a serious illness or know you're about to die.  We have to deal with the reality of the hand we're dealt, make peace with it and do whatever it is we have to do to maximize the full use of our lives.

 

The most important way in my opinion to take care of your health is to sweat out the toxins.  I do it through physical activities.  I think that's the most underrated cause of all illness; taking in toxins through food, drink and the way we breathe and not flushing them out.

 

Anybody who suddenly gets news of either a serious illness or gets a serious injury through an accident experiences the same things regardless of what this condition might be.  First it's shock, denial, anger and depression.  This could either go to thoughts of suicide or acceptance of the condition and an attempt to make the best of it.

 

The best cure for anything is prevention but now it's too late for that.  Most people live their lives oblivious to the medical profession and oblivious to the general principles of healthy living until something drastic hits them then all of a sudden their lives are enveloped by it and that's it. 

Think of the spinal cord injury patient, the guy who gets Parkinson's disease, the 32 year old girl who gets breast cancer, all cases I pulled off the top of my head based on things that happened to celebrities which were sensationalized in the media but the truth is that these things happen to people all the time in your neck of the woods so despite the tragedy, it's a relatively common occurrence, not that I want to minimize it but people generally live in a fog and when something medical hits that leaves their lives turned around, they often don't have a clue on how to proceed. 

 

They think the doctor will take care of them but he's only one guy who sandwiches them in amongst 30 or so other patients.  He's not a god.  Educate yourself about what's ailing you.  The best course of action for your medical care is first to find the right doctor. 

 

Once you're diagnosed for anything, do some research on your own at the library to find out what the alternative treatments are.  Try the internet and medical libraries.  Take charge of the illness.  Don't let it defeat you.  Education is everything.

 

Check out every clinical trials and experimental drug websites to see if you can get on as a patient.

 

Second opinions for a serious condition are always advisable since some doctors are biased towards their specialty and may recommend the higher priced treatments. 

 

If you go to a guy who was educated as a surgeon, guess what he likes to do even if there are other less invasive treatments available? 

 

When choosing a doctor, you're most likely to go with a general practitioner who specializes in family health then he can refer you to a specialist if need be.

 

A good idea is to find a person or support group who has the illness and ask them for advice.  Try to find a professional in the field who'll be your friend and mentor.  You might find such people on the internet.  Try to befriend them.  Go outside of your one local hospital and doctor to find your own sources of info.

 

As a medical researcher in my own right, after going through hundreds of medical books and journals, I've come to the conclusion that there is no one clearinghouse.  There's too much quantity plus it's always changing. 

 

It is possible that they're doing something fascinating about diabetes in an obscure lab in Australia and most of the doctors in the world don't know about it.

 

Next, you must see the illness for what it is, don't live in denial and make the necessary changes no matter how drastic.  If you have some money and can afford to quit your job to relax more, do it.  Take up gardening and walking. 

 

Start eating right, mend your personal relationships, etc.  See the illness as a gift that will propel you to change for the better.  Above all else, accept yourself.  Fight it but don't get stressed out.  Be peaceful at the same time.  That's the trick, peace. 

 

If someone close to you has a major illness, your only choice is to accept it and do the best you can.  First, deal with your anger and hurt then be supportive.  That's your only real function, to help this loved one get through it all. 

 

Your support and encouragement has a lot to do with how the afflicted one will respond and ultimately choose whether to recover or not.  A large part of medicine is holistic, in the mind, that's the headquarters, ground control. 

 

You must be positive all the time to fight off the negative forces within both in a physical and spiritual manner.  You can help by educating yourself, offering possibly new information but mostly just being a friend at a time of need. 

 

You can help take care of the details, the paperwork, the mundane stuff.  Ask that the afflicted one review her will and last testament just in case.  Ask about insurance and other practical, relevant questions.

 

Doctors are often too busy with their practices to keep up  with the latest developments in medical research.  You can start your search simply by going to the library and taking a look at a medical reference book regarding your condition.

 

Doctors researching particular illnesses are independent, working at their own labs often unaware of each other so it's up to you to find this information yourself and put it together in your own way if you've been diagnosed with a serious malady. 

 

Check out the holistic measures but beware that the field is full of quacks who act like they have some magical potion.

 

From a psychological-spiritual point of view, make peace with your God and the people in your life even if you plan to live for a long time with this condition such as a spinal cord patient. 

 

Spend time with the people you love.  Have all your paperwork in order should something happen to you. 

 

The most important things are to make peace with your God, make peace with your family and take care of your money affairs.  Take care of these things now so your family won't be stuck with the burden, such as funeral arrangements.  Write out your obituary.

 

Forgive yourself, forgive those who have wronged you in order that they don't go on feeling guilty, right old wrongs, do what you have to do like if you want to visit your hometown which you moved away from years ago, do it now, in essence, see who you feel you must and do what you feel you must so you can live out the rest of your life in peace. 

 

Make up a will.  Find the information in either my money book or at #332 and #346 at the library.

 

Plan for an uncertain future.  Don't live in denial about anything.  Keep living your life. 

 

You might snap at the people who love you the most.  Don't let them sugarcoat everything with you but at the same time, don't be too cynical with them.  It's like a character in a novel I read. 

 

Everybody knew he was dying including him but no one was real enough to admit it and talk to him about it.  They all talked about him getting well when they all knew he never would.

 

Don't live in denial.  Be honest with yourself.  Accept this new limited version of yourself which is what all older people have to do anyway. 

 

Suffering is meant to lead to wisdom as Buddhist philosophy preaches.  Be open to whatever happens to you as a gift in disguise, a lesson to be learned in life. 

 

Anthony Perkins, the actor who got AIDS, said, "I believe it was sent to teach people how to love and understand and have compassion for each other.  I have learned more about love, selflessness and human understanding from the people I have met in this great adventure in the world of AIDS than I ever did in the cutthroat, competitive world in which I spent my life."

 

Take care of yourself as best as you can.  Your looks will go.  Use that energy to be a better person rather than focussing on your looks like you used to. 

 

Don't be too proud to ask for help if you need it.  Join a support group to find people like you.

 

Find a good doctor who will talk to you about your case.  If you're in pain, tell him so he can get you on good pain control.  Don't be shy.  That's his job. 

 

Keep living your life.  If you live at home as opposed to a nursing home or hospice, get a pet.  Don't focus on death, how much time you have left, focus on life. 

 

Get the help you need.  Hire a caregiver if you need one.  If you're very ill, you might have to move to a long-term care or nursing home for awhile or permanently.  Your local office of aging (even if you're young) and the eldercare locator, 800-677-1116, eldercare.com, can help you.

 

Most people have had several people close to them get serious illnesses (AIDS, breast cancer, heart attack, stroke) and accidents (car accidents, diving accident) then, all of a sudden, their lives changed forever.  A few make it, some don't. 

 

Your whole outlook on the frivolity of youth changes after you get breast cancer at 32 even if you're eventually cured of it.  You realize how flimsy life is, how many people in your community are going through the same things and how much further medical research has to go.

 

Currently, I'm tied up with my books on how to get this information out into mainstream society but somebody should start a support organization that can unite all people afflicted with any general medical condition for weekly support meetings just like Alcoholics Anonymous does and call it something like Afflictions Anonymous or People Afflicted with Medical Conditions/ PAMC. 

 

The small support groups people go to for their particular illnesses are fine but people need inspiration and strength from large numbers so that would be a good vision fulfilled, to unite large groups of people with all manner of afflictions ranging from a spinal cord patient in a wheelchair to the young girl with breast cancer to the old guy with a stroke. 

 

This would be an incredible source of regular spiritual support, political strength, education, a money-raising organization and even a place where such people could meet new friends and lovers.

 

There is a movie called Wit from 2001 about a woman's ordeal with cancer played by Emma Thompson, produced by HBO Films.  It went through the death process, covering the loss of self, the loss of dignity, the loss of bodily functions. 

 

The reason I liked it is because it reminded me of a documentary I saw about the death process.  It's not sudden and fast.  It's slow, one organ shutting down at a time.

 

Books on how to deal with whatever your particular illness might be are in the medical section of the library, #610-619, which are quite good for general information. 

 

Books about critical illness and the psychology of illness are at #616.0019 or R726.8 at the library.

 

Go to the Caregiver Resources section in this book and go to the Social Services section at the library, #362, namely #362.1 and #362.4 (disabilities) which will have books that will actually deal with the psychological-spiritual and nuts and bolts aspects on how to live with a serious medical problem. 

 

Books about how to deal with specific illnesses are at #362.100-200 or RC260-RC523 at the library.

 

The death and terminally section is #362.175 or R726 where I found very helpful information about how to deal with serious medical conditions. 

 

Devastating Diagnosis Websites

 

aftershockbook.com, jessiegruman.com, a practical guide to help you deal with a devastating diagnosis.

breastcancer.                            dead website, try dotdash.com, tripsavvy.com, thoughtco.com and thebalance.com
/lw/health-medicine/conditions-and-diseases/the-psychological-

healthyresources.com/copd/courage/devastation.html

impact-of-a-breast-cancer-diagnosis.htm

suite101.com/article.cfm/483/2921, a devastating diagnosis.

venturacountystar.com/news/2008/sep/27/bell-has-the-answer-for-devastating-diagnosis

wnyc.org/shows/lopate/episodes/2007/03/26/segments/76041, facing a devastating diagnosis.

 

Serious Illness Websites/ Life-Threatening Illness Websites

 

hda.org.uk/research/research.php, quality of life issues in chronic illness

intent.com/intentteam/blog/how-cope-serious-illness

aarp.org/yourhealth/diseases/articles/online_tools_help_cope_with_serious_illness.html

patientadvocate.org/help.php?p=179, how to cope with a family illness

ehow.com, how to cope with a family illness.

rand.org/pubs/notes/n1907

abcnews.go.com/health/story?id=8217117&page=1, online tools for coping with illness

usatoday.com/tech/columnist/kimkomando/2009-07-30-online-medical_n.htm, online tools help cope with serious illness

iplaybacknetworker.com/product/453/54, helping couples cope with serious illness and disability

rand.org/pubs/notes/n1907, a conceptual framework of coping with serious illness.

psa-rising.com/eatingwell/twochefs.htm, love of food to help cope with serious illness

ag.ndsu.edu/pubs/yf/famsci/fs527w.htm

catmcc.com/category/terminal-illness-2.html

webraydian.com/articles/article474-diagnosis_incurable.html

wrongdiagnosis.com/medical/incurable.htm

cartoonstock.com/directory/i/incurable.asp

blogmarks.net/marks/tag/incurable, diagnosis

dyingtogetwell.com

jacksonville.com/tu-online/stories/020 308/met_243172546.shtml

canceradventures.org

healthclubsfitness.com/diagnosis-incurable

janisvallely.com/new.htm, book.

vivekan.org, the personal account of how a gay couple faced the challenges of two life-threatening illnesses: first a brain hemorrhage and then the diagnosis of glioblastoma multiforme.

canceradventures.org

acornpublishing.com

artheals.org

artofgettingwell.com

believeandmanifest.info/healinglife

bioacousticsforsoundhealth.com

butyoudontlooksick.com, a patient with lupus: live life to the fullest rarediseases.org

cancerfightingstrategies.com

centeringprayer.com

chronicallyhappy.com, joyful living in spite of chronic illness.

chronicbabe.com, support and humor from jenni prokopy

chronicillnet.org

donaldepstein.com

edis.ifas.ufl.edu/as027, an analysis of serious occupational diseases and poisoning.

en.wikipedia.org/wiki/disease_management_(health)

enabledonline.com

friendshealthconnection.org, 800-483-7436.

fxmed.com

globalideasbank.org/la/la-4.html

healingloss.com

healingmusic.org

healproject.org

healthcomm.com

heal-the-soul.com

healthjourneys.com, 800-800-8661, imagery tapes.

healthydoctors.com

jewishhealingcenter.org/ijhr/ijhr.pdf, international jewish healing retreats

jewishjournal.com/community_briefs/article/healing_community_rises_from_lifethreatening_illness_20061215

learningplaceonline.com/illness-intro.htm

leiomyosarcoma.org.uk/drafts/emotional.htm

lifechallenges.org

livingdying.org

lulu.com/content/2176978

medicalnewstoday.com/articles/53789.php, spouse's personality influences your chances of recovery.

meetinglifeschallenges.com

nlm.nih.gov/medlineplus/rehabilitation.html

partnershipforparents.org, an online guide for parents of seriously ill children.

pdf.org/en/children_cope_pd, helping your children cope with your parkison's disease.

growthhouse.org, resources for life threatening illnesses and end of life care.

ph.ucla.edu/epi/bioter/seriousdiseases.html

procovery.com

psychicsurgeon.org

righthealth.com

sacredhealingcenter.net

selfhealing.org

spcare.org/resources/books/featured-boundlesshealing.html

speakingtree.co.uk/bookpages/16500.htm, the healing power of sound by mitchell l. gaynor.

spiritualityhealth.com

stanford.edu/group/perc, patient education research center.

suite101.com/reference/life_threatening_illness

support-group.com

supportivecarecoalition.org

supportivecarecoalition.org/toolsexcellence/applied_clin_research/living_and_healing_ex_sum.pdf

thebody.com/content/art30900.html, fighting for your life: how to survive a life-threatening illness.

therapeuticsdaily.com

thetahealingcanada.com

tibetanbowltherapy.com, sound therapy.

time-alterations.org

vsbcorp.com, vsb corp.; financial resources for people living with any life threatening illness

 

Academy for Guided Imagery

800-726-2070

interactiveimagery.com

academyforguidedimagery.com

 

Americans for Better

Care of The Dying

2175 K St. Nw

#820

Washington, Dc 20037

Fax: 202-467-2271

cicd@gwu.edu

abcd-caring.com

 

Children and Serious Illness Websites

 

aacap.org/cs/root/facts_for_families/the_child_with_a_longterm_illness

amazon.com/when-someone-very-serious-illness/dp/0962050245

coordinatedcare.net/hcc.html, helping children cope with serious illness fund.

growthhouse.org/childgrv.html, helping children with grief

kidsfirst.org/addenda/2008/05/helping-children-cope-with-serious.html

thechildrenshospital.net/news/publications/shine/spring-2009/serious-illness.aspx

sesameworkshop.org

thewebbuy.com/when-someone-has-a-very-serious-illness-children-can-learn-to-cope-with-loss-and-change/0962050245/thwebu-20.html

muppetnewsflash.com/2008/05/sesame-street-helps-children-cope-with.html

kidshealth.org

vet.ohio-state.edu/assets/pdf/hospital/companionanimals/honoringthebond/helpingchildrencopefactsheet.pdf, helping children cope with the serious illness or death of a companion animal.

weirdtechnewshub.blogspot.com/2006/11/online-games-help-sick-kids-to-cope.html, online games help sick kids to cope with their illnesses.

dentalplans.com/articles/4654/, help children cope children ages 3 to 18 who are coping with the serious illness or death of a loved one from cancer

 

Cancer Survivor Info

 

Books about cancer survivorship are at #362.1 at the library.

 

There are some blogs and free videos on the internet about people talking about their cancer stories.

 

sharitucker.com

shesacancersurvivor.com

resource4mesothelioma.com/topics/mesotheliomasurvivorstories.html, 800-518-5103.

mesolink.org/mesothelioma-hope/survivor-1.html

acscsn.org, the cancer survivors network

allheadlinenews.com/articles/7003582254, sister says laughter helped kylie minogue recover from cancer.

asco.org/treatmentsummary

aspencancer.org, cancer survivor center for health and wellbeing.

battling-cancer.com

beyondthecure.org/cancers-impact/medical/survivor/

blochcancer.org, 800-433-0464, talk with a survivor of your type of cancer.

breastcancercd.co.uk, breast cancer inspiration cd.

breast-cancer-infosite.com

breast-cancer-survivor.com

breastcancersurvivors.com

cafepress.com/buy/cancer-survivor, cancer survivor t-shirts.

cancer.org

cancer.org/docroot/nws/content/nws_1_1x_cancer_survivors_other_medical_problems_often_neglected.asp

canceradvocacy.org, national coalition for cancer survivorship.

cancer-care-notebook.com

cancercenter.com/hodgkins-disease.cfm

cancer-central.com, personal life experience of cancer patients, family and friends.

cancersource.com/newsfeatures/inspirationalstories/index.cfm

cancer-support.org

cancersurvivaltoolbox.org

cancersurvivor.com

cancer-survivor.org/stories/index.shtml

cancersurvivor2006.blogspot.com

cancersurvivorbook.com

cancersurvivors.org

cancersurvivorsnetwork.org

cancersurvivorsproject.org

cancervive.org, 800-4tocure

candlelighters.ca, 800-363-1062, parents and cancer survivors.

cansearch.org, 888-650-9127, 877-622-7937, cancer survivor network.

cansurvive.org, 888-yes-nccs, cancer survivorship.

cfrprogram@aol.com, 888-553-3500, casting for recovery program, teaches cancer survivors how to fish.

chemocare.com/testimonials/

clearwisdom.net/emh/articles/2005/11/2/66447.html

climbback.com, cancer survivor story.

cnn.com/health/9803/13/cancer.survivor/

crozer.org/ckhs/coe/cancer/ccmc/recovery, cancer care at crozer-keystone health system.

curetocancer.com

davesite.com/hodgkins/

dmccully.com, breast cancer survivor story.

en.wikipedia.org/wiki/cancer_survivors

en.wikipedia.org/wiki/national_coalition_for_cancer_survivorship

english.people.com.cn/200509/17/eng20050917_209080.html, tai chi helps women recover from breast cancer.

free-4u.com/young_cancer_survivor_scholarships1.htm, young cancer survivor scholarships.

health.msn.com/centers/cancer/

healthdiaries.com/cancer/prostate-cancer-survivor

healthyfoundations.com/cancer.html

iom.edu/cms/28312/4931/30869.aspx, from cancer patient to cancer survivor: lost in transition.

lgfb.ca, 800-914-5665, look good, feel better, cancer survivors.

cancer-central.com, 100 cancer survivors

personal life experience of cancer

cancernet.co.uk/poems.htm

cancerremedies.org/beat-the-medical-odds-review.html

advancedcancerhelp.com/mesothelioma_survivor.htm, mesothelioma survivors

livestrong.org, lance armstrong foundation, supports people in managing and surviving cancer, stories of survivors.

mayoclinic.com/health/cancer/ca00049, cancer survival rate: a tool to understand your prognosis.

medicinenet.com/script/main/art.asp?articlekey=33027, cancer survivor.

medterms.com/script/main/art.asp?articlekey=33021, cancer survivors.

mhs.net/cancerinstitute/socialservices.aspx, memorial regional hospital cancer institute.

ncsdf.org, 615-794-300006, national cancer survivors day foundation.

ncsdf.org, national cancer survivors, first Sunday in June.

news.bbc.co.uk/1/hi/sci/tech/1388622.stm, we can't detect any abnormalities in these fish after they recover.

newswithviews.com/howenstine/james8.htm, how to recover from cancer.

nmmlaw.com/publications/cancer.html, recovery for "fear of cancer"

npr.org/blogs/mycancer/

oatridge.co.uk/cancer.shtml, esophageal cancer diary

pancreatica.org/survivor_stories.html

recoversupport.org.uk, support for women with gynaecological cancer.

rollingtorecovery.com, rollerblading 2000 miles from glen falls, new york to greeley, colorado to raise awareness and funds for cancer.

sciencedaily.com/news/health_medicine/cancer/

shesacancersurvivor.com

springerlink.com, jrnl cancer survivorship

survivorshipmeeting.com

thehardincountynews.com/news/2006/0517/news/025.html, tips help recover from cancer treatment.

uwplatt.edu/~wiegmake/luke, this is a story of a five year old boy who fought his cancer and survived.

webmd.com/cancer

why-cancer.com/archive/2006_07_11_why_cancer_archive.html

worldwalkfoundation.com/survivor.html, breast cancer survivor stories.

 

Asian and Pacific Islander National

Cancer Survivors Network

942 Market St.

#200

Sf, Ca 94102

415-954-9988

smashingawa@juno.com

apiahf.org/cancer

 

Breast Cancer Survivor Network

888-422-4630

bcsn.org

 

Cancer Cured Kids

Pob 189

Old Westbury, Ny 11568

800-Cck-7525

516-484-8160

Fax: 516-484-8160

Support group for children cancer survivors.

 

Chemocare

800-55-Chemo

They match a patient with a cancer survivor for support.

 

Colorado Outward

Bound School

888-837-5204

Course for cancer survivors.

 

expeditioninspiration.org

208-726-6456

Retreat for cancer survivors.

 

Life Choices Wellness Center

800-439-0083

Retreat for cancer survivors.

 

National Cancer Survivors

Day Foundation

Coping Magazine

2019 N. Carothers

Franklin, Tn 37064

615-794-3006, foundation.

615-790-2400, magazine.

copingmag@aol.com

 

National Assn. of Radiation Survivors

Pob 20749

Oakland, Ca 94620

800-798-5102

510-655-4886

 

National Coalition for Cancer Survivorship

1010 Wayne Ave.

#300

Silver Spring, Md 20910

888-Yes-Nccs

877-622-7937

301-650-8868

Fax: 301-565-9670

info@cansearch.org

cansearch.org

Information and emotional support.

 

Nevada Test Site Radiation Victim Assn.

953 E. Sahara

Las Vegas, Nv 89104

702-737-6009

Legal advocacy organization for survivors and relatives of nuclear bomb tests.

 

Summits

Inner Mountain Wilderness

Education Center

907-766-2074

lifechoices@lewcenter.com

Retreat for cancer survivors.

 

Thyroid Cancer Survivors' Association/ ThyCa

Pob 1545

NYC 10159-1545

877 588 7904

Fax: 630 604 6078

thyca@thyca.org

thyca.org

 

Terminal Illness Survivor Info

 

Cancer is a huge lesson in letting go and getting clear about your true priorities.

 

People who survive serious diseases usually have a new lease on life.  They are prone to take care of themselves better than before.  Get some inspiration and tips from them.

 

angelfire.com/ms/perring/kidillness.html, dowling college: asc 183: children with terminal illnesses

answers.yahoo.com, cancer survivor

answers.yahoo.com, terminal illness

bc.com/id/13072762/ns/health-aids, aids survivors recall epidemic's early years - health - aids.

beatthemedicalodds.com, beat the medical odds - beat the medical odds

blogtalkradio.com/rss/tag/waves-of-healing.rss

bobellal.com, bob ellal - the chronicles of a four-time cancer survivor

btsurvivor.com, brain tumor

buccowich.blogspot.com/2010/06/three-year-brain-tumor-survivor.html, susan's brain tumor journey: a three-year brain tumor survivor

burnsurvivor.com

cancerguide.org/attitude.html

catholic.org/diocese/diocese_story.php?id=22288, hate disease that eats you inside.

clearwisdom.net

csn.cancer.org/node/165783

curehodgkins.com/hodgkins_experiences/stories.html

dailymail.co.uk/health/article-1172211/the-miracle-survivor-i-given-months-live--terminal-cancer-vanished.html, the miracle survivor: i was given months to live.

discovermagazine.com/2007/sep/the-body-can-stave-off-terminal-cancer-sometimes

disease.1sicherheit.org/hodgkins-disease-survivor.html

diseases.1tanzen.org/hodgkins-disease-survivor.html

ebaumsworld.com/pictures/view/7287/

emediawire.com/releases/2006/11/prweb474998.php, healthy survivor of lyme disease.

en.wikipedia.org/wiki/cancer_survivor

evenbetterhealth.com/als.asp

ezinearticles.com, spontaneous-healing---confronting-and-beating-terminal-illness

facebook.com, terminal illness

feedagg.com/feed/11110457/beat-the-medical-odds

fightandbeatbreastcancer.info

harborside.com/home/e/equinox/welcome.htm, survivor of psychiatry.

healingcancernaturally.com

heartdiseasesurvivors.com

ic-network.com/forum/archive/index.php/t-1201.html, the difference between living with a chronic illness vs. terminal.

inspire.com/groups/lung-cancer-survivors/discussion/severe-throat-pain-from-radiation-survival-outlook-discouragement

jollyblogger.typepad.com/jollyblogger/2010/11/the-trouble-with-miracle-cures.html, the trouble with miracle cures

karingerme.com/beat-the-medical-odds.html

landminesurvivors.org, landmine survivors network (lsn).

love-and-light.net, why me? why not? -- living with terminal illness, by kat hepler.

lungcancertips.com/lung-cancer/beat-the-medical-odds, beat the medical odds; lung cancer tips

mamapedia.com/article/how-to-explain-a-terminal-illness-to-my-5-1-2-year-old-son

mcsurvivors.com, chronic fatigue.

meiresearch.org, not-for-profit foundation dedicated to helping people with chronic diseases learn to manage and improve.

naturalnews.com/028808_pancreatic_cancer_survivor.html

naturalnews.com/cancer_cure.html, cancer cure news and articles

netdoor.com/~bill/prosurv/prosurv.html, prozac survivor.

npr.org/blogs/mycancer/2006/10/what_do_you_say_to_someone_with_cancer.html, what do you say to someone with cancer?

oralcancersupport.org

ppsr.com/sex_silicon_and_polio_survivors.html

survivinghuntingtons.blogspot.com

talkingaboutcancer.com/archives/category/coping

teamsurvivornw.org, northwest team survivor northwest provides a broad range of fitness and health education programs.

terminalillness.co.uk/understanding-grieving-process.html, understanding the grieving process - terminal illness

todayabundance.com/christian-inspirational-what-you-survive-only-makes-you-stronger

uams.edu/today/2002/022102/survivor.htm, heart disease survivor.

utsouthwestern.edu/utsw/cda/dept37389/files/248571.html, hodgkin disease survivors face higher risk for stroke later in life.

warwickonline.com/view/full_story_news/11202317/article-cancer-survivor-says-internet-helped-save-life?instance=secondary_stories_left_column

wiit.com, treatment program for female trauma survivors.

wiki.answers.com/q/how_many_people_are_diagnosed_with_a_terminal_illness_each_year_in_the_uk

wikicancer.org

wounded-healer.com, tales of a wounded healer

wwns.com/~lara/survs.html, survivors of abuse.

 

Burn Survivors Assn.

Ross Tilley Burn Center

Wellesley Hospital

160 Wellesley St. E.

Toronto, On M4y 1j3

416-791-0545

416-926-7021, info line.

Coalition of Silicone Survivors

Pob 129

Broomfield, Co 80038

303-469-8242

 

Heart Clubs

7320 Greenville Ave.

Dallas, Tx 75231

Support groups for heart attack survivors.

 

National Assn. of Psychiatric Survivors

Pob 618

Sioux Falls, Sd 57101

605-334-4067

Group that supports individual self-help over the mental health system.

 

Phoenix Society for Burn Survivors

11 Rust Hill Rd.

Levittown, Pa 19056

215-946-2876

800-888-2876

info@phoenix-society.org

phoenix-society.org

 

Phoenix Project

Pob 84151

Seattle, Wa 98124

206-329-1371

Support organization for head injury survivors.

 

Prozac Survivors Support Group

2212 Woodbourne Ave.

Louisville, Ky 40205

800-392-0640

502-459-2086

 

Trauma Survivors Anonymous

2022 15th Ave.

Columbus, Ga 31901

706-649-6500

 

Retreats/ Healing/ Support

 

The following are places that offer tours/ retreats/ healing and/ or support for people recovering from major medical diseases usually cancer, some for profit, some non-profit.  Most of the retreats listed here are residential.  You go there and stay overnight for a certain amount of time.

 

There are a variety of mind-body. meditation, holistic, healing, stress reduction type courses offered in any modern city.  Check with your local hospitals, the YMCA and look under "Holistic" and "Alternative Medicine" in the Yellow Pages of your local phonebook. 

 

Refer to #613.22 or RA805 at the library.

 

411cancer.com

aaom.org, oriental medicine.

accc-cancer.org, 301-984-9496, assn. of community cancer centers.

acor.org, click on "mailing lists" then click on caregivers. 

alternativemedicine.com

amacora.com/tingsha, cancer retreat, california.

artofdove.com

blochcancer.org/guide/guidechp1.html

callanish.org, retreat, british columbia, canada.

campdream.org

cancercare.org, 800-813-hope

cancerhopenetwork.org, 877-hopenet

cancervive.org, 800-4tocure

centerhealing.org

cfrprogram@aol.com, 888-553-3500, casting for recovery program, teaches cancer survivors how to fish.

commonweal.org, 415-868-0970, cancer help, cancer retreat, bolinas, ca.

dharma.org, meditation.

eatright.org

ecap-online.org, exceptional cancer patients.

expeditioninspiration.org

faceit.org

harmonyhill.org, harmonyh@halcyon.com, 360-898-2363, several retreats.

healingcenter.org

healingjourneys.com, 800-423-9882

healingodyssey.org

holisticmedicine.org

homeopathic.org

icare.org

icare.ari.net/icare

icc.bcm.tmc.edu, 713-798-4617, intercutural cancer council.

itmonline.org, traditional medicine.

jocularity.com/gilda1

medicalacupuncture.org

nfcacares.org, 800-896-3650, family caregivers.

smithfarm.com, smithfarm1@aol.com, 202-483-8600, healing arts.

teleport.com/~ormed/article1.htm, alternative treatments.

wellness-community.org, 888-793-well

wellspouse.org

windowonwellness.com

 

Bloch Cancer Foundation

4410 Main

Kansas City, Mo 64111

800-433-0464

816-932-8453

blochcancer.org

Will help newly diagnosed cancer patients with information and volunteers for support.

 

campgooddays.org

800-624-2135

 

Cancer Care

275 7th Ave.

Nyc 10001

800-813-Hope

212-221-3300

info@cancercare.org

cancercare.org

Major nonprofit helping organization.  Free resource booklet, Helping Hands: The Resource Guide for People With Cancer which has an extensive list of local cancer centers.  Services, counselling, offices in some northeastern cities.

 

Cancer Federation Inc.

21250 Box Springs Rd.

#209

Moreno Valley, Ca 92387

800-982-3720

Counseling.

 

Cancer Guidance Institute

1323 Forbes Ave.

#200

Pittsburgh, Pa 15219

412-261-2211

Consulting, self help, support groups, etc.

 

Cancer Hope Network

2 North Rd.

Chester, Nj 07930

877-Hopenet

info@cancerhopenetwork.org

cancerhopenetwork.org

Help for people in treatment.

 

Center for Attitudanal Healing

33 Buchanan Dr.

Sausalito, Ca 94965

415-331-6161

 

Chai Lifeline/Camp Simcha

48 W. 25th St.

6th Fl/

Nyc 10010

800-343-2527

212-255-1160

Fax: 212-255-1495

Jewish helping organization and summer camp for kids with cancer.

 

Chemo Care

231 N. Ave. W.

Westfield, Nj 07090

800-55chemo

908-233-1103

Fax: 908-233-0228

 

Childhood Cancer Ombudsman Program

12141 Pine Needle Ct.

Woodbridge, Va 22192

703-492-0045

Spokesman for children with cancer.

 

Colorado Outward

Bound School

888-837-5204

Course for cancer survivors.

 

Coping Magazine

Pob 682268

Franklin, Tn 37068

615-790-2400

Fax: 615-794-0179

 

earthmends.com

877-789-6565

Cancer nutrition.

 

Esalen Institute

55000 Hwy. 1

Big Sur, Ca 93920-9616

831-667-3010

Fax: 831 667 3069

esalen.org

 

Exceptional Cancer Patients/ E-Cap

53 School Ground Rd.

#3

Branford, Ct 06405

203-315-3321

203-865-8392

ecap-online.org

Support group.

 

expeditioninspiration.org

208-726-6456

Retreat for cancer survivors.

 

Famous Phone Friends

9109 Sawyer St.

La, Ca 90035

310-204-5683

Links children with a celebrity on the phone.

 

Green Gulch Farm Zen Center

Sausalito, Ca

415-383-3134

sfzc.com

 

Hawaii Cancer Help Retreat

O Ka Mana Ka Ho'ola

Pob 1236

Kamuela, Hi 96743

808-885-0995

808-885-7547

 

Inner Mountain Wilderness

Education Center

Pob 123

Haines, Ak 99827

907-766-2074

innermtn@kcd.com

caseyd.meer.net/inner_mountain/index2.htm

Insight Meditation Society

Barre, Ma

978-355-4378

dharma.org

 

International Assn. of Cancer

Victors and Friends

7740 W. Manchester Ave.

#110

Playa Del Ray, Ca 90293

213-822-5032

 

Kripalu Center

For Yoga and Health

Lenox, Ma

800-741-7353

413-637-3280

vgernet.net/kali/entrance.html

 

Life Choices Wellness Center

800-800-439-0083

Retreat for cancer survivors.

 

Life Force Cancer Project

2210 Wilshire Blvd.

#281

Santa Monica, Ca 90403

213-450-5005

 

National Coalition for Cancer Survivorship

1010 Wayne Ave.

#300

Silver Spring, Md 20910

888-Yes-Nccs

877-622-7937

301-650-8868

Fax: 301-565-9670

info@cansearch.org

cansearch.org

Information and emotional support.

 

Omega Institute of Holistic Studies

Rhinebeck, Ny

800-944-1001

omega-inst.org

Patient Advocates for Advanced Cancer Treatment

Pob 141695

Grand Rapids, Mi 49514-1695

616-453-1477

Give information about support groups.

 

spafinders.com

800-All-Spas

 

Summits

Inner Mountain Wilderness

Education Center

907-766-2074

lifechoices@lewcenter.com

Retreat for cancer survivors.

 

Tassajara Zen Mtn. Monastery

San Francisco, Ca

415-431-3771

zendo.com/~sfzc

 

The Raj

Fairfield, Ia

800-248-9050

theraj.com

 

Voyageur Outward Bound

800-321-Hike

800-328-2943

 

We Can Do

55373 W. Alabama

#250

Houston, Tx 77056

713-780-1057

Support and therapy organization for cancer patients.

 

Wellness Community

2716 Ocean Pk. Blvd.

#1040

Sm, Ca 90405

888-793-Well

310-314-2555

wellnessnational@fuse.net

cancer.wellnesscommunity.org

Many free support and educational centers in America.

 

Well Spouse Foundation

610 Lexington Ave.

#208

Nyc 10022

800-838-0879

wellspouse@aol.com

wellspouse.org

Support group for relatives of cancer patients or other disabled people.

 

Medical Recovery Facilities/ Recovery Retreat/ Post-Surgery Care

 

People who get cosmetic surgery, any kind of medical surgery or treatment or have a serious illness sometimes recover at a place where they can get some medical care and peace of mind away from home.  Oftentimes, cosmetic surgery spas supply a recovery facility to the patient if they want it.

 

Some of these places are for-profit, some are nonprofit.  In this book, try the health spas section for the for-profit recovery centers, and the retreats for the non-profit ones.

 

Most "recovery" facilities are for substance abuse.  I couldn't find very many places specifically for medical recovery.  Check with your state health department medical facilities licensing branch.

 

There are a number of Christian medical recovery facilities out there.

 

medical-guide.org, find the best recovery facilities.

medical-spas.com

 

recoveryretreat.com

survivalblog.com/retreat_groups/

naturalhealthweb.com/topics/subtopics/retreats_ &_retreat_centers.html

campallen.org, texas.

retreatfinder.com

 

ebtnewlife.org, los angeles, medical and substance abuse recovery center.

artofdove.com

callanish.org

campdream.org

centerhealing.org

expeditioninspiration.org

givingvoice.org

harmonyhill.org

healingodyssey.org

strokesos.com/links8.html

recoveryretreat.com, b&b post-operative care for outpatient cosmetic sugery patients.

cheticaranch.com, costa rica medical surgical recovery retreat center, san jose, costa rica.

paradisecosmeticinn.com

edenia.com/medical/new-you.htm, recovery retreat in costa rica.

costarica-surgeons.com/retreats.html, medical/surgical recovery retreats in costa rica.

surgery-retreat.com, surgical retreat offering medical recovery care to patients of cosmetic, dental or eye surgery.

recoveryretreatsincostarica.com

lvs.com.au, health retreat queensland

postoprecoveryplace.com, san francisco post op recovery place.

surgery-retreat.com

cosmeticdentistrycr.com/places-to-stay.htm

cheticaranch.com, costa rica.

recoveryretreat.com

yogaofrecovery.com

brookhavenretreat.com

villabelen.com, plastic surgery costa rica, recovery center.

villaplenitud.com, post surgery, recovery retreat and spa, affiliated with the baylor university medical centre of dallas, texas.

 

castingforrecovery.org

888-553-3500

cfrprogram@aol.com

 

campgooddays.org

800-624-2135

 

Voyageur Outward Bound

800-321-Hike

800-328-2943

 

Chapter 2. Everything is Reversible

 

Everything is Reversible

 

When you've read as many medical articles and stories as I have, you realize that it's never over until it's over and nothing any doctor or expert tells you is laid in stone.

 

If people want to die or wait to die after being told they will soon, they will shortly.  Not all people who desperately want to live will but some will especially if they try to do everything right which comes down to enough mental and physical stimulation to help make you stronger complemented with good food, rest, relaxation, hope and laughter. 

 

I've seen it work many times.  Don't underestimate what you yourself can do.  Many people die because they let it happen by not doing anything proactive.  There's always hope.

The human body and mind has an x factor through which it can do incredible things.

 

Medical Hope Websites

 

helpstartshere.org, source for professional advice, inspiring stories, a social worker directory.

aafp.org/afp/20010101/81.html, spirituality and medical practice: using the hope questions as a practical tool.

bcrfcure.org/part_cur_wilson.html, wilson's hope for a cure.

cityofhope.org, coh.org, scientists working toward a cure for cancer and life threatening diseases.

cnn.com/health

facesofhope.org, provides support, education, and treatment for people with breast cancer.

flowersforhope.com

forbes.com/lifestyle/health

guardian.co.uk/genes, gene therapy holds out hope for baldness cure, stem cell hope for victims of age-related blindness.

home.online.no/~dusan/, non harmful cancer therapies, and non-medicinal treatments for a variety of conditions.

hopebeads.net, hope for a cure bracelets.

hopeforacure.org, hope for a cure foundation for parkinson's.

hopeforacurefoundation.org

hopeforacureguild.org

hopeforals.com, als.

hopeforryan.com, ryan's hope for a cure charitable foundation, muscular dystrophy.

hopemedicaleducation.com, hope medical institute.

medicalnewstoday.com/allarticles.php

newhopemedicalcenter.com, alternative medicine and cancer treatment center.

news.bbc.co.uk/2/hi/health/6123588.stm,, stem cell cure hope for diabetes; scientists in the us use an injection of bone marrow stem cells to treat diabetes in mice.

projecthope.org, medical care to poor children.

rafamily.org.uk, a cure for rhuematoid arthritus?

selfgrowth.com

tdprojecthope.com, team discovery project hope.

timesofindia.indiatimes.com/herbal_remedy_as_cancer_cure_hope

timesonline.co.uk/article/0,,11069-2144283,00.html, scientists have successfully reversed diabetes in mice.

tylershope.org

anything-can-happen.com, endurance and hope while overcoming many trials

pluginid.com/anything-can-happen, the best parts of life actually happen because of random chance and serendipity.

washingtonpost.com/wp-dyn/content/article/2006/01/10/ar2006011001325.html, a place of healing and hope for a cure.

westoahuhopeforacure.org, aids hope.

 

Medical Miracles Info

 

The medical literature says medical miracles are far and few between but it also says that the biggest medical miracle is to practice preventive medicine which is to live a healthy lifestyle.

 

Most miraculous medical cures are the result of self-care, doing all the right things to try to heal one's self. 

 

The marketplace is rife with unscrupulous people preying on the hopes of the afflicted.  A lot of medical ads and claims are outright fraud.

 

I'm not disputing the fact that there are alternative, obscure cures out there that the conventional Medical Establishment either doesn't know about or claims have not been tested rigorously or represent a threat to the profits of conventional therapy such as the use St. John's Wort to treat depression.  Even though it works, the conventional Medical Establishment tried to suppress it for years. 

 

Just be careful about what you're trying.  Approach everything with a critical eye.

 

For some people, the cause of a cure is self-delusion.  A certain small percentage of all terminally ill people will heal spontaneously for no logical or known reason.

 

Let's say your doctor tells you that you have a terminal disease and will die within a year so you go to some quack promoting blueberry muffins as the magic cure.  You religiously eat his blueberry muffins everyday.  Meanwhile, your body, through no action related to the blueberry muffins, starts to heal itself spontaneously or it starts to heal itself because you've also started drinking wheatgrass juice, exercising, taking oxygen therapy and meditating on shrinking your tumors.

 

You, being the fallible human being that you are, connect your healing with the blueberry muffins then become this doctor's cheerleader and an advocate for blueberry muffin therapy but it's based on faulty logic yet for every quack therapist I've seen, he or she has always had their small band of devotees who swear that this person and his or her particular therapy cured them.

 

The truth is that this person didn't cure them.  They have made a wrong causal inference.  The truth is that medical miracles are rare.  There is another reason as to why they healed yet the placebo effect could have helped.  The patient believes that this person can heal them so the power of suggestion alone helps.

 

You can see the Christian healers on BET (the Black Entertainment Network), TBN and other Christian networks.  Several investigative journalists have done stories on Benny Hinn and in their follow-ups several months after he supposedly cured them, they were all still sick.

 

A Christian or New Age healing event is a show, a performance.  There's a lot of hype and psyche up, as with the music and the atmosphere.  When you're on stage and this guy is supposedly healing you, most people play the role of being healed.  They are subtly pressured to.

 

They want to be good performers for the show.  They don't want to disappoint the healer.  It's partially self-delusion and partially peer pressure for them to claim they're healed and for someone crippled to suddenly prance across the stage but five hours later when the mania of the moment wears off, they are crippled again.

 

You can maximize your chances of healing from anything by using the power of your mind to affect your body, eating healthy foods, exercising, resting, relaxing, etc. but there are no guarantees and no concrete explanations as to why cancerous tumors disappear in some people and not in others, even after they do all the right things.

 

Don't be a fool.  Don't listen to the hype.  There is no such thing as magic.  It's all an illusion.

 

You could learn something by reading about other people's medical miracles plus be inspired to create your own.

 

Medical miracles require a combination of medical help, luck, faith and patience.

 

Medical Miracles Websites/ Impossible Cure Websites

 

The following websites are an eclectic mixture of viewpoints regarding medical miracles.  Some are pro, some con and some investigate them objectively.

 

outrageouspower.com/miracles

plim.org/whatswrong.html, what's wrong with miracle medicine?

weboflove.org/keystolife2

weboflove.org/keystolife, free

personalgrowthcourses.net

wddty.co.uk

wanttoknow.info/transformation

wanttoknow.info/wingmakers

wanttoknow.info/divinewisdomunderstanding

wanttoknow.info/consciousnessparadigms

thestatesmanonline.com, look up miracle medicines?

nbc15.com/home/headlines/11845316.html, his miracle of medicine.

impossiblecure.com, book impossible cure: the promise of homeopathy.

wholehealthnow.com

staticfreesoft.com/curestories/showstories.php

homeopathic.com

earthclinic.com, home remedies

curezone.com

mercola.com

shirleys-wellness-cafe.com

alternative-medicine-online.com

wordpress.com/tag/miraclemedicine/

2ndwind.org/transplantation/pdf/12steps.pdf, 12 steps toward a medical "miracle".

abc.net.au/catalyst/stories/s403183.htm

accessmed-msf.org/

acswebcontent.acs.org/landmarks/medical4.html, tailor drugs to individual needs, making medical miracles everyday events.

aegis.com/news, aegis-lt, medical miracles or misguided media?

aegis.org/news/lt/2000/lt000206.html, medical miracles or misguided media?

affirmativearticles.com/articles/category/medical-miracles

agentlecure.com/

alternativescentral.com

alternativescentral.com/manipulation-medicalmafia.htm, manipulation by the medical mafia.

amazon.com/arthritis-cure-miracle/dp/0312152841

apics.org/resources/magazine/past/march2005/medicalmiracles.htm

arnoldehret.com

askmen.com/fashion/body_and_mind_100/129_better_living.html, do medical miracle cures work?

bbrace.laughingsquid.net/medical-miracles.html

becomehealthynow.com

betterhuman.org

cnn.com/2003/health/12/25/medical.miracles.ap

coldcure.com

curevents.com

curezone.com

curezone.com/forums

curezone.org

digg.com/general_sciences/medical_miracles_not_supported_by_evidence_2

disease-freelivingforlife.com

doctoryourself.com

drclarkia.com/books/the_cure_for_all_diseases.html

drmalpani.com/miracle.htm

educate-yourself.org

electriceditor.com/impossiblecure/showstories.php

findcure.com

free.x3.hu/lunar/thebook/hom.htm

health.yahoo.com/experts/yeahdave/3994/do-you-believe-in-miracles

health.yahoo.com/experts/yeahdave/3994/do-you-believe-in-miracles?cin=54

hopestory.com

hoptechno.com/book40.htm

internetwks.com/owen/miracles.htm, medical miracles abound on the internet.

islamicmedicine.org/amazing.htm, the medical miracle of quran.

islamicmedicine.org/medmiraclesofquran/medmiracleseng.htm, the medical miracles of the holy quran.

ivanhoe.com/about/p_podcasts.cfm, ivanhoe's medical breakthroughs.

ivanhoe.com/story/p_bookstore.cfm, ivanhoe's medical breakthroughs.

journals.aol.com/kmc528/lifeasweknowit/entries/2007/05/13/medical-miracles/1601

kidzworld.com/article/1221-medical-miracles

kron.com/global/story.asp?s=1652207, hallucinogen may cure drug addiction.

lcfanfic.com/stories/2003/medicalm.txt, medical miracles.

learningsickness.com

learningsickness.com/resources/rules.asp

library.uchc.edu/departm/hnet/rbpopmed.html, medical miracles are few and far between.

germes90.ru/yeast-infections-diflucan.html

lifealert.com/health/topics/medicaltreatments.html

litalee.com, digestive enzymes.

livescience.com/othernews/060729_medical_miracles.html, medical miracles not supported by science in this case.

maroonblog.blogspot.com/

mbfoundation.org, medical benevolence foundation.

medcareers.com/resources/resource.asp

medical.philips.com/in/services/good_reading/

medicalassistedtreatment.org

medicalhumanities.net

medicalnewstoday.com/youropinions.php?opinionid=11562, there is a miracle cure for medication therapy.

michiganfootandankle.com/medical_miracles.html

miracle.com, medical miracle bible study.

miracle-asthma-cure.com

msnbc.msn.com/id/10240327/, saving your life: modern medical miracles.

mymedicalmiracle.com

neccs.org/readings.html, learn how to make your own medical miracles.

newhorizonpressbooks.com/ts_medical/miraclechild.php

newstarget.com/019313.html, herceptin hype, big pharma's new "miracle cure" for breast cancer.

nlm.nih.gov/hmd/conjoined, from 'monsters' to modern medical miracles.

nytimes.com/books/97/09/07/reviews/970907.07kolatat.html, if doctors say that there is no cure, you can invent one.

oprah.com/tows/pastshows/200302/tows_past_20030203.jhtml

oprah.com/tows/pastshows/200404/tows_past_20040421.jhtml, diseases for years are cured after radical medical treatments.

oz.net/~csrh/whycures.htm, why cures sometimes fail, only you can cure yourself.

doctoryourself.com

pcusa.org/pcnews/oldnews/2000/00407.htm, theologians ponder medical miracles.

peepresearch.org/surgery.html

phyllismiracles.com

psa-rising.com/eatingwell/turmeric.htm

pseudopodium.org/repress/medical/dont-be-alarmed.html

racoon.com/dcforum/dcforumid7/142.html, local cure for herpes found in kenya

ruseto.us, a cure with common sense.

rythospital.com, innovative miracles of modern medicine.

shirleys-wellness-cafe.com

slais.ubc.ca/research/current-research/curry/alt_med_2005_06_22.pdf, hydrogen peroxide medical miracle.

soulhealer.com

spiritualhealing.org

starhawk.org/activism/teargas.html, none of these are miracle cures

straightdope.com

surrenderworks.com

toolsforhealing.com

toolsforhealing.com/cd/articles/

trueionics.com, discover for yourself the healing properties of this true miracle of nature.

rhinopublish.com

txt-m8s.com/main/subject/health/page/

uncsense.com, uncommon sense

unhinderedliving.com

users.joplin.com/gwsmithsr/, western medicine typically does not cure disease, therapy is often harmful.

usoc.org/11555_43747.htm, united states olympic committee, medical miracles.

vishalmangalwadi.com/newage/ch09miracles.htm, my course in miracles.

wanttoknow.info

whywontgodhealamputees.com

wingnet.net/~praise/prophetic_word_to_doctors_and_medical_professionals.htm

wintersteel.homestead.com/miracles.html

wkyc.com/miracles

wkyc.com/miracles/

wkyc.com/miracles/about/newmedicine.asp

world-mysteries.com/sci_15.htm

youtube.com, search medical miracle.

 

Medical Mysteries Info

 

There are a few medical mystery shows on TV.  ABC occasionally does medical mystery shows, abcnews.go.com.

 

Most deal with mystery illnesses and mystery diseases.  A lot of medical mysteries are about healthy people who all of a sudden get deathly ill.  I've even seen an online game where you're spozed to figure out what disease someone has based on the symptoms.  Some medical mysteries deal with spontaneous remission, how very sick and injured people heal completely for no known reason.

 

Morgellons Disease is a good example of a medical mystery.  Some people think it's real.  Other people think it's a product of the human imagination.

 

Another one is environmental disease or industrial disease.  There is no test for it yet many people claim that the chemicals and products we're surrounded by makes them sick.

 

abcnews.go.com/primetime/story?id=2206846

ehealthforum.com

en.wikipedia.org/wiki/primetime:_medical_mysteries

epl.ca

ihs.gov/medicalprograms

medicalmystery.org

medmyst.rice.edu, the reconstructors' medical mysteries is an interactive web adventure.

naturalginesis.com/mysterious_biting_mite_infesting_homes_and_people_.htm

nejm.org/mystery

scienceblogs.com/cortex/2007/03/attention_sensation_and_myster.php

stfm.org

writerguy.com/sciencemystery/response.htm

 

Medical Secrets Info

 

addall.com/detail/0898652294.html, path of the medicine men: the spiritual and healing secrets.

ancienthealingsecrets.com

ancienthealingsecrets.net

anti-aging-revolution.net

anti-aging-secrets.info, sydney, au.

aromatherapy-secrets.org

asianhealthsecrets.com

bothendsoftherainbow.com, hawaiian health secrets, workshops.

bottomlinesecrets.com

buch.de/buch/05845/614_healing_secrets.html

care2.com/channels/solutions/guides/1039, 

chetday.com/secrets.htm, natural health secrets.

chinesemedicalsecrets.org

cureyourarthritis.com/amazingsecrets.htm

doc-schnitzer.com

doctorsecrets.com

drhealthsecrets.com

dr-schnitzer.de/forum-documentation.html, dr. schnitzer's health secrets forum.

dr-schnitzer.de/introe1.html, dr. schnitzer's health secrets: prevention and cure of diseases.

ekcny.com/healing_arts/healing_secrets.html

emotional healing secrets.

erbook.net

getresponse.com/archive/jointhefun/page10.html,

gracecathedral.org/enrichment/forum/for_20021215.shtml, the healing secrets of food.

healing secrets of color.

healing-happiness-longevity.com

healingproducts.com

healingsecrets3.com, new age.

healthsecrets.com, the world's greatest treasury of health secrets.

healthyagingsecrets.com 

thegreatestsecret.com, self-healing.

herbalgram.org/youngliving/herbalgram/articleview.asp?a=2248, in search of nature's healing secrets.

hgh-facts.com/health-and-fitness/12-vitality-secrets-right-outside-your-door.html

innerself.com, innerself.ca/html/food--nutrition/healing-diets/six-healing-secrets-of-food.html

isnare.com/eta.php?id=24193, skin health secrets: how to apply skin care products.

learningstrategies.com/qigong/healingpower.asp

lenaturelsecrets.com

med15.com

megahydrate.com/health_secrets_newsletter.html

mendribil.com/newsletter.html, dr. mendribil's vitality secrets newsletter.

natural-cure-secrets.com/natural_health_cures/

naturalhealthlibrary.com

nia.nih.gov/health/pubs/secrets

nurmuhammad.com/naqshbandisecrets/mainnaqshbandisecrets.html, sufi meditation secrets.

path2well.com, amazing secrets of health and healing.

prostatesecrets.com

reiki-secrets.com

secret-cures.com/

secretsofthehealthy.com

secretsofvitality.com

secretstohealth.us

spas.bz/secrets.html

spiritual-healing-secrets.com

spiritual-healing-secrets.typepad.com/spiritualhealingsecrets_b/

stoparthritis.com

superwisdom.com/public/353.cfm, superwisdom: seven vital secrets for a rich and purpose-filled life.

totalhealthbreakthroughs.com

totalhealthsecrets.com, 6 cd set.

treasuryofhealthsecrets.com

triangles.org, light and love.

tybro.com/html/secrets_of_spiritual_healing.html

vitality.com.au, seven secrets of staying young and healthy, successful and sexy.

yogahealthsecrets.com

 

Spontaneous Remission Info

 

Spontaneous remission means that whatever illness you had is now gone not due to any medical treatments you received.  You seemed to have healed completely for a reason that goes beyond medical treatment.  It defies logic.  Spontaneous regression means that it has stopped spreading and seems to be healing even though you aren't completely healed yet.

 

Spontaneous healing is a term that seems to have originated with Andrew Weil who wrote a book called Spontaneous Healing where he talked about the things you can do to maximize your ability to heal, things like eat the right foods, get enough sleep, exercise, don't drink alcohol, etc.  The following two websites offer some common sense advice about spontaneous healing:

 

healing.bc.ca/healing_intro.shtml

wholistichealingresearch.com/spontaneousremissions.html

 

amazon.com, spontaneous healing, how to discover and embrace your body's natural ability to maintain and heal itself, by andrew weil m.d.

amazon.com/spontaneous-remission-bibliography-brendan-oregan/dp/ 0943951178, book.

chetday.com/spontaneousremissions.htm

en.wikipedia.org/wiki/spontaneous_remission

garynull.com/documents/aginghealthfully/remissionofcancer.htm

gnhealth.com/documents/aginghealthfully/remissionofcancer.htm

healthcare.press-world.com/v/75501/spontaneous-healing-of-cancer.html

healthscout.com/video/1/2471/main.html

intentblog.com/archives/2005/08/spontaneous_rem.html, spontaneous remission in cancer.

karlloren.com/biopsy/p36.htm

lifestar.com/pages/spontaneousremission.html

nejm.org, do a search of spontaneous remission.

noetic.org/research/sr/faqs.html

plim.org/sponteneoushealing.html

projectcork.org/bibliographies/data/bibliography_spontaneous_remission.html

quackwatch.com/04consumereducation/placebo.html, spontaneous remission and the placebo effect.

second-opinions.co.uk/thuo-hypothesis.html, new hypothesis on spontaneous remission of cancer.

wddty.co.uk/search/spontaneous--remission.htm

 

Chapter 3. Day to Day Life With a Life-Changing Illness

 

Chronic Diseases/ Chronic Illness

 

A chronic illness or disease is a medical condition that theoretically can't be cured so you're stuck with "managing" it over a lifetime.  The best thing of all is to prevent it with healthy living.

 

Some chronic illnesses are aids, cancer, diabetes, Persian Gulf War Syndrome, autoimmune diseases, chronic fatigue syndrome, heart disease and neurological diseases like MS and epilepsy.

 

chronicdisease.org, national association of chronic disease directors.

 

chronic-illness.org, I notice the copyright from 2006 has not been updated so it could be an abandoned website.

 

cdc.gov/cdp/, chronic disease prevention databases; information on chronic diseases from the cdc.

4woman.gov/wwd, women with disabilities

aaaai.org/aadmc/inthenews/wypr/2006archive/chronic_diseases.html

aaawm.org/pr102003aoa_grant.shtml, adults with many chronic disabilities.

aafp.org

ontariocountypublichealth.com/chronic_diseases.html

aamft.org/families/consumer_updates/chronicillness.asp

aap.org/publiced/bk5_chronicillness_cope.htm

adobewallswellness.com/chronic_illness.htm, holistic and alternative help for chronic illness

advocacyforpatients.org, advocacy for patients

ahcpr.gov/research/elderdis.htm

amazon.com, book chronic disease epidemiology and control.

chronicillness.com, chronic illness.

calypte.com/chronicillnet

amazon.com/young-people-chronic-illness-huegel/dp/1575420414

anapsid.org/cnd, chronic neuroimmune diseases.

apa.org/monitor/mar99/chronic.html, computer programs help children cope with chronic illness

apahelpcenter.org/articles/article.php?id=119, a qualified psychologist can help you build the

arctichealth.nlm.nih.gov/chronic.html

autoimmunityresearch.org

beatautoimmunedisease.com

bpharmacysolutions.com/expertise/chronic.asp

bravekids.org

buchholzmedgroup.com/articles/pdf/chronic.pdf

calgaryhealthregion.ca/cdm, chronic disease management.

callforsoulwork.com, written by chronic fatigue sufferer.

cancerlibdoc.who.int/trs/who_trs_916.pdf, prevention of chronic diseases.

cardiumhealth.com/programs_services/managing_health.html

cc.nih.gov/ccc/patient_education/pepubs/copechron.pdf, coping with chronic illness.

cdc.gov/nccdphp/

cdc.gov/nccdphp/bb_arthritis/index.htm

cdc.gov/nccdphp/overview_text.htm

chcf.org/documents/chronicdisease

chcf.org/programs/chronicdisease, california.

chcs.org/publications3960, chronic disease management.

chi.sagepub.com

chroniccare.org, chronic disease management programs.

chronicdisease.org

chronicdisease.org/resources_for_healthcare_consu.html

chronicillness.ca

chronicillnesscoach.com

chronicillnet.org

co.dakota.mn.us/public_health/2004_comm_assess/assess_pdfs/chronic_disease.pdf

co.jackson.mi.us/hd/ch.htm, community health, help for people with chronic diseases.

communityhealth.dhhs.state.nc.us

cuphd.org/chronicdisease.html, chronic disease prevention and management.

dhfs.state.wi.us/wcdp, wisconsin chronic disease program (wcdp).

difficulties of chronic illness.

digestive.niddk.nih.gov/ddiseases/pubs

disabilityresources.org/drmwwwindex.html, disease management.

doh.state.fl.us/family/chronicdisease/

emotional resilience necessary to navigate the

en.wikipedia.org/wiki/anemia_of_chronic_disease

en.wikipedia.org/wiki/chronic_disease

en.wikipedia.org/wiki/chronic_granulomatous_disease

en.wikipedia.org/wiki/chronic_wasting_disease

endoflifecare.tripod.com

familydoctor.org/online/famdocen/home/healthy/prevention/785.html

fao.org/docrep/005/ac911e/ac911e00.htm, diet, nutrition and the prevention of chronic diseases.

gcccu.org/faculty/swd/chronic.cfm, students with disabilities.

hazelden.org/web/public/icc80608.page, twelve steps help manage chronic illness.

healingarts.org/dbasics/wwwboard/general/

healingwell.com

healingwithnutrition.com/cdisease/chronicfatigue/cdcplan.html

health.state.ny.us/diseases/

healthinfobase.com/blog/?p=71, herbs and spices could fight chronic disease.

healthservices.gov.bc.ca/cdm, chronic disease management.

healthyagingprograms.com

healthyamericans.org

healthypeople.gov/document/html/volume1/04ckd.htm, chronic kidney disease.

healthystates.csg.org/public+health+issues/chronic+diseases/

holistichelp.net, holistic health solutions, life management and support for people living with chronic illness.

idph.state.ia.us/hpcdp, chronic disease prevention.

immunesupport.com

infertility.                            dead website, try dotdash.com, tripsavvy.com, thoughtco.com and thebalance.com
/od/chronicdisease, chronic disease and infertility.

invisibleillness.wetpaint.com

kidshealth.org/teen/your_mind/problems/deal_chronic_illness.html

lifemasters.com/corporate/aboutdm/chronic.asp, about disease management, chronic conditions.

lulu.com/content/1246846, unmasking a diagnosis: how to find help for a confusing chronic illness.

lungnet.org.au/chronic-health.html

medicineonline.com/references/diseases_and_conditions/neurological_disorders/

medterms.com, look up chronic disease.

medterms.com/script/main/art.asp?articlekey=33490

msucares.com/health/health/chronic.html

myida.org, invisible disabilities advocate

ncpad.org, national center on physical activity and disability

neurologychannel.com/chronicpain/

pamf.org, palo alto medical foundation, information on chronic diseases and conditions.

parenting-ed.org/handout3/specificconcernsandproblems/copingwithchronicillness.htm, parental advice on coping with chronic illness of your child

patients need help.

pbs.org/inthebalance/archives/whocares/resources.html

polio.dyndns.org/polio/documents_library/39rxhowtolivewellwithchronicdisease.html

prevention.com

pubmedcentral.nih.gov/tocrender.fcgi?journal=245&action=archive, preventing chronic disease.

researchtoprevention.org/html/chronic.html

rpa.net/~lrandall/

scholastic.com/administrator/leadership/chronic_illness.htm, how to care for students with chronic medical conditions

seniorjournal.com/news/seniorstats/6-08-07-chronicdiseases.htm

showcase.netins.net/web/fmd/chronic

siumed.edu/oec/peds/html/chronic_disabilities.html

therapyinphiladelphia.com/selfhelp/tips/c91

thestar.com/article/52953, chronic illness

tis.eh.doe.gov/be, chronic beryllium disease prevention program.

traveldoctoronline.net/chronic/cronic.htm

uchicagokidshospital.org/specialties/chronic-disease/

umassmed.edu/medicine/divisions/prev_behav/

vahealth.org/cdpc/, chronic disease prevention and control.

wahoo4you.com

webmd.com/sleep-disorders/guide/sleep-chronic-illness

westonaprice.org/moderndiseases/chronicdisease

whhs.com/about/news/articles/2005/coping

who.int/entity/chp/chronic_disease_report/media/factsheet1.pdf

who.int/hpr/gs.fs.chronic.disease.shtml

who.int/topics/chronic_disease/en/

whqlibdoc.who.int/trs/who_trs_916.pdf

with chronic illness.

 

Thrive, Survive, Fight to Heal Yourself

 

There was a guy on some PBS show.  The doctor told him he had terminal cancer.  Instead of fighting it, they showed him going to the local bar drinking and smoking.

 

Even in this enlightened age, people still think what the doctor says is inevitable or that nothing is reversible.  Once you have some illness, they give up.

 

I have old close relatives.  I can’t force these loved ones to go outside or exercise.  They don’t want to.  I feel bad then I say to myself that I can’t control other people even when they’re hurting me.

 

Attitude is the number one thing that separates people who thrive, survive and heal themselves from people who die quickly when they get some kind of serious illness.

 

There is a certain amount of hope and a certain amount of inevitability.  Try to live an inspired life everyday no matter what.  You achieve that by doing something that comes from your true nature as I've talked about in my book A Free Spirit's Search For Enlightenment.

 

Everybody dies.  I already made peace with my death.  It's no big deal.  I'm on borrowed time.  I escaped death already by living through bad accidents.  Until then I will cherish life but when my time comes, I won't cry.  I will do it with nobility.

 

Oxygen is the key to life.  Be physically and mentally active to get oxygen to the brain and through the body.

 

Run, run, run, baby.  What is life?  What is a great life?  Keep running, baby.  That's what I do.  I jog when I'm injured all the time through storms and rain and I laugh because I'm the champion of my life.  I never wimp out of not releasing my natural inspired energy so when I die, I'll die knowing I honored who I was born to be.

 

Sometimes when I'm walking my dog I see an old guy and girl walking down the street each using a rocker.  That's gutsy.  Most people in their condition sit on their ass all day long.  No wonder you're depressed.

 

Watch all those drugs they give you.  I believe most drugs are toxic to the body even if they say they're good for you.  Why use a drug to lower blood pressure?  Just do regular physical activity.

 

Learn about the conventional medical establishment to get the best care possible while cutting medical costs.  Get a patient advocate if you feel you are being ripped off on your medical bills.

 

Tell your loved ones and business colleagues that you're sick and tell them what to expect from you.

 

Enjoy life.  Find things to do to make you feel good and laugh.

 

Take up dancing and listening to your favorite music alone with nobody to make you feel self-conscious.

 

No matter what, never surrender.  Fight, fight, fight for your life.

 

Take care of practical things.  Make arrangements for food, transportation and paying your bills. 

 

Finish off the paperwork that says what happens to your assets when you die.

 

Just when you're feeling really bad, something else happens.  When you go through hardship and tragedy over and over again, you might develop an attitude like I did.  Nothing surprises me.  If I wake up, that's a good day.  I keep moving and laughing to myself.

 

My life is worth it to me because I love myself.  In Paul's letters to the Corinthians in the Bible, Paul defines love as loving others like you love yourself.  People try to make it seem shameful if you love yourself.  It's the most natural thing to do.  I cherish myself.  I will try to live a great life because I love myself.  That's my motive.  It's natural not selfish.

 

God created me to release my natural energy as fully as I can.  I will honor Him by doing it to the best of my ability for as long as I can.

Follow your insticts.

 

Stay positive.

 

Never give up to the grim reaper.  Let him get you on his own.

 

Have a plan on how to be inspired everyday by doing inspired activities.

 

Don't listen to negative people.

 

Take care of your appearancve even if you spend most of your time alone.  It helps with self-respect.

 

Go on the internet and to the library to get both useful and intellectually-stimulating material.

 

If you believe in God, worship Him.

 

Get second and third opinions.

 

Try holistic medicine.

 

If you can't get a ride somewhere, take a bus, a cab or walk.

 

You live one day at a time.  Burn up energy everyday.  It stimulates you.

 

Everyday is a great day.  I will not be deprived from living a great life.

 

Try to relax and minimize stress.

 

Don't try to control everything.  Let go of some things like if it's really hard to keep working, don't do it.

 

Expect a hospital stay to be a drag.  Be cool while you're there.

 

No matter what some doctor says that's negative, don't accept it.  Fight to heal yourself.

 

Live as comfortably as you can.

 

Get a pet.  Take him for walks.

 

Respect medical professionals.  They have it hard too, dealing with sick people all the time.

 

Help others if possible.  It keeps you from feeling sorry for yourself.

 

Access community services to help you like transportation for disabled people, meals on wheels, homecare, free physiotherapy, etc.

 

Be thankful for where you live as opposed to living in some rural village in a third world country.

 

Chronic Illness Websites/ Long-Term Illness Websites

 

A chronic illness is something that will result in death like cancer, diabetes, multiple sclerosis, etc.

 

A long-term illness is an illness that's a nuisance but won't kill you like arthritis, osteoporosis, etc.

 

212articles.com/articles/38824/1/coping-with-chronic-or-life-threatening-illness-improve-yourself/page1.html

4therapy.com/support-groups/support-group-categories/life-threateningchronic-illness-1994

aacap.org/cs/root/developmentor/helping_children_cope_with_chronic_illness

alidabirch.com/chronic_illness.html, guidelines for management of chronic pain in adults

alpineguild.com/copingwithchronicillness.html

amazon.com, live happily despite chronic illness.

apa.org/helpcenter/help-chronic.aspx

askdrjackie.com/categories/13-life-threatening-chronic-illness

askives.com/encouraging-words-for-long-term-illness.html

askmen.com/sports/health/41_mens_health.html, life-threatening illnesses.

a-spiritual-journey-of-healing.com

augsburg.edu/cchp/life-threatening-illness, pathways provides programs to support persons dealing with a life-threatening or chronic illness.

beingwellbeing.com/archive/the-wisdom-of-chronic-illness.html

betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/chronic_illness

blog.childrensdayton.org/chronic_illness_trauma

bravekids.org, a support community

butyoudontlooksick.com

campwidow.org/workshop/rtd-widowed-by-long-term-illness/

canadian-nurse.com, chronic-illness

carecommunitycorps.org

caring4cancer.com

ccid.org, center for complex infectious diseases; bridges laboratory research and clinical practice to gain a better understanding of infections in the development of immune system disorders.

cdc.gov/flu/professionals/infectioncontrol/ltc-facility-guidance.htm

charlavankoten.com/living-with-chronic-health-conditions

chronic-illness.org

chronicillness.org.au

chronicillnessbooks.com

chronicillnesssupport.wordpress.com

chronicillnessworkbook.com

chronicillnet.org, information on chronic illness areas including aids/hiv, autoimmune diseases, cancer, chronic fatigue syndrome, neurological diseases, persian gulf war syndrome, heart disease and more.

cicoach.com, chronic illness coach.

cigna.com/individualandfamilies/health-and-well-being/hw/support-groups/life-threatening-chronic-illness-shc55.html

clinicaltrials.gov/ct2/show/nct01077414, study of psycho-socio-spiritual healing in the context of chronic or life-threatening illness

cohealth.org/lobby_docs/22.pdf, there are four types of chronic illnesses.

councilforrelationships.org/therapy/chronic-illness.shtml, chronic illness counseling

counselling-psychology.com.au/chronic-illness-support.html

criticalillnesshelp.info

dinet.org, coping with chronic illness.

en.wikipedia.org/wiki/chronic_(medicine)

en.wikipedia.org/wiki/illness

encyclopedia.com/topic/chronic_illness.aspx

endoflifecare.tripod.com

everydayhealthadvisor.com/illness

ezinearticles.com, fighting a chronic or life-threatening illness.

generationsjournal.org

growingupgreat.com/html/handouts/diagnosisofchronicillness.htm

hansacenter.com, holistic chronic illness treatment

healthcaremagic.com/questions/is-there-a-way-to-cause-long-term-illness

healthonlineblog.com

helpingourwomen.org, a resource center for women with chronic, life threatening and/or disabling illness serving massachusetts

hubpages.com/hub/how-to-live-well-with-a-chronic-illness

ideamarketers.com/?8_choices_you_must_make_to_live_successfully_with_chronic_illness

ihc.com/health-resources/health-topics/healthwise/content/shc55/life-threatening-and-chronic-illness.aspx, intermountain healthcare - salt lake city, utah

immuneweb.org, for people with fibromyalgia, chronic fatigue syndrome, multiple chemical sensitivities and other conditions.

josephyaskin.com/home/therapy-for-individuals/chronic-disease-coaching

kidshealth.org/parent/system/ill/seriously_ill.html

kidshealth.org/teen/your_mind/problems/deal_chronic_illness.html

kidshealth.schn.health.nsw.gov.au/fact-sheets/chronic-illness

life-spring.org.au, life spring is a charitable service for patients with chronic or life threatening illness, their families and carers.

linkinghumansystems.com/chronic_illness.html

linzworld.wordpress.com/category/medical-blogosphere, living with fibromyalgia.

lupus-support.org.uk/chron.htm

med.umich.edu/yourchild/topics/chronic.htm, children with chronic illnesses may be ill or well at any given time.

medicare.gov/longtermcare/static/home.asp

medscape.com, chronic illness

mendeley.com/research/coping-chronic-life-threatening-illness-psychosocial-perspectives-end-stage-renal-disease

mindandbodyworks.com/issues/long-term-illness

msnbc.msn.com/id/23115268, even with chronic illness, you may live to 100.

ncbi.nlm.nih.gov, chronic life threatening illness

needymeds.org

networktherapy.com/resources/support_groups/topic.asp

nhfv.org/files/books_chronic_illness.pdf

nlm.nih.gov/medlineplus/copingwithchronicillness.html

occupycfs.com

ohiopaininitiative.org

oprah.com/health/coping-with-a-long-term-illness-audio

pathfindersforcancer.org, a local program in western colorado dedicated to improving the quality-of-life of patients with cancer and other chronic and life-threatening illnesses

peacehealth.org/xhtml/content/shc/shc55.html, self help clearinghouse.

pendulum.org/stories/longterm.htm

pilgrimpathway.com, supporting, educating and inspiring individuals newly diagnosed with a chronic or life-threatening illness

prohealth.com

psychologycampus.com/health-psychology/chronic-illness.html

rdns.org.au/assets/research/pursuit/03_chronicillness_jan02.pdf

reallifeministries.com/chronic_illness

scribd.com/doc/34542821/confronting-life-threatening-illness

seattlehomeopathy.com/specialty/chronic-illness

seekersguidance.org/ans-blog/2011/10/18/long-term-illness-that-prevents-fasting/

sharecare.com

smile.org.au/research/ri-lifethreateningillnessesbasic.pdf

soulspringcounselling.com/illness.htm

staywellsolutionsonline.com

successfultherapymatters.com/pdf/trafford_livingwith_chronic_illness.pdf

temenoscenter.com/specialties_10.php, older adults may have a variety of issues including life-threatening issues

thejournal.ie/long-term-illness/news/

totallystart.com/psychological-development-in-children-with-chronic-illness.html

ukessays.com/essays/health/cystic-fibrosis-a-chronic-possibly-life-threatening-illness-health-es say.php

webmd.com/depression/symptoms-depressed-anxiety-12/chronic-illness-video, coping with chronic illnesses and depression.

webmd.com/palliative-care/coping-with-a-life-threatening-illness

whenalovedonefallsill.com

who.int/entity/medicines/areas/quality_safety/scoping_whoguide_malignant_pain_adults.pdf

wikihow.com/live-with-a-chronic-illness

wondersandworries.org, support for childen when a member of the family is struggling with chronic, life-threatening illness.

workingwithchronicillness.com

youtube.com, long-term illness

 

Telling Your Children You Have a Serious Disease

alzheimers.                            dead website, try dotdash.com, tripsavvy.com, thoughtco.com and thebalance.com
/od/kids/a/explain_alz.htm, explaining alzheimer's disease to kids.

andalusiaregional.com, how to tell your children that you have breast cancer.

bergeel.com/medicine-treatment/article5594.htm

centennialmedctr.com, how to tell your children that you have breast cancer, how to help children

datescape.net/busines-finances/manufacturing/mining/05-06-03-10, telling children about any serious illness disease

davita.com/articles/ckd, parents of children with chronic kidney disease.

health.articlesarchive.net/mesothelioma-cancer-what-to-tell-children.html

healthresources.caremark.com/topic/rafamily

is not easy.

lungdiseases.                            dead website, try dotdash.com, tripsavvy.com, thoughtco.com and thebalance.com
/od/generalinformation1/a/tellyourchild.htm, how do i tell my children i have been diagnosed with a lung disease?

medicinenet.com/script/main/art.asp?articlekey=miami-als.org/childrens.htm, helping children through parent's terminal illness.

medscape.com/viewarticle/449674_7, helping children through an adult's serious illness.

mesothelioma-content.com/asys/articles/mesothelioma-cancer--what-to-tell-children.html

thebestmatrix.com/healthcare-medicine/article74.htm, what to tell children.

through a parent's serious illness.

vhl.org/newsletter/vhl1995/95cbchn.htm, helping children through a parent's serious illness.

womens-childrens.com, how to tell your children that you have breast cancer.

 

Chapter 4. Wishes Fulfilled for Seriously Ill People

 

Wish Fulfillment Organizations/ Make a Wish for Terminally Ill People/ Make a Wish for Children

 

Wish fulfillment organizations generally offer the fulfillment of a lifelong desire to both terminally ill children and adults.

 

cmn.org, children's miracle network.

dreamfactoryinc.com, 800-456-7556

dreamfoundation.org

elderlywish.org

gktw.org, 800-995-kids, give kids the world foundation.

gktw.org, give kids the world, non-profit resort that offers children with life-threatening illnesses vacations in orlando, florida.

grant-a-wish.org, 800-933-5470

idahowish.org, make a wish of idaho's south central idaho chapter.

jackpotrewards.com

kidswishnetwork.org, the kidswish foundation

sunshinefoundation.com, 800-767-1976

wish.org, 800-722-9474, make a wish foundation.

 

A Special Wish Foundation

800-486-9474

Grants wishes to terminally ill people.

Base Camp

Children's Cancer Foundation

4651 N. Pine Hills Rd.

Orlando, Fl 32808

407-297-9648

Fax: 407-298-3928

Helps with tickets to Disney World, no wishes granted per se.

 

Brass Ring Society

500 Macaw Lane #5

Fern Park, Fl 32730

800-666-9474

brassring@brassring.org

brassring.org

 

Children's Dream Factory of Maine

400 U.S. Rt. 1

Falmouth, Me 04105

800-639-1492

207-781-3406

 

Children's Happiness Foundation

Pob 266

Marshfield, Ma 02050

800-424-3543

617-837-9609

Fax: 617-837-5229

 

Children's Wish Foundation International

7840 Roswell Rd.

#301

Atlanta, Ga 30350

800-323-Wish

770-393-Wish

Fax: 770-393-0683

childrenswish.org

 

Children's Wish Foundation

New Hope Center

100 E. Sybelia

#300

Maitland, Fl 32751

407-629-8920

Fax: 407-629-7206

 

Dream Foundation

888-4dreams

dreamfoundation.org

Adult version of Make a Wish foundation.

 

Dream Factory

Pob 3942

Louisville, Ky 40201

800-456-7556

Fax: 502-584-0023

 

Dreams Come True

8184 Baymeadows Way West

Jacksonville, Fl 32256

904-733-1010

 

Dreams Come True

Emory Clinic

Pediatrics

1365 Clifton Rd. Ne

Atlanta, Ga 30322

778-248-3496

 

Famous Fone Friends

9101 Sawyer St.

Los Angeles, Ca 90035

213-204-5683

A child's doctor contacts them and a celebrity calls the child to cheer him/ her up.

 

Fulfill A Dream

Pob 3989

Ft. Smith, Ar 72913

501-785-4130

 

Give Kids The World Foundation

210 S. Bass Road

Kissimmee, Fl 34746

800-995-Kids

407-396-1114

dream@gktw.org

gktw.org

 

Grant-A-Wish Foundation

Pob 21228

Baltimore, Md 21228

800-933-5470

410-744-1032

Fax: 410-242-8818

wish@grant-a-wish.org

grant-a-wish.org

Helps sick children with entertainment and mountain retreats.

 

High Hopes

Foundation of Nh

Pob 172

N. Salem, Nh 03073

800-639-6804

603-898-5333

 

Holiday Project

Pob 6829

Fdr Sta.

Nyc 10150

212-532-6158

They visit sick children during holidays.

 

Kids, Inc.

9300 Old Keene Mill Rd.

Burke, Va 22015

703-455-Kids

 

Lisa Madonia Memorial Fund

409 Veloit

Forest Pk., Il 60130

708-366-2057

Fax: 708-366-2065

 

Magic Moments

Children's Hospital of Alabama

1600 7th Ave. S.

Birmingham, Al 35233

205-939-9372

Fax: 205-939-9189

 

Make A Wish Foundation

2600 N. Central

#936

Phoenix, Az 85004

800-722-Wish

800-445-Wish

800-722-9474

602-240-6600

602-279-Wish

Fax: 602-279-0855

wish.org

Grants wishes to sick children.

 

Marty Lyons Foundation

333 Earle Ovington Blvd.

#600

Pob 9323

Mitchell Field, Ny 11553

800-232-7887

516-745-8966

 

Operation Lift Off

1171 Kings Ave.

Ben Salem, Pa 19020

215-639-1586

816-454-5557 Ks

504-431-7451 La

207-848-3157 Me

314-867-5961 Mo

614-245-9535 Oh

715-684-3181 Wi

Grants wishes to sick children.

 

Rotary Wishing Well

10900 Ne 8th St.

#900

Bellevue, Wa 98004

206-462-4606

Fax: 206-454-4383

 

Starlight Foundation

10920 Wilshire Blvd.

#1640

Los Angeles, Ca 90024

800-274-7827

starlight.org

Grants wishes to sick children.

 

Sunshine Foundation

4010 Levick St.

Philadelphia, Pa 19135

800-767-1976

215-535-1413

Fax: 215-535-8397

sunshinefoundation.org

Grants wishes to sick children.

 

Sunshine Foundation

Pob 255

5400 County Rd. 547 N.

Loughman, Fl 33858

800-457-1976

813-424-4188

sunshinefoundation.org

 

Teddi Project

Camp Good Days and Special Times

1332 Pittsford-Mendon Rd.

Mendon, Ny 14506

800-785-2135

716-624-5555

Fax: 716-624-5799

 

The Dream Factory

1218 5. Third

Louisville, Ky 40203

800-456-7556

502-637-8700

dreamfactoryinc.com

 

Thursdays Child

Pob 259279

Madison, Wi 53725

608-988-4234

608-278-4234

 

Wish Upon A Star 

Pob 4000

Visalia, Ca 93278

209-733-7753

Run by law enforcement.

 

Wish With Wings, Inc.

Pob 3479

Arlington, Tx 76007

817 469-9474

Fax: 817-275-6005

 

Wishing Star Foundation

539 W. Sharp.

Spokane, Wa 99201

509-325-9803

800-685-6956

Fax: 509-325-1778

 

Wishing Well Foundation

Pob 717

St. Louis, Mo 63188

314-272-6190

Wishes to children in the St. Louis area only who are chronically or terminally ill.

 

awgo.org/current-members-1 Lists its Members

 

awgo.org, assn. of wish-granting organizations.

facebook.com/AWGO2016/?fref=ts

 

awishwithwings.org/

dreamcometrue.org/

dctct.org/

dreamfactoryinc.org/

dreamfoundation.org/

frontrowfoundation.org/

give-a-wish.org/

magicmoments.org/

newhopeforkids.org/

specialwishes.org/

tenderwishes.org/

rainbowsociety.ab.ca/

thewishconnection.org/

wishesandmore.org/

wishescanhappen.org/

grantedtristate.org/

wishingstar.org/

wishingwelltexoma.org/

rainbowsociety.ab.ca/

 

Make-a-Wish/ Help with an Adventure 1

 

ped-onc.org/cfissues/maw.html

 

wheelsforwishes.org, Wheels for Wishes. 

 

challengeair.com, Challenge Air. 

motivational, inspirational and life-changing experiences to physically challenged children through aviation, take children up in small planes

 

dreamfactoryinc.com, The Dream Factory, Inc. 

1218 South Third Street

Louisville, Kentucky 40203

1-800-456-7556

1-502-637-8700

1-502-637-8744 - Fax

 

kcdream.org, The Dream Factory of Greater Kansas City. 

 

The Children's Dream Factory of Maine

400 U.S. Rte. 1 Falmouth, ME 04105

207-781-3406 or 1-800-456-7556

 

wish.org, Make A Wish Foundation of America. 

Cell:  602-626-4223

Fax: 602-279-0855

4742 N. 24th St., Suite 400

Phoenix, AZ 85016-4862

(602) 279-WISH

800-722-WISH (9474)

 

secondwish.org, Second Wish. 

POB 1751   

SILVERDALE, WA 98383

info@SECONDWISH.org

Mary Bridge Children's Hospital in Tacoma, Washington.

service area is counties Kitsap, Mason, Pierce

 

martylyonsfoundation.org, Marty Lyons Foundation. 

326 West 48th Street

New York, New York 10036

212-977-9474

fax 212-977-1752

New Jersey, New York, Massachusetts, Connecticut, Maryland,

Pennsylvania, South Carolina, North Carolina, Georgia, and Florida

 

memoriesoflove.org, Memories of Love. 

4932 Sunbeam Road

Jacksonville, FL 32257

 (904) 596-2789

(800) 625-1566

info@memoriesoflove.org

Orlando respite vacations

 

childrenswish.org, Children's Wish Foundation International. 

8615 Roswell Road Atlanta, POB 28785, Georgia 30350-7526

(800) 323-WISH

(770) 393-WISH

Fax (770) 393-0638

 

sunshinefoundation.org, Sunshine Foundation. 

POB 255

5400 County Road 547 N

Davenport, FL  33837

(863) 424-4188

1-800-457-1976

 

awishwithwings.org, A Wish with Wings, Inc. 

917 West Sanford StreetArlington, TX 76015

817.469.9474

Texas children

 

wishingstar.org, The Wishing Star Foundation. 

915 W. 2nd Suite B

Spokane, WA 99204

800-685-6956

(509) 744-3411

FAX: (509) 744-3414

Idaho, eastern Washington, Oregon and Nevada.

 

spwish.org, A Special Wish Foundation. 

A Special Wish Foundation - National Office

2244 S. Hamilton Road, Suite 202

Columbus, OH 43232

(614) 575-WISH

(800) 486-WISH

FAX (614) 575-1866

 

The Starlight Foundation. 

International Headquarters

5900 Wilshire Blvd.

Suite 2530

Los Angeles, CA 90036

(323) 634-0800

starlight.org/intl/programs/wishes.htm

starlight.org/intl/about/chapters.htm, Chapter Listing. 

 

indywish.org, Indiana Children's Wish Fund. 

317-913-WISH (9474)

FAX 317-913-9440

6435 Castleway W. Drive, Suite 130

Indianapolis, IN 46250

 

childrenswishes.org, Children's Hopes and Dreams. 

(973) 361-7366

(973) 361-7348

Fax: (908) 459-9399

280 Route 46

Dover, NJ 07801

 

Western Wishes Foundation. 

624 W. University, Suite 236

Denton, Texas 76201

(940) 898-8244

Fax (940) 382-7715

westernwishes.com

 

buckmasters.com/resources/badf/disabled-hunters/badf-life-hunts.aspx

Life Hunts. 

BADF

10540 Daystar Drive

Tuscaloosa, AL 35405

(205) 366-8415

BADF's Life Hunts hunting wishes

 

GKTW.com, Give Kids The World. 

visit Walt Disney World and Central Florida attractions.

 

kidswishnetwork.com, Kids Wish Network. 

1-888-918-9004

provides first wishes, funeral assistance

Oldsmar, Florida

 

wishland.org, Wishland. 

Give Kids the World for Southern California

(714) 881-0349

info@wishland.org

 

newhopeforkids.org, New Hope for Kids Wish Program.

205 East State Road 436, Fern Park, FL 32730

(407) 331-3059

FAX: (407) 331-306

Orlando

residents of Florida

 

wishuponastar.org, Wish Upon a Star. 

California Law Enforcement

POB 4000

Visalia, CA 93278

1.559.733.7753

1.800.821.6805

grant wishes of children afflicted with high-risk illnesses.

 

b4k.org

Benefit4Kids

21660 23 Mile Rd

Macomb, MI   48044

1-877-B4K-KIDO

877-245-5430

info@b4k.org

Benefit4Kids

outdoor wishes of children

hunting, fishing and camping trips

 

magicmoments.org, Magic Moments

c/o Children's Hospital of Alabama

1600 7th Avenue South

Birmingham, AL 35233

(205) 939-9372

fax: (205) 939-6717

Alabama

 

Children's Happiness Foundation

POB 266

Marshfield, MA 02050

(781) 837-5229

fax: (781) 837-5229

New England children

 

rainbowwishconnection.org, The Rainbow Connection. 

POB 46879

Mt. Clemens, Mich. 48046-6879

fax: (810) 783-577

 

Adventures for Wish Kids

afwkids.org

Ohio

trips to sporting events, holiday parties, trips to the zoo.

 

horsesforhope.com, Horses for Hope. 

G-7428 N. McKinley Rd

Flushing, MI  48433-9047

810.659.2151

fax: 1.832.213.3800

riding lessons, guided trail rides

Kid Day

children come out to our farm

 

Make-a-Wish/ Help with an Adventure 2

 

makingmemories.org, advanced breast cancer patients to fulfill a dream or wish.

 

dreamflight.org, Dreamflight (UK)

 

wish.org, Make a Wish Organisation

 

starbright.org, Starbright Foundation empower seriously ill children

 

 

angelwish.org, Angelwish.

children living with HIV/AIDS

 

benefit4kids.org, Benefit 4 Kids.

Michigan  

 

bertsbigadventure.org, Bert's Big Adventure 

Georgia

 

carolinasunshine.org, Carolina Sunshine for

Children.

 

catchadream.org, Catch-A-Dream.

outdoor adventure.

 

chailifeline.org, Chai Lifeline.

Jewish children with life threatening illness.

 

chefdavidskids.com, Chef David's Kids.

Florida

cherishedcreations.com, Cherished Creations

 

achildswish.org, A Child's Wish of Greater

New Orleans.

 

childrenwithcancerfund.co.uk, Children With Cancer Fund.

UK

childrensdreamfund.org, Children's Dream Fund.

Florida

 

childrenswish.org, The Children's Wish Foundation International.

 

claytondabney.org, Clayton Dabney Foundation for Kids.

 

cfdreamholidays.co.uk, Cystic Fibrosis Dream Holidays.

UK

dcmfwishes.org, Debbie Chisholm Memorial Foundation.

the Inland Empire

California
 

dreamcatchersusa.org, Dream Catchers USA 

outdoor dreams

 

dreamcometrue.org, Dream Come True.

Pennsylvania

dreamfactoryinc.org, The Dream Factory.

 

kcdream.org, The Dream Factory of Greater Kansas City.

 

dreamfoundation.org, Dream Foundation.

 

dreamscometrue.org, Dreams Come True.

 

gktw.org, Give Kids The World.

resort in Orlando Florida

grantedwish.org, Granted Wish Foundation  

Canton, Ohio.

 

happiness-unlimited.org, Happiness

adults with cancer.

New Jersey

 

hopekids.org, HopeKids.

Arizona.

 

huntofalifetime.org, Hunt of a Lifetime.

 

jasonsdreamsforkids.com, Jasons Dreams for Kids.

 

kiddskids.com, Kidd's Kids.

trips to Disney World

 

kidswishnetwork.org, Kids Wish Network  

National wish-granting organization

 

kristies.org, Kristie's Foundation.

California

magicmoments.org, Magic Moments.

Alabama

 

martylyonsfoundation.org, Marty Lyons Foundation.

 

newhopeforkids.org, New Hope for Kids.

Central Florida

 

operationliftoff.com, Operation Liftoff.

 

rainbowwishconnection.org, Rainbow Connection.

Michigan

 

reachforadream.org.za, Reach For A Dream Foundation.

South Africa.

spwish.org, A Special Wish Foundation.

 

starlight.org.uk, Starlight Children's Foundation UK.

 

sunshinefoundation.org, The Sunshine Foundation.

 

twilightwish.org, Twilight Wish Foundation 

Must be 68 years or older.

westernwishes.org, Western Wishes Foundation.

 

whenyouwishuponastar.org.uk, When You

Wish Upon A Star.

 

willowfoundation.org.uk, Willow Foundation.

United Kingdom.

 

awish.org, A Wish Come True, Inc. of Rhode Island.

 

awishwithwings.org, A Wish with Wings.

Texas children

 

wishesandmore.org, Wishes and More.

Minnesota

 

wishescanhappen.org, Wishes Can Happen

Inc.

Ohio

wishingstar.org, Wishing Star Foundation.

Idaho

wishingwellfoundation.com, The Wishing Well Foundation, Inc.

Collier and Lee Counties, Florida.

Make-a-Wish/ Help with an Adventure 3

 

familyvoicesohio.org/uploads/HMG_Wish_Granting_Organizations.pdf, big list

 

akidagain.org  offers  fun  filled  adventures,  Parent’s  Night  Out,  and  Hospital  visits  for  families  in  Ohio.

 

andreriveroflife.org  The  Andres  Sobel  River  of  Life  Foundation  helps  with  urgent  expenses  to  allow single  parents  to  stay  at  the  child’s  bedside  during  catastrophic  illness.

 

angelwish.org  Anglewish  grants  wishes  to  children  with  chronic  illnesses.

 

awishwithwings.org  grants  magical  wishes  for  little  Texans  with  life  threatening  conditions.

 

believeintomorrow.org  must  be  17  years  old  or  younger  and  receiving  treatment  at  the  Johns  Hopkins Children’s  Center.  Provide  programs  to  children  nationwide.

 

b4k.org/wish.htm  Benefit  4  Kids’  Outdoor  Wish  program  has  been  designed  to  allow  children  through the  age  of  17  with  debilitating  conditions  or  terminal  illnesses  an  opportunity  to  experience  the  outdoors  in  a way  they  would  not  otherwise  have  the  chance  to  do.

 

bertsbigadventure.org  provides  a  magical,  all-expenses-paid,  five-day  journey  to  Walt  Disney  World  for children  between  5  and  12  years  old  with  chronic  and  terminal  illnesses  and  their  families.

 

buckmasters.com/resources/badf/disabled-hunters.aspx  Life  Hunts  grants  hunting  trips  to  critically  ill and  extremely  disabled  children  and  young  adults  up  to  age  21.  Adaptive  Equipment  Grants  are  awarded through  local  One  Shot  chapters.

 

campsunshine.org  Nestled  alongside  the  shores  of  beautiful  Sebago  Lake  in  Maine,  Camp  Sunshine provides  respite,  support,  joy  and  hope  to  children  with  life-threatening  illnesses  and  their  immediate  families through  various  stages  of  a  child’s  illness.  The  year-round  program  is  free  of  charge  to  all  families,  and  includes 24-hour  onsite  medical  and  psychosocial  support.  Bereavement  groups  are  also  offered  for  families  who  have lost  a  child  to  an  illness.

 

catchadream.org  provides  once-in-a-lifetime  hunting  and  fishing  experiences  for  children  under  18 years  old  who  have  a  life-threatening  illness.

 

chefdavidskids.com/mission.html  Chef  David’s  Kids  helps  children  afflicted  with  cancer,  leukemia,  and pediatric  HIV.  They  also  help  with  neglected  and  abused  children.

 

childrensdreamfund.org  fulfills  dreams  of  children  3-18  who  have  been  diagnosed  with  a  life threatening  illness.

 

childswish.com  United  Special  Sportsman  Alliance,  Inc.  (USSA)  is  a  501(c)  (3)  non  -profit national  wish  granting  charity  that  specializes  in  sending  critically  il  l  and  disabled  youth and  disabled  veterans  on  the  outdoor  adventure  of  their  dreams!

 

childrenswish.org  Grants  wishes  to  children  under  the  age  of  eighteen  with  life  threatening  illnesses.

 

childrenswishendowment.org  provides  wishes  to  children  3-18  diagnosed  with  chronic,  life  threatening illnesses  in  Tammany  Parish  in  Louisiana.   Wish  Granting  Organizations  –pg2

 

dcmfwishes.org  Debbie  Chisholm  Memorial  Foundation  grants  wishes  to  catastrophically  ill  children  in Southern  California.

 

deliverthedream.org  retreat  programs  for  families  experiencing  serious  illness  or  crisis.

 

dreamalittle.org  creates  a  fantasy  bedroom  for  a  child  who  has  been  affected  by  an  illness,  disease,  or unfortunate  family  event.

 

dreamfactoryinc.org  grants  dreams  to  children  diagnosed  with  critical  or  chronic  illnesses  who  are  3 through  18  years  of  age.

 

dreamfoundation.org  makes  dreams  come  true  for  adults  facing  life  threatening  illness.

 

dreamscometrue.org  must  live  in  the  Lehigh,  PA  and  be  between  the  age  of  4  and  17  years  old.

 

ellefoundation.org  grants  second  wishes  to  5-18  year  olds  in  New  York,  New  Jersey,  and  Pennsylvania with  reoccurring  cancer.

 

flyinryanhawks.org  Adventure  Scholarships  based  on  financial  need,  character  which  reflects  Ryan’s principals  of  living,  and  demonstrated  passion  and  ability  to  pursue  your  adventure  of  choice

 

givengain.com/cgi-bin/giga.cgi?c=1305  Reach  for  a  Dream

 

givekidstheworld.org  Give  Kids  The  World  Village  is  a  70-acre,  nonprofit  “storybook”  resort,  located near  Central  Florida’s  most  beloved  attractions,  where  children  with  life-threatening  illnesses  and  their families  are  treated  to  weeklong,  cost-free  fantasy  vacations.

 

goodcharityfund.org  Terminally  Ill  Children’s  Fund  is  dedicated  in  helping  to  grant  wishes  of  children who  are  battling  life  threatening  conditions.

 

goteamimpact.org  matching  college  athletic  teams  with  children  with  life-threatening  illness  in Northeast,  Mid  Atlantic  or  Midwest.

 

grantedwish.org  grants  wishes  for  the  deserving,  disabled,  and  disadvantaged  all  over  the  world.

 

happiness-unlimited.org  help  bring  adults  with  cancer  the  gift  of  joy

 

hopekids.org  child  age  0-18  with  cancer  or  a  life-threatening  medical  condition  enjoys  program  of events  centered  around  the  greater  metropolitan  areas  of  Phoenix,  Minneapolis/St.Paul,  Salt  Lake  City  and Dallas/Fort  Worth.

 

huntofalifetime.org  isn’t  your  average  Make-A-Wish  foundation.  They  grant  hunting  and  fishing  dreams for  children  age  21  and  under,  who  have  been  diagnosed  with  life  threatening  illnesses.

 

indianachildrenswishfund.org  grants  wishes  to  child  in  Indiana,  ages  3-18,  with  life  threatening  illness.

jasonsdreamsforkids.com  grants  wishes  for  children  in  the  New  Jersey  area  only.

 

kidsthatcare.net/index2.php  grants  wishes  in  and  out  of  the  “toy”  box  for  cancer  patients.

 

kidswishnetwork.org  grant  wishes  to  kids  between  ages  3  and  18  who  are  battling  life-threatening conditions.  Wish  kids  can  request  just  about  anything  for  their  wish,  such  as  trips  to  theme  parks,  meeting celebrities,  travel,  and  shopping  sprees.

 

lighthousefamilyretreat.org  serves  children  with  cancer  and  their  families  at  a  seaside  retreat  to  help them  to  laugh  restore  family  relationships  and  find  hope  in  God.

 

magicmoments.org  grants  only  non-medical  wishes  for  4-18  year  old  residents  of  Alabama.

 

makeawishindiana.org  Make  A  Wish  Ohio,  Kentucky,  and  Indiana  Chapter

 

martylyonsfoundation.org  Applications  will  be  accepted  for  “special  wishes”  only  for  children chronologically  aged  three  (3)  through  seventeen  (17)  years.  Children  must  also  reside,  or  be  receiving  medical treatment  in  Florida,  New  Jersey  or  New  York.

 

merlinsmagicwand.org  Applications  are  accepted  on  behalf  of  seriously  ill,  disabled,  or  disadvantaged children  (aged  2-18  inclusive)  who  may  benefit  from  a  magical  day  out.  There  applications  must  be  made  by EITHER  parents/guardians  of  these  children  or  organizations  that  work  with  these  children.

 

newhopeforkids.org  grants  wishes  to  children  under  the  age  of  nineteen  with  life  threatening  illnesses

 

outdoordream.org  grants  outdoor  adventures  to  children  who  have  been  diagnosed  with  terminal  or life-threatening  illnesses.

 

rideawave.org  gives  children  with  special  needs  the  chance  to  feel  the  thrill  of  riding  a  wave  and experience  a  safe,  fun-filled  day  at  the  beach,  whether  they  are  physically,  developmentally  or  economically challenged.

 

roomtodreamfoundation.org  mission  is  to  create  healing  environments  in  hospitals,  communities,  and homes  for  children  and  adolescents  who  are  facing  chronic  illnesses.

 

specialwish.org  grants  the  wish  of  a  child  or  adolescent  (birth  through  age  20)  who  has  been  diagnosed by  a  physician  with  a  life-threatening  disorder.

 

spwish.org  grants  wishes  of  children  under  21  with  life  threatening  disorder

 

starlight.org  To  be  eligible  for  acceptance  into  the  Great  Escapes  family  activities  program,  a  child  must have  a  serious  illness  or  a  severe  chronic  medical  condition  that  significantly  affects  their  day-to-day  existence.

 

sunshinefoundation.org  sole  purpose  is  to  answer  the  dreams  of  chronically  ill,  seriously  ill,  physically challenged  and  abused  children,  ages  three  to  eighteen,  whose  families  cannot  fulfill  their  requests  due  to  the financial  strain  that  child's  illness  may  cause. Wish  Granting  Organizations  –pg4

 

tenderwishes.org/contact_us  must  reside  in  the  Regional  Municipality  of  Niagara.

 

thesamfund.org  supports  young  adult  cancer  survivors  in  the  United  States  as  they  recover  from  the financial  impact  of  cancer  treatment

 

treeofwishes.com  Wish  Support  Community  |  Tree  of  Wishes  allows  member  to  post  and  grant  each others  wishes.

 

wish.org  Make-A-Wish  Foundation  grants  wishes  of  children  2  ½  years  and  younger  than  18  years  old with  a  progressive,  degenerative  or  malignant  condition  that  places  the  child’s  life  in  danger.

 

wishingwellusa.org  fulfills  the  fondest  wish  of  any  child  not  expected  to  reach  age  18.

 

wishuponahero.com  largest  social  helping  website.  It  allows  people  to  help  each  other  directly.  Post  a wish  or  be  a  hero.

 

wishuponastar.org  grants  wishes  of  children  afflicted  with  high  risk  and  life  threatening  illnesses  in California,  ages  3  to  18  years  old.   

 

British Make-a-Wish

 

make-a-wish.org.uk

starlight.org.uk

 

Canadian Make-a-Wish

 

childrenswish.ca, The Children's Wish Foundation of Canada.

 

dreamstakeflight.ca, Dreams Take Flight.

Canada

 

starlightcanada.org, Starlight Starbright Children's Foundation Canada.

sunshine.ca, Sunshine Dreams for Kids.

tenderwishes.org, Tender Wishes Foundation

Niagara Falls, Ontario
 

makeawish.ca, 888 822 9474

wishmaker.ca

Chapter 5. A Chronic Illness Website Guide from feedspot.com

 

A List of Chronic Illness Websites at blog.feedspot.com/chronic_illness_blogs

 

a30minutelife.com

 

aboundinginhopewithlyme.com

 

achronicvoice.com

 

arthritisbroadcastnetwork.org/topic/en/news

 

backpainbloguk.com

 

bladder-help.com

 

blogmoretothestory.com

 

bloomingmindfulness.co.uk

 

brainlessblogger.net

 

brainsandbodiesblog.com

 

calebscookingcompany.com/blog

 

careclinic.io/blog

 

caringvoice.org/blog

 

chronicallycontent.com

 

chronicillnessbloggers.com/blog

 

chronicillnesstraumastudies.com/blog

 

chronicmigraineellie.blogspot.com

 

chronicmom.com

 

chronicmomlife.com

 

cicoach.com/blog

 

crazychroniclife.wordpress.com

 

damselinadress.ca

 

despitelupus.blogspot.com

 

dysautonomiasupport.org/blog

 

februarystars.co.uk

 

fightingparkinsonsdrugfree.com/blog

 

findingmymiracle.com

 

girlwithms.com

 

healthrising.org

 

healthskills.wordpress.com

 

heartofagiant.blog

 

hidrawear.com/blog

 

inflamed-and-untamed.com

 

infusionexpress.com/blog

 

justgotdiagnosed.com

 

laughingwhileyourecrying.wordpress.com

 

laurachamberlain.co.uk

 

lifeafternf.blogspot.com

 

lightscameracrohns.com/blog

 

livewithcfs.blogspot.com

 

livingwithme.blog

 

livingwithss.com/dir/articles

 

lookingforthelight.blog

 

lupuschick.com/lupus-and-autoimmune-blog

 

mecfsselfhelpguru.com/blog

 

michellestortz.com/the-awareness-practicebody-scan

 

mindfullyevie.com

 

movingtowardsbetter.ca

 

mshealthblog.com

 

mymigrainelife.net

 

painpalsblog.wordpress.com

 

painresource.com

 

pamelajessen.com

 

peskypelvis.com

 

picnicwithants.com

 

positivelyrachel.com

 

readbetweenthelyme.com

 

reddit.com/r/ChronicIllness

 

risingabovera.com/blog

 

sciencedaily.com/news/health_medicine/chronic_illness

 

seekingserenityandharmony.com

 

sherizeee.blogspot.com

 

sicklyconfidential.com

 

skillfullywell.com

 

smilesandsundays.com

 

sunshineandspoons.com/index.html

 

theadventuresofarthritisnfibromyalgia.wordpress.com

 

thebrokentraveller.com

 

thechronicallyunimaginable.blog

 

thechronictraveller.com

 

thecureforchronicpain.com/community

 

thedisableddivablog.com

 

thehealthsessions.com/blog

 

themigrainediva.com

 

urevolution.com

 

vitaslittlejourney.wordpress.com

 

A List of Chronic Illness Newsfeeds at blog.feedspot.com/chronic_illness_rss_feeds

 

a30minutelife.com

 

a30minutelife.com/feed

 

aboundinginhopewithlyme.com

 

aboundinginhopewithlyme.com/feed

 

achronicvoice.com/feed

 

achronicvoice.com

 

arthritisbroadcastnetwork.org/topic/en/news

 

arthritisbroadcastnetwork.org/topic/en/news/feed

 

backpainbloguk.com

 

backpainbloguk.com/feed

 

bladder-help.com/feed

 

bladder-help.com

 

blogmoretothestory.com

 

blogmoretothestory.com/feed

 

bloomingmindfulness.co.uk/feed

 

bloomingmindfulness.co.uk

 

brainlessblogger.net/feed

 

brainlessblogger.net

 

brainsandbodiesblog.com

 

brainsandbodiesblog.com/feed

 

calebscookingcompany.com/feed

 

calebscookingcompany.com/blog

 

careclinic.io/blog

 

careclinic.io/feed

 

caringvoice.org/blog/feed

 

caringvoice.org/blog

 

chronicallycontent.com

 

chronicallycontent.com/feed

 

chronicillnessbloggers.com/blog

 

chronicillnessbloggers.com/blog/feed

 

chronicillnesstraumastudies.com/blog/feed

 

chronicillnesstraumastudies.com/blog

 

chronicmigraineellie.blogspot.com/feeds/posts/default?alt=rss

 

chronicmigraineellie.blogspot.com

 

chronicmom.com/feed

 

chronicmom.com

 

chronicmomlife.com

 

chronicmomlife.com/feed

 

cicoach.com/blog/feed

 

cicoach.com/blog

 

crazychroniclife.wordpress.com/feed

 

crazychroniclife.wordpress.com

 

damselinadress.ca

 

damselinadress.ca/?feed=rss2

 

despitelupus.blogspot.com/feeds/posts/default?alt=rss

 

despitelupus.blogspot.com

 

dysautonomiasupport.org/feed.xml

 

dysautonomiasupport.org/blog

 

februarystars.co.uk/feed

 

februarystars.co.uk

 

feeds.feedburner.com/TheMigraineDiva

 

fightingparkinsonsdrugfree.com/blog/feed

 

fightingparkinsonsdrugfree.com/blog

 

findingmymiracle.com/feed

 

findingmymiracle.com

 

girlwithms.com/feeds/posts/default

 

girlwithms.com

 

healthrising.org

 

healthrising.org/feed

 

healthskills.wordpress.com/feed

 

healthskills.wordpress.com

 

heartofagiant.blog/feed

 

heartofagiant.blog

 

hidrawear.com/blog

 

hidrawear.com/feed

 

inflamed-and-untamed.com

 

inflamed-and-untamed.com/rss

 

infusionexpress.com/blog/feed

 

infusionexpress.com/blog

 

justgotdiagnosed.com

 

justgotdiagnosed.com/feed

 

laughingwhileyourecrying.wordpress.com/feed

 

laughingwhileyourecrying.wordpress.com

 

lifeafternf.blogspot.com/feeds/posts/default?alt=rss

 

lifeafternf.blogspot.com

 

lightscameracrohns.com/blog

 

lightscameracrohns.com/feed

 

livewithcfs.blogspot.com

 

livewithcfs.blogspot.com/feeds/posts/default?alt=rss

 

livingwithme.blog/feed/?x=1

 

livingwithme.blog

 

livingwithss.com/dir/articles/feed

 

livingwithss.com/dir/articles

 

lookingforthelight.blog/feed

 

lookingforthelight.blog

 

lupuschick.com/feed

 

lupuschick.com/lupus-and-autoimmune-blog

 

mecfsselfhelpguru.com/blog

 

mecfsselfhelpguru.com/blog/feed

 

michellestortz.com/the-awareness-practicebody-scan

 

michellestortz.com/the-awareness-practicebody-scan/feed

 

mindfullyevie.com/feed

 

mindfullyevie.com

 

movingtowardsbetter.ca/feed

 

movingtowardsbetter.ca

 

mshealthblog.com

 

mshealthblog.com/feed

 

mymigrainelife.net/feed

 

mymigrainelife.net

 

painpalsblog.wordpress.com/feed

 

painpalsblog.wordpress.com

 

painresource.com

 

painresource.com/feed

 

pamelajessen.com/feed

 

pamelajessen.com

 

peskypelvis.com/feed

 

peskypelvis.com

 

picnicwithants.com

 

picnicwithants.com/feed

 

positivelyrachel.com/feed

 

positivelyrachel.com

 

readbetweenthelyme.com/feed

 

readbetweenthelyme.com

 

reddit.com/r/ChronicIllness/.rss?format=xml

 

reddit.com/r/ChronicIllness

 

risingabovera.com/feed

 

risingabovera.com/blog

 

seekingserenityandharmony.com

 

sciencedaily.com/rss/health_medicine/chronic_illness.xml

 

sciencedaily.com/news/health_medicine/chronic_illness

 

seekingserenityandharmony.com

 

sherizeee.blogspot.com/feeds/posts/default?alt=rss

 

sherizeee.blogspot.com

 

sicklyconfidential.com

 

sicklyconfidential.com/feed

 

skillfullywell.com

 

skillfullywell.com/feed

 

smilesandsundays.com

 

smilesandsundays.com/feed

 

sunshineandspoons.com/index.html

 

sunshineandspoons.com/feeds/posts/default?alt=rss

 

theadventuresofarthritisnfibromyalgia.wordpress.com

 

theadventuresofarthritisnfibromyalgia.wordpress.com/feed

 

thebrokentraveller.com

 

thebrokentraveller.com/feed

 

thechronicallyunimaginable.blog/feed

 

thechronicallyunimaginable.blog

 

thechronictraveller.com/feed

 

thechronictraveller.com

 

thecureforchronicpain.com/community

 

thecureforchronicpain.com/community?format=RSS

 

thedisableddivablog.com/feed

 

thedisableddivablog.com

 

thehealthsessions.com/blog

 

thehealthsessions.com/blog/feed

 

themigrainediva.com

 

urevolution.com

 

urevolution.com/feed

 

vitaslittlejourney.wordpress.com

 

vitaslittlejourney.wordpress.com/feed

 

A List of Chronic Fatigue Syndrome Podcasts at blog.feedspot.com/cfs_podcasts

 

allaboutme.libsyn.com

 

blog.feedspot.com/cfs_blogs

 

buzzsprout.com/172265

 

soundcloud.com/user-23503120

 

spoonieradio.libsyn.com

 

theoptimumhealthclinic.libsyn.com/website

 

A List of Chronic Illness Podcasts at blog.feedspot.com/chronic_illness_podcasts

 

anchor.fm/charlie-hine

 

anchor.fm/gina-welds-hulse

 

anchor.fm/samantha-bowick

 

buzzsprout.com/169206

 

chronicallyhealing.libsyn.com

 

corinnenijjer.com/the-podcast

 

downtomylastspoon.com/index.php/category/podcast

 

invisiblenotbroken.com/home-chronic-illness-podcast

 

laurenselfridge.com/listen

 

sophantastic.org/podcast

 

soundcloud.com/user-426305028

 

soundcloud.com/user-23503120

 

uninvisiblepod.com

 

noendinsight.co

 

emotionalautoimmunity.com/category/podcast

 

A List of Chronic Illness youtube Channels at blog.feedspot.com/chronic_illness_youtube_channels

 

youtube.com/channel/UCzokVOj2JGK6N-2VoF858Rw/videos

 

youtube.com/channel/UCciK87ihkPdO3irvUtPpV8A/videos

 

youtube.com/channel/UC-tz1Du69PhcBkC3-9_Mgmw/videos

youtube.com/channel/UCa1cG-RMGNY-O0JEkjz438A/videos

 

youtube.com/channel/UC33MjJJGFWayn6pMDxoa-gQ/videos

 

youtube.com/channel/UCW6sYSpnS9MxLjPgqwnTrYw/videos

 

youtube.com/channel/UCKcJZ0vBtPrQWQbTdzJN_Iw/videos

 

youtube.com/user/eviekoehler11/videos

 

youtube.com/channel/UC1rn_Ji-9X8oPRA828apPFA/videos

 

youtube.com/channel/UCKlAHjDHw5jE06dGl_voCDw/videos

 

youtube.com/channel/UCYROjI8LdGTxAoL1TCO8bgw/videos

 

youtube.com/channel/UCI3fY1vCCe6CKH-bUAlgLcQ/videos

 

youtube.com/channel/UC1UeUeidLFKTbxxrxGmF0oA/videos

 

youtube.com/channel/UCmrj6ilyMI5G2hnraXRWpEQ/videos

 

youtube.com/channel/UCux6snAy692VQxnf2LpCz3g/videos

 

youtube.com/channel/UCl3v7r3ZbuS-ZKqhgBsRDcg/videos

 

youtube.com/channel/UConCTRQUd5p0mIT1Dg1gfTA/videos

 

youtube.com/channel/UCa-fyX2fjI6zEyPptVcDHmw/videos

 

youtube.com/channel/UCOrrY6FEouutyQv79vMwyFQ/videos

 

youtube.com/channel/UC0-lNmAdKsYu3EZAwgqg5ow/videos

 

youtube.com/channel/UCYh_b5Ql9bdMNGgpRMgLXJg/videos

 

youtube.com/channel/UCCGFUmaOS_RjqTq-XN7SQ5A/videos

 

youtube.com/channel/UC0ROkm_8Bjk0qOQ13XYOebg/videos

 

youtube.com/channel/UCxuibLxzozEU6nDfZ6PxwKQ/videos

 

youtube.com/user/kevinwreese/videos

 

youtube.com/channel/UCctsJOxJwHkc6aDkXOhWatg/videos

 

youtube.com/channel/UCYDU9zTzagDxBDdKfqFBgmQ/videos

 

youtube.com/channel/UCSEVa0iArrW9ZDzt3P2mYHw/videos

 

youtube.com/user/LiveHopeLupus/videos

 

youtube.com/channel/UCtKy1ibeHAQkzzkr9gb_LHA/videos

 

youtube.com/channel/UCPbEzmg5H4RHpAi1B_TtSEQ/videos

 

youtube.com/user/AmyMyersMD/videos

 

youtube.com/channel/UCzYbsWueAsUdVK-4EuuO0SA/videos

 

youtube.com/channel/UC7VjnyYauPhluED_hirJoRQ/videos

 

youtube.com/channel/UCW89Go0Ac0HK3922bN7Ve8g/videos

 

youtube.com/user/laurasnaturallife/videos

 

youtube.com/user/DrHermanReports/videos

 

youtube.com/channel/UCSMv_qGxYv33k9g4aLo0Ejw/videos

 

youtube.com/channel/UCxaoyvmOUY7rE1kQzcBfIYg/videos

 

youtube.com/channel/UCM2r5kP4EoLgOvjTxiI837w/videos

 

youtube.com/channel/UCKaX0dQwEUgTafzCZ2yEjUQ/videos

 

youtube.com/channel/UCx3CcaEADb1WTHDw0Hx5cXw/videos

 

youtube.com/channel/UCMOzRWeTZsahkefzM_NpdPA/videos

 

youtube.com/watch?v=vIHeexx7VZw

 

youtube.com/watch?v=JE4KE2c-mxg

 

youtube.com/watch?v=G7sq_5vniAs

 

youtube.com/watch?v=fBs9nxfCBPY

 

youtube.com/watch?v=Q9UJdeXFoio

 

youtube.com/watch?v=U7gHCRI_Gt8

 

youtube.com/watch?v=NjRtVKAXSdE

 

youtube.com/watch?v=7krFRloK-TQ

 

youtube.com/watch?v=6PMVwnHykRA

 

youtube.com/watch?v=r4xdMdk0Tl0

 

Some Chronic Illness Websites and Articles at feedspot.com/news/chronic_illness

 

Chronic Illness News, ScienceDaily

sciencedaily.com

 

Pain Resource, Chronic Pain Management

painresource.com

 

Brainless Blogger

brainlessblogger.net

 

Chronic Illness Advice

lupuschick.com

 

A Chronic Voice • Articulating lifelong illness

achronicvoice.com

 

Chronic Illness, Reddit

reddit.com

 

The Health Sessions, In-Depth Advice on Coping with Chronic Illness.

thehealthsessions.com

 

The Disabled Diva's Blog

thedisableddivablog.com

 

Chronic Fatigue Syndrome/ME and Fibromyalgia

healthrising.org

 

CareClinic

careclinic.io

 

Uncomfortable Revolution

urevolution.com

 

Looking For The Light

lookingforthelight.blog

 

Lights Camera Crohns

lightscameracrohns.com

 

Chronically Content

chronicallycontent.com

 

Sunshine and Spoons

sunshineandspoons.com

 

HidraWear

hidrawear.com

 

Back Pain Blog UK

backpainbloguk.com

 

Pamela Jessen, There is Always Hope

pamelajessen.com

 

Living with Superficial Siderosis

livingwithss.com

 

Infusion Express

infusionexpress.com

 

Some UK Chronic Illness Websites and Articles at feedspot.com/news/uk_chronic_illness

 

Back Pain Blog UK

backpainbloguk.com

 

Notebooks and Glasses, Chronic Pain Blog

notebooksandglasses.com

 

ME/CFS Self-Help Guru

mecfsselfhelpguru.com